Information needs of early-stage prostate cancer patients: A comparison of nine countries

Overall information needs of early-stage prostate cancer patients over a decade: highly variable and remarkably stable

“…This method of studying patient information needs is now being applied to women diagnosed with ductal carcinoma in situ of the breast, in a location 4,000 km from the location of this study; similar wide within-patient variability both in the amount and in which details are important has been noted among their needs [7]. And, results in a study of the information needs of early-stage prostate cancer patients that we are currently conducting in eight countries also demonstrate wide withinpatient variability in each of the countries [20]. Thus, we suggest that the extent of within-patient variability found in the two studies reported here is not likely to be idiosyncratic to our location.…”

Does the Number of Cancer Patients' Close Social Ties Affect Cancer-Related Information Seeking Through Communication Efficacy? Testing a Mediation Model

“…Past studies have identified informational needs of cancer patients as an integral element in their ability to participate in decision-making about their cancer treatments (Feldman-Stewart, Capirci, Brennenstuhl et al, 2010; Vogel, Bengel, & Helmes, 2008), an important part of patient-centered communication (Epstein & Street, 2007), and thus worthy of continued investigation (Nagler, Gray, Romantan et al, 2010; Rutten, Squiers, & Hesse, 2006). Given the ever-increasing emphasis on the part of the U.S. healthcare system for patients to actively participate in health care decisions (Coulter & Ellins, 2007), the need to understand information-seeking behavior and its effects on health-related outcomes among the cancer patient populations is only increasing.…”

Informationsbedürfnisse von Prostatakrebspatienten

“…Der eingesetzte Fragebogen wurde in Kanada auf der Grundlage von Interviews mit Betroffenen und Experten erarbeitet, in verschiedenen Studien weiterentwickelt und anschließend international eingesetzt [11,12,13,14]. Es wurde darauf geachtet, möglichst alle Aspekte, die für die Betroffenen bei der Therapieentscheidung relevant sein können, abzudecken.…”

“…Diese Erkenntnisse entsprechen den Ergebnissen einer vergleichenden internationalen Studie mit dem gleichen Instrument [14] und den Resultaten anderer Studien zu Informationsbedürfnissen von Tumorpatienten [1,6,8].…”