International perspectives on outcome measurement in pulmonary rehabilitation of people with COPD: A qualitative study

Souto-Miranda, Sara; Vaes, Anouk W.; Gloeckl, Rainer; Grongstad, Anita; Spruit, Martijn A.; Marques, Alda

doi:10.1016/j.rmed.2022.106936

Cited by 6 publications

(5 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…• The quadruple 1-minute protocol using the tidal volume methacholine challenge is safe and feasible when conducted by experienced physiologists. Discovering new ways to improve pulmonary rehabilitation (PR) and physical activity (PA) access and outcomes is a research priority [10][11][12]. This oral presentation session provided new insights into current interventions and measures used in respiratory diseases.…”

Section: Take-home Messagesmentioning

confidence: 99%

ERS International Congress 2022: highlights from the Allied Respiratory Professionals Assembly

et al. 2023

View full text Add to dashboard Cite

In this paper, we provide a brief overview of some of the outstanding sessions that were (co)organised by the Allied Respiratory Professionals Assembly during the 2022 European Respiratory Society (ERS) International Congress, which was held in a hybrid format. Early Career Members from Assembly 9 summarised the content of the sessions, with the support of the Officers from the four Assembly groups: Respiratory Function Technologists and Scientists (Group 9.01); Physiotherapists (Group 9.02); Nurses (Group 9.03); Psychologists and Behavioural Scientists (Group 9.04). The sessions covered the following topics: recent advances in cardiopulmonary exercise and challenge testing; the role and new trends in physiotherapy, exercise and physical activity promotion interventions in chronic respiratory diseases; development of the international curriculum for respiratory nurses and nursing aspects in disease management; and treatment adherence, e-health interventions and post Covid-19 challenges. This Highlights paper targets delegates who attended the Congress sessions, as well as those who were unable to attend, and provides valuable insight into the latest scientific data and emerging areas affecting the clinical practice of Allied Respiratory Professionals.

show abstract

Section: Take-home Messagesmentioning

confidence: 99%

ERS International Congress 2022: highlights from the Allied Respiratory Professionals Assembly

et al. 2023

View full text Add to dashboard Cite

show abstract

“…24 Efforts are currently underway to develop a core outcome set (COS) in pulmonary rehabilitation for people with COPD, following a systematic review demonstrating high heterogeneity. 25 While there will likely be commonalities in outcomes of importance for people with COPD or lung cancer, differences between the two diagnoses means a disease-specific approach, which includes a set of core outcomes and valid measurement instruments for people with lung cancer is also required. Differences may include symptom burden, for example, cancer-related fatigue, due to the disease and treatments, or the impact of stigma and prognosis for people with lung cancer.…”

Section: Open Accessmentioning

confidence: 99%

Rehabilitation outcomes for people with lung cancer (UNITE): protocol for the development of a core outcome set

et al. 2023

View full text Add to dashboard Cite

IntroductionWith treatment-related improvements in survival, rehabilitation is essential to improve function and health-related quality of life and manage the high symptom burden associated with lung cancer. Despite this, significant heterogeneity exists in the outcomes and instruments used to evaluate lung cancer rehabilitation programme impact. This study aims to develop a core set of clinically relevant lung cancer rehabilitation outcomes for use in clinical practice.Methods and analysisAn international Delphi consensus study involving consumer, healthcare professional and researcher stakeholders to determine which outcomes to include and how to measure these. Stage 1 (preliminary): mixed methods to develop the potential list of outcomes (1) overview of systematic reviews of lung cancer exercise interventions and (2) focus groups and individual interviews with people with lung cancer. Stage 2: outcomes were grouped according to the International Classification of Functioning, Disability and Health domains. Stage 3: to determine priority outcomes for core outcome set (COS) inclusion participants will rate each outcome’s importance (one-nine-point Likert scale) over two-three survey rounds. Stage 4: following review by the steering committee, a consensus meeting will be held if agreement on the COS has not been reached.Stage 5: recommendations will be made regarding a single instrument for measuring each COS outcome by reviewing existing resources where consensus has already been reached. Where resources do not exist the quality and feasibility of potential measurement instruments will be appraised, and the Delphi consensus survey and meeting process outlined in stages 3–4 will be repeated.This protocol adheres to the COS-Standardised Protocol statement and will be conducted and reported according to the COS-Standards for Development recommendations and the COS-Standards for Reporting.Ethics and disseminationEthics approval (20/9/22, University of Melbourne ID 2022-24839-32231-3). Dissemination in peer-reviewed journals and conference presentations.

show abstract

“…Exercise capacity is an important clinical measure to determine the functional status of people with chronic obstructive pulmonary disease (COPD) 1. It is also an important outcome domain reported in evidence for the development of core outcome sets in pulmonary rehabilitation (PR) programmes 2…”

Section: Introductionmentioning

confidence: 99%

“… 1 It is also an important outcome domain reported in evidence for the development of core outcome sets in pulmonary rehabilitation (PR) programmes. 2 …”

Section: Introductionmentioning

confidence: 99%

“…1 It is also an important outcome domain reported in evidence for the development of core outcome sets in pulmonary rehabilitation (PR) programmes. 2 The field tests are used to assess the exercise capacity to overcome the limitations of cardiopulmonary exercise testing (CPET) (high cost, training of personnel and medical contraindications). 3 4 Step tests are an interesting option of field test since they require minimal physical space and equipment, are portable, and, most importantly, they reflect one of the main activities of daily living, such as climbing and descending stairs.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Measurement properties of the incremental step test for people with chronic obstructive pulmonary disease: a cross-sectional study

Gonçalves,

Carlos Winck,

Silva

et al. 2024

BMJ Open

View full text Add to dashboard Cite

ObjectivesThe new incremental step test (IST) is a field test that was developed for people with chronic obstructive pulmonary disease (COPD), based on the characteristics of the incremental shuttle walk test (ISWT); however, its measurement properties still need to be determined. We aimed, first, to assess the construct validity (through the comparison with the ISWT), within-day reliability and measurement error of the IST in people with COPD; and, second, to identify whether the participants have a learning effect in the IST.DesignCross-sectional study, conducted according to COnsensus-based Standards for the selection of health status Measurement INstruments guidelines.SettingA family health unit in Portugal, April 2022 to June 2023.Participants and analysis63 participants (67.5±10.5 years) attended two sessions to perform two IST and two ISWT, separately. Spearman’s correlations were used to compare the best performances between the IST and the ISWT. Intraclass correlation coefficient (ICC2,1) was used for reliability, and the SE of measurement (SEM), minimal detectable change at 95% CI (MDC95) and Bland and Altman 95% limits of agreement (LoA) were used for measurement error. The learning effect was explored with the Wilcoxon signed-rank test.ResultsThe IST was significant and strongly correlated with the ISWT (0.72<ρ<0.74, p<0.001), presented an ICC2,1of 0.95 (95% CI 0.92 to 0.97), SEM=11.7 (18.9%), MDC95=32.4 (52.2%) and the LoA were −33.61 to 31.48 for the number of steps. No difference was observed between the number of steps of the two attempts of the IST (p>0.05).ConclusionsThe IST can be suggested as a valid and reliable test to assess exercise capacity in people with COPD, with no learning effect when two IST are performed on the same day. The measurement error of the IST is considered indeterminate.Trial registration numberNCT04715659.

show abstract

International perspectives on outcome measurement in pulmonary rehabilitation of people with COPD: A qualitative study

Cited by 6 publications

References 29 publications

ERS International Congress 2022: highlights from the Allied Respiratory Professionals Assembly

ERS International Congress 2022: highlights from the Allied Respiratory Professionals Assembly

Rehabilitation outcomes for people with lung cancer (UNITE): protocol for the development of a core outcome set

Measurement properties of the incremental step test for people with chronic obstructive pulmonary disease: a cross-sectional study

Contact Info

Product

Resources

About