Information interventions for orienting patients and their carers to cancer care facilities

Chan, Raymond Javan; Webster, Joan; Hall, Jennifer

doi:10.1002/14651858.cd008273

Cited by 7 publications

(3 citation statements)

References 22 publications

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“…New patients need to discuss their medical histories. Established patients have experience with specific clinic operations like scheduling, insurance processing, and navigation, requiring less assistance from clinic staff (e.g., Chan, Webster, & Marquart, ). Once a patient establishes a relationship with the provider and shares a history of prior encounters, treatment plan decisions may be more effective, leading to better outcomes at a lower cost (Frank & Zeckhauser, ).…”

Section: Optimal Waits For New and Established Patientsmentioning

confidence: 99%

Priority access to health care: Evidence from an exogenous policy shock

et al. 2020

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Access to care is an important issue in public health care systems. Unlike private systems, in which price equilibrates supply and demand, public systems often ration medical services through wait times. Access that is given on a first come, first served basis might not yield an allocation of resources that maximizes the health of a population, potentially creating suboptimal heterogeneity in wait times. In this study, we examine an access disparity between two groups of patients-established patients and new patients. We exploit an exogenous policy change-implemented by the U.S. Veterans Health Administration-that removed the disparity and homogenized the wait time.We find strong evidence that without such a policy, established patients have priority access over new patients. We discuss whether this is a suboptimal allocation of resources. We additionally find that established patient priority access is an important determinant of access for new patients; accounting for it increased the explanatory power of our statistical model of new patient wait times by a factor of five. The findings imply that policy and management decisions may be more effective in achieving the optimal distribution of access if access heterogeneity is recognized and accounted for explicitly. K E Y W O R D Saccess to care, prioritization, public health care, resource allocation, wait time

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Section: Optimal Waits For New and Established Patientsmentioning

confidence: 99%

Priority access to health care: Evidence from an exogenous policy shock

et al. 2020

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“…[5][6][7][8][9], few have focussed on educational interventions (e.g. 10,11). Educating carers about symptoms, and in particular about evidence-based nonpharmacological interventions for symptom management (e.g.…”

Section: Introductionmentioning

confidence: 99%

What Are the Key Elements of Educational Interventions for Lay Carers of Patients With Advanced Disease? A Systematic Literature Search and Narrative Review of Structural Components, Processes and Modes of Delivery

Farquhar

Penfold

Walter

et al. 2016

Journal of Pain and Symptom Management

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Context:Educating carers about symptom management may help meet patient and carer needs in relation to distressing symptoms in advanced disease. Reviews of the effectiveness of carer interventions exist but few have focussed on educational interventions, and none on the key elements that comprise them but which could inform evidence-based design. Objectives:To identify the key elements (structural components, processes and delivery-modes) of educational interventions for carers of patients with advanced disease. Methods:We systematically searched seven databases, applied inclusion and exclusion criteria, conducted quality appraisal, extracted data, and a narrative analysis.Results: 62 included papers related to 49 interventions. Two main delivery-modes were identified: personnel-delivered interventions and standalone resources. Personnel-delivered interventions targeted individuals or groups: the former conducted at single or multiple time-points, the latter delivered as series. Just over half targeted carers rather than patientcarer dyads. Most were developed for cancer; few focussed purely on symptom management. Standalone resources were rare. Methods to evaluate interventions ranged from post-intervention evaluations to fully-powered randomised controlled trials, but of variable quality. Conclusion:Published evaluations of educational interventions for carers in advanced disease are limited, particularly for non-cancer conditions. Key elements for consideration in developing such interventions were identified, however lack of reporting of reasons for nonparticipation or drop-out from interventions limits understanding of the contribution of these elements to interventions' effectiveness. When developing personnel-delivered interventions for carers in advanced disease consideration of the disease (and therefore caring) trajectory, intervention accessibility (timing, location and transport) and respite provision may be helpful.

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“…Although information seeking behaviour is common in partners of cancer patients, their informational needs often remain unmet (Echlin & Rees 2002;Basch et al 2004;James et al 2007;Beckjord et al 2008;Joad et al 2011;Longacre et al 2015). The partners of cancer patients whose informational needs are not met experience higher levels of anxiety (Chen et al 2004;Ostroff et al 2004;Clayton et al 2005) and experience poorer psychological adjustments to their partner's cancer (Ostroff et al 2004;Cochrane & Lewis 2005;Hodges et al 2005;Chan et al 2011;Gustavsson-Lilius et al 2012;Hopkinson et al 2012) when compared with the partners whose informational needs are met. The information provided to the partners seem to help them in learning about their spouse's cancer and thus, seem to improve their ability to provide the needed care for their ill spouses (Northouse et al 2010).…”

Section: Introductionmentioning

confidence: 99%

Multimedia information intervention and its benefits in partners of the head and neck cancer patients

et al. 2016

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We aimed to investigate the levels of anxiety, depression, satisfaction with information provision and cancer-related knowledge in partners of head and neck cancer (HNC) patients receiving a Multimode Comprehensive Tailored Information Package (MCTIP). A non-randomised, controlled trial was conducted with partners of HNC patients recruited at two academic hospitals in Montreal. The Test participants received the MCTIP, while the Control participants received information in an ad hoc manner. All participants were evaluated using the Hospital Anxiety and Depression Scale (HADS), Satisfaction with Cancer Information Profile and a cancer knowledge questionnaire at baseline, and 3 and 6 months later. Data were analysed using descriptive statistics, t-test and chi-square test, and mixed model analysis to test the impact of the intervention. A total of 31 partners of HNC patients participated in this study and completed all the evaluations. The partners in the Test group experienced significantly lower levels of anxiety (P = 0.001) and depression (P = 0.003) symptoms and were more satisfied (P = 0.002) with cancer information provided than partners in the Control group. Providing tailored information seems to have positive outcomes regarding anxiety, depression, and satisfaction in partners of HNC patients. Larger randomised studies are warranted to validate these effects.

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Information interventions for orienting patients and their carers to cancer care facilities

Cited by 7 publications

References 22 publications

Priority access to health care: Evidence from an exogenous policy shock

Priority access to health care: Evidence from an exogenous policy shock

What Are the Key Elements of Educational Interventions for Lay Carers of Patients With Advanced Disease? A Systematic Literature Search and Narrative Review of Structural Components, Processes and Modes of Delivery

Multimedia information intervention and its benefits in partners of the head and neck cancer patients

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