Information acquisition for women facing surgical treatment for breast cancer: Influencing factors and selected outcomes

O’Leary, Katherine A.; Estabrooks, Carole A.; Olson, Kärin; Cumming, Ceinwen E.

doi:10.1016/j.pec.2007.08.002

Cited by 64 publications

(52 citation statements)

References 64 publications

(86 reference statements)

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“…[12][13][14] Since then, this model has been used successfully in other studies. [15][16][17][18][19][20] Although the Health Information Model was originally developed for cancer patients, it can be adapted for patients with chronic diseases, such as diabetes, with only minor modifi cations.…”

Section: He a Lt H Inf Or M At Ion A Nd Dia Be T Es Sel F -M A Nagementmentioning

confidence: 99%

Health Information Seeking, Receipt, and Use in Diabetes Self-Management

Longo¹,

Schubert²,

Wright³

et al. 2010

The Annals of Family Medicine

162

164

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PURPOSE Diabetes self-management is essential for diabetes control, yet little is known about patient preferences for sources of health information or about the extent to which information is sought directly or received passively through various media sources. The aim of this qualitative study was to identify how individuals with diabetes seek and use health care information. METHODSUsing a health information model to guide our research, we conducted 9 focus groups with 46 adults with a diagnosis of diabetes and then analyzed the transcripts and notes from these focus groups.RESULTS Five themes emerged: (1) passive receipt of health information about diabetes is an important aspect of health information behavior; (2) patients weave their own information web depending on their disease trajectory; (3) patients' personal relationships help them understand and use this information; (4) a relationship with a health care professional is needed to cope with complicated and sometimes confl icting information; and (5) health literacy makes a difference in patients' ability to understand and use information.CONCLUSIONS Patients make decisions about diabetes self-management depending on their current needs, seeking and incorporating diverse information sources not traditionally viewed as providing health information. Based on our fi ndings, we have developed a new health information model that refl ects both the nonlinear nature of health information-seeking behavior and the interplay of both active information seeking and passive receipt of information.

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Section: He a Lt H Inf Or M At Ion A Nd Dia Be T Es Sel F -M A Nagementmentioning

confidence: 99%

Health Information Seeking, Receipt, and Use in Diabetes Self-Management

Longo¹,

Schubert²,

Wright³

et al. 2010

The Annals of Family Medicine

162

164

View full text Add to dashboard Cite

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“…Given that the majority of women with breast cancer actively seek health information to better understand and participate in treatment decision-making [24][25][26] , findings from this and other studies [27,28] indicating that most women have insufficient knowledge of ESBC and surgical treatment options are counterintuitive. This creates concern regarding the "suitability" (content, literacy demand graphics, layout/typography, learning stimulation and cultural appropriateness) [29] of existing ESBC health information for its intended audience.…”

Section: Issn 2324-7940 E-issn 2324-7959mentioning

confidence: 99%

Readiness to engage in treatment decision-making during initial surgical oncology consultation for early stage breast cancer

Jukkala

Walker²,

Krontiras³

et al. 2013

Clinical Nursing Studies

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Following diagnosis with early stage breast cancer (ESBC), many difficult treatment decisions must be made. Due to the preference sensitive nature of the surgical treatment decision for ESBC, survivors need adequate treatment knowledge and the opportunity to reflect on personal preferences for expected treatment outcomes. The purpose of this study was to explore factors influencing women's readiness to engage in surgical treatment decision-making during their initial consultation for ESBC including: (1) knowledge of ESBC and surgical treatment options, 2) health literacy, (3) decision conflict; and (4) preferred treatment decision-making role. The majority of women had knowledge deficits, with only one answering all 7 items on the ESBC knowledge scale correctly. Those with low levels of health literacy had significantly lower levels of knowledge (p < .05). African American women were more likely to have lower levels of knowledge, and significantly more likely to have limited health literacy (p = .05). Women with lower levels of knowledge had higher levels of decision conflict (p < .05). The majority preferred a patient-centered or active role in decision-making; however, they were poorly prepared for meaningful participation.As informed participation in treatment decision-making is a tenet of patient-centered care, this finding is problematic and likely contributes to poor healthcare outcomes, especially for at-risk groups of women with ESBC.

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“…This is especially true for cancer patients whose information needs are at an all-time high after diagnosis [3,5]. Furthermore, information requirements change and vary from one individual to another [3,6,7].…”

Section: Patient Educationmentioning

confidence: 99%

A Literature Review of Patient Education: Is IT Time to Move Forward?

McIntyre

Craig

2015

Journal of Medical Imaging and Radiation Sciences

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Introduction: Patient education is fundamental to high-quality care, enabling patient empowerment and improving outcomes and quality of life. Therefore, identifying the most effective education method should take precedence. Modern society relies heavily on technology and the Internet. Consequently, computer-based learning systems (CBLSs) have been introduced to increase information efficacy. This review aims to establish whether CBLSs should replace standard education for cancer populations.Methods: A systematic review of up-to-date studies comparing CBLSs and standard education for cancer patients was conducted. Results were assessed in terms of outcomes (knowledge, satisfaction, and decision making) and patient characteristics (age, sex, and socioeconomic status).Results: Results are conflicting. Although CBLSs scored highly in certain outcomes, standard education was more suited to some patient characteristics. Additionally, subgroups of society (older and low socioeconomic populations) were poorly represented in studies.Conclusions: Up-to-date research on cancer patient education is lacking. Results indicate that although CBLSs for cancer education show promise, further research is required. R ESUM E Introduction : L' education du patient est un aspect fondamental de la qualit e des soins, en permettant la responsabilisation du patient et l'am elioration des r esultats et de la qualit e de vie. La d etermination de la m ethode d' education la plus efficace est donc primordiale. Comme la soci et e moderne s'appuie fortement sur la technologie et internet, les syst emes d'apprentissage assist e par ordinateur (SAAO) ont et e mis en place pour augmenter l'efficacit e de l'information. Cette revue vise a d eterminer si les SAAO devraient remplacer les modalit es standard d' education pour les patients atteints de cancer. M ethodologie : Une revue syst ematique des etudes a jour comparant les SAAO et les modalit es standard pour les patients a et e r ealis ee. Les r esultats ont et e evalu es en termes de produits (connaissances, satisfaction, prise de d ecision) et de caract eristiques du patient (âge, sexe, statut socio economique).R esultats : Les r esultats sont ambigus. Bien que les SAAO obtiennent une note elev ee pour certains produits, les modalit es d' education standard sont mieux adapt ees a certaines caract eristiques des patients. Par ailleurs, certains sous-groupes sociaux (populations plusâg ees et de niveau socio economique plus faible) etaient sous-repr esent es dans les etudes.Conclusions : Il y a un manque de recherches a jour sur l' education des patients atteints de cancer. Les r esultats indiquent que d'autres recherches sont n ecessaires, même si les syst emes d'apprentissage assist e par ordinateur semblent prometteurs.

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Information acquisition for women facing surgical treatment for breast cancer: Influencing factors and selected outcomes

Cited by 64 publications

References 64 publications

Health Information Seeking, Receipt, and Use in Diabetes Self-Management

Health Information Seeking, Receipt, and Use in Diabetes Self-Management

Readiness to engage in treatment decision-making during initial surgical oncology consultation for early stage breast cancer

A Literature Review of Patient Education: Is IT Time to Move Forward?

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