Interpretations of stillbirth

Hsu, Min‐Tao; Tseng, Ying-Fen; Banks, Janet M.; Kuo, Ling-Lih

doi:10.1111/j.1365-2648.2004.03119.x

Cited by 40 publications

(43 citation statements)

References 42 publications

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“…Women have reported a powerful sense of overwhelming loss, not only of the baby as a physical presence, but of joy and celebration, of parenthood, and their sense of self. Grieving after such a loss may be long-lasting, with significant adjustment problems (Bennett et al, 2008;Cacciatore, 2007;Kelley & Trinidad, 2012;Radestad, 2001;Turton, Evans, & Hughes, 2009), but both Western and Asian parents have reported that their grief was not socially recognized, and that they struggled with the silence that surrounded the stillbirth (Downe et al, 2013;Hsu, Tseng, Banks, & Kuo, 2004;Kelley & Trinidad, 2012;Lang et al, 2011). Women dared not openly discuss their children's deaths (Arnold & Gemma, 2008;Cacciatore, 2007;Lang et al, 2011;McCreight, 2008).…”

Section: Grief and Recovery After Stillbirthmentioning

confidence: 94%

“…Women dared not openly discuss their children's deaths (Arnold & Gemma, 2008;Cacciatore, 2007;Lang et al, 2011;McCreight, 2008). Women blamed themselves for the deaths of their unborn children (Arnold & Gemma, 2008;Downe et al, 2013;Hsu et al, 2004;McCreight, 2008). Some parents blamed each other for the loss, creating strain in their relationships (Arnold & Gemma, 2008;Cacciatore, DeFrain, Jones, & Jones, 2008;Shaefer, 2010;Turton et al, 2009).…”

Section: Grief and Recovery After Stillbirthmentioning

confidence: 94%

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Taiwanese Women's Process of Recovery From Stillbirth: A Qualitative Descriptive Study

Tseng

Chen

Wang

2014

Research in Nursing & Health

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The purpose of this qualitative descriptive study was to portray the recovery process of Taiwanese women after stillbirth. Data were generated through individual in-depth interviews with 21 women selected using purposeful sampling. Three stages in an emotional journey of recovery were suffering from silent grief, searching for a way out, and achieving peace of mind and mental stability. Throughout their journey, the women's overarching concern was where the deceased child had gone and whether it was well. Together these stages composed A pathway to peace of mind, a mental journey on which women struggled to spiritually connect with the lost baby and finally sought a personal pathway to emotional peace. Findings can inform healthcare providers in providing culturally sensitive care for Taiwanese women to facilitate healing after a stillbirth.

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Section: Grief and Recovery After Stillbirthmentioning

confidence: 94%

Section: Grief and Recovery After Stillbirthmentioning

confidence: 94%

Taiwanese Women's Process of Recovery From Stillbirth: A Qualitative Descriptive Study

Tseng

Chen

Wang

2014

Research in Nursing & Health

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“…1 In some settings, the underlying stigma of stillbirths may lead to underreporting. 40 In other settings, birth attendants may overreport stillbirths to protect their reputation as good delivery attendants in the community 41,42 or to avoid investigation procedures required for neonatal deaths. 29 In addition to the lack of a validated algorithm for stillbirths, deaths due to some causes are often included as a subset of another condition due to a lack of cases.…”

Section: Identification Of Gold Standards and Validationmentioning

confidence: 99%

Ascertaining causes of neonatal deaths using verbal autopsy: current methods and challenges

et al. 2008

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Objective: 'Verbal autopsy' (VA) is used to ascertain cause of death in countries where vital registration systems are lacking. Current VA methods for neonatal deaths vary widely and suffer from several limitations. We aimed to: (1) review current neonatal VA methods, (2) identify gaps and limitations, (3) illustrate some limitations using VA data and (4) identify new approaches in methodology and analysis.Study Design: Rolling techniques and database search terms were used to identify articles that described neonatal VA administration, validation and cause of death assignment.Result: Current VA interviews include open and close-ended modules and are administered by trained interviewers. Causes of death are determined using physician review and/or computer algorithms for various neonatal causes of death. Challenges include lack of a standardized VA instrument and administration of methods, difficulty in identifying gold standards for validation studies, lack of validated algorithms for causes of death, poor existing algorithms, lack of standardized death classification terminology and the use of hierarchy to assign causes of death. Newer probabilistic methods of analysis such as Bayes Theorem or the Symptom Pattern method may improve accuracy for cause of death estimation and alleviate some of the challenges with traditional physician and algorithmic approaches, although additional research is needed.Conclusion: Given the continued reliance on VA to determine cause of death in settings with inadequate registration systems, it is important to understand the gaps in current VA methods and explore how methods can be improved to accurately reflect neonatal disease burden in the global community. Journal of Perinatology (2009) 29, 187-194; doi:10.1038/jp.2008 published online 25 December 2008 Keywords: verbal autopsy; cause of death; neonatal mortality; algorithms; hierarchy; challenges Background Data on causes of death are important for health sector planning, including assessing programmatic needs, monitoring progress of interventions and reassessing health priorities. However, little is known about causes of death in many developing countries because vital registration systems are lacking. Many deaths occur at home, outside the formal health sector, and few are attended by qualified medical professionals. Verbal autopsy (VA) has been used to assign cause of death in such settings.VA is a post-mortem in-depth interview with the primary caregiver of the deceased. In the case of child deaths, this is usually the mother. Underlying assumptions are that (1) each cause of death investigated has a set of observable symptoms that can be recognized and recalled by the primary caregiver, and (2) the characteristics of one cause of death can be distinguished from those of all others.The majority of the estimated 4 million annual global neonatal deaths occur in developing countries outside of the formal health care system. 1 Previous research on cause of death for children <5 often excluded neonatal cases due to poor rep...

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“…We did not restrict our criteria to any particular definition or operationalization of self-blame, guilt, or shame. Exploratory studies that did not expressly seek to understand selfblame, guilt, or shame yet reported them in their results were excluded because doing so would bias the review by not also including all exploratory studies that did not find evidence of self-blame, guilt, or shame (e.g., Adolfsson, Larsson, Wijma, & Bertero, 2004;Clyman, Green, Rowe, Mikkelsen, & Ataide, 1980;DeFrain, Martens, Stork, & Stork, 1990;DeFrain, Millspaugh, & Xie, 1996;Frost & Condon, 1996;Hsu, Tseng, Banks, & Kuo, 2004;Mandell, McAnulty, & Reece, 1980;Robinson, 2011;Samuelsson, Radestad, & Segesten, 2001;Smialek, 1978;Taub, 1996). 3.…”

mentioning

confidence: 99%

A Systematic Review of the Peer-Reviewed Literature on Self-Blame, Guilt, and Shame

Duncan

Cacciatore

2015

Omega (Westport)

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This is the first systematic review of the evidence on the prevalence of self-blame, guilt, and shame in bereaved parents. A search of PsychINFO, MEDLINE, Embase, CINAHL, PubMed, and Science Direct resulted in 18 studies for the period 1975 to 2013 which the authors have appraised. Self-blame, guilt, and shame are common in bereaved parents, albeit to varying degrees, with differential relationships to sex, and diminishing over time. There is some evidence that guilt and shame predict more intense grief reactions and that self-blame predicts posttraumatic symptomology, anxiety, and depression in bereaved parents. Heterogeneity of the studies and numerous methodological concerns limit the synthesis and strength of the evidence and the generalizability of the findings. Self-blame, guilt, and shame are commonly experienced by bereaved parents. Awareness of these affective states may assist clinicians in the identification of bereaved parents who are at a higher risk of developing adverse psychological outcomes. Overall, self-blame, guilt, and shame have received very little attention in the bereavement research, leaving many unanswered questions. Implications for practice and recommendations for future research are discussed. Self-blame, guilt, and shame are common in bereavement and may hinder the healthy progression of mourning (Buckle & Fleming, 2011;Humphrey, 2009;Rando, 1986 , 1989). However, self-blame, guilt, and shame have received relatively little attention in parental bereavement research. Reviews of guilt and shame in bereavement are either not current or comprehensive, narrative in style and therefore more susceptible to researcher bias or focused on various types of bereavement rather than parental bereavement specifically (Buckle & Fleming, 2011;Humphrey, 2009;Rando, 1986). Miles and Demi (1986) have proposed the only current theory of guilt in bereaved parents. While clinicians acknowledge that self-blame, guilt, and shame often hinder the progression of normal grieving, there are currently no robust, empirically tested theories of self-blame, guilt, and shame in bereaved parents to guide either diagnoses or interventions. This is the first systematic review of the literature on self-blame, guilt, and shame in bereaved parents characterized by a specific research question, inclusion and exclusion criteria, an explicit search strategy, systematic data extraction procedure, coding and analysis of the studies, methodological appraisal, and a synthesis of the available evidence text. These characteristics reduce the likelihood of reviewer bias or selective citation and provide readers with the information necessary to appraise both the included studies and the systematic review itself (Mulrow, 1994;Pai et al., 2004).Defining Self-Blame, Guilt, and Shame Both guilt and shame are self-conscious emotions involving self-blame (Tangney & Salovey, 1999) and, because they are intimately related, they are more difficult to observe as separate phenomena (Blum, 2008;Kubany & Watson, 2003;Silfver, 2007). ...

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Interpretations of stillbirth

Cited by 40 publications

References 42 publications

Taiwanese Women's Process of Recovery From Stillbirth: A Qualitative Descriptive Study

Taiwanese Women's Process of Recovery From Stillbirth: A Qualitative Descriptive Study

Ascertaining causes of neonatal deaths using verbal autopsy: current methods and challenges

A Systematic Review of the Peer-Reviewed Literature on Self-Blame, Guilt, and Shame

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