Information Needs of Patients About Immunosuppressive Medication in a German Kidney Transplant Sample: Prevalence and Correlates

Klewitz, Felix; Nöhre, Mariel; Bauer-Hohmann, Maximilian; Tegtbur, Uwe; Schiffer, Lena; Pape, Lars; Schiffer, Mario; Zwaan, Martina de

doi:10.3389/fpsyt.2019.00444

Cited by 12 publications

(19 citation statements)

References 87 publications

(118 reference statements)

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“…This systematic review discovered that patient needs for education, training, and information have not been sufficiently met [7,17,18,[21][22][23]29,31,35]. Past studies have shown that supporting transplant recipients by increasing their disease-specific knowledge can produce medical and psychological benefits [39].…”

Section: Discussionmentioning

confidence: 99%

“…Most participants were kidney transplant recipients [7,[15][16][17][18][19][20][21][22][23][24][25][26], followed by heart transplant recipients [5,[27][28][29], liver transplant recipients [30,31], and lung transplant recipients [32]. Three studies were not limited to specific organ transplant recipients [33][34][35].…”

Section: Research Aim and Participantsmentioning

confidence: 99%

“…One study focused on adolescents and pediatric recipients [18]. Eight studies assessed the psychological adjustment of organ transplant recipients [7,16,18,20,21,30,31,34], eight studies assessed both the quality of life and other aspects of transplant recipients' experiences [22][23][24]26,28,29,33,35], two studies assessed the sleep quality of transplant recipients [15,25], and six studies assessed patients' experiences and coping strategies, alongside the assistance they needed during the dark-recovery stage [5,17,19,27,28,32].…”

Section: Research Aim and Participantsmentioning

confidence: 99%

“…Many patients believed that they did not obtain clear and necessary information before discharge. Six studies [7,17,18,23,31,35] discussed the need for education and information, which can help patients address various challenges after transplantation. Education and information are necessary to improve patients' self-management.…”

Section: Education and Information Training Needsmentioning

confidence: 99%

“… 2. Klewitz et al [ 17 ] To explore satisfaction with information received about ISM among patients after kidney transplantation. n = 440, aged > 16 years.…”

Section: Table A1mentioning

confidence: 99%

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The Difficulties and Needs of Organ Transplant Recipients during Postoperative Care at Home: A Systematic Review

Yang

Chen

Huang³

et al. 2020

IJERPH

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With recent advances in surgery and immunosuppressive drugs, organ transplantation has become a major treatment for irreversible organ failure. However, organ transplant recipients returning home after operation may face ongoing physiological, psychological, and social difficulties. To increase recipients’ quality of life, postoperative care at home is critical. Thus, the aim of this systematic literature review was to explore recipients’ difficulties and needs during postoperative care at home. Our search conformed to Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and returned 23 relevant articles published from 1997–2020 in PubMed, MEDLINE, EBSCO, Cochrane, ProQuest, and CEPS, which were assessed using the Modified Jadad Scale or the 32 Consolidated Criteria for Reporting Qualitative Research (COREQ) appraisal indices and then synthesized through narration. The most common difficulties faced were psychological difficulties, followed by physiological, social, and other difficulties; the most common needs were psychological needs, followed by education and information training, social, and other needs. These results demonstrated that healthcare professionals can do more to provide patients with comprehensive care and promote successful self-management and quality of life at home. They also confirmed that collaboration between transplant teams, caregivers, and patients is necessary to optimize postoperative outcomes. We suggest that customized care may promote postoperative patients’ self-management and quality of life at home.

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Section: Discussionmentioning

confidence: 99%

Section: Research Aim and Participantsmentioning

confidence: 99%

Section: Research Aim and Participantsmentioning

confidence: 99%

Section: Education and Information Training Needsmentioning

confidence: 99%

“… 2. Klewitz et al [ 17 ] To explore satisfaction with information received about ISM among patients after kidney transplantation. n = 440, aged > 16 years.…”

Section: Table A1mentioning

confidence: 99%

See 3 more Smart Citations

The Difficulties and Needs of Organ Transplant Recipients during Postoperative Care at Home: A Systematic Review

Yang

Chen

Huang³

et al. 2020

IJERPH

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Evaluation of medication-related problems in liver transplant recipients with and without an outpatient medication consultation by a clinical pharmacist: a cohort study

Mulder

Doga

Borgsteede³

et al. 2022

Int J Clin Pharm

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Background Transplant recipients undergo significant changes in their medication regimen during follow-up and are at an increased risk for medication-related problems (MRPs). Aim This study aimed to compare the prevalence and types of MRPs and interventions in liver transplant recipients with and without an outpatient medication consultation by a clinical pharmacist as well as the satisfaction with information about medicines and medication adherence. Method We performed a single-center, observational cohort study. A retro- and prospective cohort were used and subdivided in a group that did and did not receive a medication consultation. The prevalence and types of MRPs and interventions were identified and categorized. The satisfaction parameters were evaluated using validated questionnaires. Results Included were 291 patients. In total, 368 MRPs were identified in 197 patients in the non-medication consultation cohort (median 1; range 1–3 per patient) and 248 MRPs in 94 patients in the medication consultation cohort (median 2; range 1–4 per patient). In the medication consultation cohort, significantly fewer MRPs as unnecessary drugs (17.3% versus 58.7%, p < 0.001), suboptimal therapy (2.4% versus 9.5%, p < 0.001), untreated indication (2.8% versus 6.8%, p = 0.040) and underdosed drugs (0.4% versus 6.3%, p < 0.001) were identified. In the non-medication consultation cohort significantly more patients used unnecessary drugs (72.1% versus 39.4%, p < 0.001) compared to the medication consultation cohort. Patients in both cohorts are satisfied with the information about medicines and reported a high medication adherence. Conclusion Patients in the medication consultation cohort had significantly fewer MRPs and used significantly less unnecessary drugs. Including a clinical pharmacist to the post-transplant care has an added value.

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Sickness Symptoms in Kidney Transplant Recipients: A Scoping Review

Sung¹,

Hershberger

Lockwood³

2022

West J Nurs Res

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Sickness symptoms (depressive symptoms, anxiety, and fatigue) are common among people with chronic illness, often presenting as a symptom cluster. Sickness symptoms persist in many patients with chronic kidney disease, even after kidney transplantation (KT); however, little is known about sickness symptom-induced burden in KT recipients. This scoping review synthesizes available evidence for sickness symptoms in KT recipients, including findings on symptom prevalence, predictors, outcomes, interrelationships, and clustering. Among 38 reviewed studies, none identified sickness symptoms as a cluster, but we observed interrelationships among the symptoms examined. Fatigue was the most prevalent sickness symptom, followed by anxiety and depressive symptoms. Predictors of these symptoms included demographic, clinical, and psychosocial factors, and health-related quality of life was the most researched outcome. Future research should use common data elements to phenotype sickness symptoms, include biological markers, and employ sophisticated statistical methods to identify potential clustering of sickness symptoms in KT recipients.

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Information Needs of Patients About Immunosuppressive Medication in a German Kidney Transplant Sample: Prevalence and Correlates

Cited by 12 publications

References 87 publications

The Difficulties and Needs of Organ Transplant Recipients during Postoperative Care at Home: A Systematic Review

The Difficulties and Needs of Organ Transplant Recipients during Postoperative Care at Home: A Systematic Review

Evaluation of medication-related problems in liver transplant recipients with and without an outpatient medication consultation by a clinical pharmacist: a cohort study

Sickness Symptoms in Kidney Transplant Recipients: A Scoping Review

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