Integrated Palliative Care Outcome Scale for Dementia

Factors influencing effective data sharing between health care and social care regarding the care of older people: a qualitative evidence synthesis

“…Of the 24 studies included in the review, reported in 29 papers and one report, the main settings or contexts in which data-sharing took place were primary care (n = 4 studies), 9,12,20,63 the community (n = 8), 18,[64][65][66][67][68][69][70] transitional care (n = 5), 14,23,[71][72][73] palliative care (n = 5) 19,21,[74][75][76] or care home settings (n = 2). 77,78 Few studies (n = 5) 14,20,66,71,77 reported demographic details regarding the service user population that data-sharing was intended to benefit. Most defined their population of focus as older people with care needs (Table 4), although some were conducted in specific populations, for example, adults with dementia (n = 2).…”

“…In 11 studies, study participants were health and social care professionals, 12,14,19,20,[67][68][69][73][74][75]78 11 studies included patients and carers as well as professionals, 9,18,21,23,[63][64][65][66]71,72,77,[79][80][81][82][83][84] in 1 study participants were not clearly reported, 76 while 1 study was conducted solely with older people. 70 Sample sizes ranged from 2 to 220 participants.…”

“…A total of 13 studies 9,14,18,20,53,64,66,68,70,74,[76][77][78] used a mixed-methods approach and 11 were solely qualitative. 12,19,21,23,65,67,69,71,72,73,75,79,[80][81][82][83] Interviews were used to collect data in all studies, with most obtaining additional data using other methods such as focus groups 9,21,23,63,68,70,77,[79][80][81][82][83][84] and participant observation. 23,63,65,69,[71][72][73]75,77,…”

“…12,19,21,23,65,67,69,71,72,73,75,79,[80][81][82][83] Interviews were used to collect data in all studies, with most obtaining additional data using other methods such as focus groups 9,21,23,63,68,70,77,[79][80][81][82][83][84] and participant observation. 23,63,65,69,[71][72][73]75,77,[80][81][82][83][84][85] Eight studies conducted document analysis or audits, for example of care plans. 9,14,20,64,68,69,72,<...…”

“…9,12,14,18,20,21,23,65,[68][69][70][71]74,76,[79][80][81][82][83][84] There were 13 studies investigating current practice, 9,12,18,19,21,63,67,69,71,72,75,76,78,79 while 11 studies evaluated the implementation of initiatives focused either solely on improving data-sharing or on improving care delivery, of which data-sharing was a part (Table 4). 14,20,23,[64][65][66]68,70,73,74,77,[80][81][82][83][84] A range of health and social car...…”