Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder

Mugno, Diego; Ruta, Liliana; D'Arrigo, Valentina Genitori; Mazzone, Luigi

doi:10.1186/1477-7525-5-22

Cited by 333 publications

(290 citation statements)

References 84 publications

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“…Mugno et al 12 found that 74% of the caregivers of children with pervasive developmental disorders were married or living together. However, this study did not demonstrate the impact that conjugal life can represent in a mother-caregiver.…”

Section: Discussionmentioning

confidence: 99%

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

et al. 2012

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Objectives: This study aimed to assess the burden and quality of life (Qol) of primary caregivers of children/adolescents with meningomyelocele, taking into account the relationship to anxiety and depression symptoms. Methods: A cross-sectional approach was taken to analyze the health-related Qol and burden using the Short Form-36 Survey (SF-36) and the Caregiver Burden Scale (CBS), respectively. Depressive and anxiety symptoms were investigated using the Beck Inventories. The Heckman two-step method was used to deal with the selection bias problem. Results: A total of 43 primary caregivers were enrolled in the study. Most of the caregivers were mothers with preliminary education, living in consensual union. Lower scores in general health and vitality were reported in the SF-36. The mean global CBS score was 2.2. Majority of the volunteers (55.8%) were considered non-depressive. There were both positive and negative correlations between the scores of both Beck Inventories and most dimensions of the CBS and SF-36. The Heckman method showed a higher burden among caregivers who had children with fecal incontinence, were living together with a partner, were unemployed and had lower income (Po0.05). Conclusion: The primary caregivers of children and adolescents with myelomeningocele reported burden and a lower Qol. There were more anxiety and depression symptoms in subjects with higher burden and impaired Qol. Caregivers had a higher burden if they were living together with a partner, were unemployed, had low income and had care recipients with fecal incontinence.

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Section: Discussionmentioning

confidence: 99%

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

et al. 2012

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“…Additionally, researchers have found that families of children with ASD are more likely to use maladaptive coping behaviors during times of crisis (Sivberg 2002), exacerbating the disruptive nature of child emotional or behavioral problems. Greater disruption appears to contribute to a general decrease in family quality of life (QOL) in families of children with ASD when compared to the general population (Lee et al 2008;Mugno et al 2007;Sivberg 2002).…”

Section: Impact Of Asd On Parents and Familiesmentioning

confidence: 99%

Parent and Family Outcomes of PEERS: A Social Skills Intervention for Adolescents with Autism Spectrum Disorder

Karst

Hecke

Carson

et al. 2014

J Autism Dev Disord

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Raising a child with an Autism Spectrum Disorder (ASD) is associated with increased family chaos and parent distress. Successful longterm treatment outcomes are dependent on healthy systemic functioning, but the family impact of treatment is rarely evaluated. The Program for the Education and Enrichment of Relational Skills (PEERS) is a social skills intervention designed for adolescents with high-functioning ASD. This study assessed the impact of PEERS on family chaos, parenting stress, and parenting self-efficacy via a randomized, controlled trial. Results suggested beneficial effects for the experimental group in the domain of family chaos compared to the waitlist control, while parents in the PEERS experimental group also demonstrated increased parenting self-efficacy. These findings highlight adjunctive family system benefits of PEERS intervention and suggest the need for overall better understanding of parent and family outcomes of ASD interventions.

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“…In comparison to parents of typically functioning children or parents of children with other developmental disabilities (i.e. intellectual disability or cerebral palsy), parents or caregivers of children with ASD also experience a higher incidence of negative psychological outcomes, such as depression, anxiety, and emotional distress (Mugno, Ruta, D'Arrigo, & Mazzone, 2007;Weiss, 2002).…”

mentioning

confidence: 99%

Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review

Paz

Wallander

2017

Clinical Psychology Review

126

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• Narrative review of mental health interventions for parents of autistic children • Some treatments reported improvements in stress, depression, and anxiety.• Post-test produced weaker effects than follow-up assessments two months and beyond.• Small sample size, homogeneity, and self-report limited generalizability of results • Outcomes encouraging, but existing data cannot yet support definitive conclusions a b s t r a c t a r t i c l e i n f o Prevalence of autism spectrum disorders (ASD) suggest that one in 68 children is affected. With convincing evidence that parenting a child with ASD is associated with elevated distress and mental health problems, researchers have begun to investigate treatments that directly target parents' psychological well-being. We conducted a narrative review of studies that empirically tested the effects of interventions targeting improvements in the mental health of parents of children with ASD. Following a range of search strategies, a total of 13 studies, seven randomized controlled trials (RCTs) and six pre-post test designs, met inclusion criteria. We calculated and reported effect sizes for all RCTs. On average, treatment produced medium to large effect sizes with improvements in parenting stress and general health, and reductions in depression and anxiety. Interventions that appeared promising included: Stress Management and Relaxation Techniques, Expressive Writing, MindfulnessBased Stress Reduction, and Acceptance and Commitment Therapy. However, only one study conducted a followup assessment N 3 months post intervention. Study populations primarily consisted of English-speaking mothers, ages 39 to 42 years. Conclusions were limited by small sample sizes, homogeneity of sample population, and reliance on self-report. Therefore, this body of research contains significant limitations in need of improvement for this field to move forward and benefit a sizable number of parents.

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Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder

Cited by 333 publications

References 84 publications

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

Parent and Family Outcomes of PEERS: A Social Skills Intervention for Adolescents with Autism Spectrum Disorder

Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review

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