Individualised and health-related quality of life of persons with spinal cord injury

Abstract

Study design: Cross sectional. Objectives: To examine associations among functional status, health-related and individualised quality of life (QoL) and coping style in subjects with spinal cord injury (SCI). Setting: Italy. Methods: Forty subjects attending our hospital-based rehabilitation centre for SCI were administered the Spinal Cord Independence Measure-version III (SCIM-III), the Short Form-36 (SF-36), the Schedule for the Evaluation of Individual QoL-Direct Weighting (SEIQoL-DW) and the Coping Inventory for Stressful Situation (CISS) to assess functional status, health-related QoL, individualised QoL and coping strategies, respectively. Results: The SCIM-III scores were positively correlated (Po0.01) with the physical functioning subscale of the SF-36. The only scale that correlated (Po0.01) with the SEIQoL-DW scores was the SF-36 mental health subscale. Positive correlations among taskoriented or avoidance-oriented coping and specific measures of health-related QoL emerged. Conclusions: Data from the present study showed only a few associations among different measures of QoL and suggest that patientcentered evaluations of QoL are not necessarily or strictly related to functional status or health-related QoL. Coping strategies seem to be significantly related to the subjects perceptions of QoL, but mostly in the health-related domains.

Long term outcome of functional independence and quality of life after traumatic SCI in Germany

“…In addition, we were able to show a moderate to the strong relationship between the SCIM-III-SR sum-score and sub-scores and our selected items for life-quality from WHO-QoL-BREF. As this instrument is supposed to be the most acceptable and established one for QoL after spinal cord injury [2] we believe that our results are in line with the common understanding of functional independence and QoL as affiliated outcome measures of initial rehabilitation investigating aspects not necessarily connected with one another [22].…”

Secondary Health Conditions, Activity Limitations, and Life Satisfaction in Older Adults With Long‐Term Spinal Cord Injury

“…The finding that the level and severity of injury were strongly associated with activity limitations is supported by results from other studies in which the SCIM III [45] or the Functional Independence Measure [46,47] was used. In studies of individuals with chronic TSCI and NTSCI, greater chronological age seems to negatively affect functional ability [14,48]. Our study did not reveal any associations between activity limitations and older age.…”

Corticospinal circuit neuroplasticity may involve silent synapses: Implications for functional recovery facilitated by neuromodulation after spinal cord injury

“…Thus, it is described as a “devastating” neurological syndrome, as it results in not only the acute and chronic sensorimotor dysfunction but also significant morbidity and lifetime disability ( Brown and Martinez, 2019 , Huie et al, 2017 , Kazim et al, 2021 , Khorasanizadeh et al, 2019 ). SCI compromises the quality of life in patients by a complex correlation between physical well-being and multiple psychosocial factors as well as environmental influences ( Eisdorfer et al, 2020 , Fehlings et al, 2017 , Tramonti et al, 2014 , Urbin et al, 2019 ). The past decades have witnessed increased prevalence of SCI globally, ranging from 236 to 1298 patients per million individuals ( Khorasanizadeh et al, 2019 ).…”