Impacting Health Disparities through Community Outreach: Utilizing the CLEAN Look (Culture, Literacy, Education, Assessment, and Networking)

Meade, Cathy D.; Menard, Janelle; Martinez, Dinorah; Calvo, Arlene

doi:10.1177/107327480701400110

Cited by 26 publications

(29 citation statements)

References 48 publications

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“…The focus group results contributed to the design of a creative brief and communication strategies to effectively frame biobanking educational content for print and visual media, with attention to health literacy and cultural competency [24]. Our next steps entail developing educational communication priming tools (English and Spanish versions) customized to community member’s learning preferences, expectations, and literacy levels.…”

Section: Discussionmentioning

confidence: 99%

“…Attention to health literacy and specific cultural and linguistic needs of multi-ethnic populations when creating biobanking communications are integral to meaningfully address proximal decisional determinants [24]. Moreover, from a researcher’s perspective, there is a strong need for donors as healthy controls for epidemiological studies.…”

Section: Introductionmentioning

confidence: 99%

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Formative Research on Perceptions of Biobanking: What Community Members Think

et al. 2011

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Preparing healthy community members with timely communications prior to engaging them in a request to donate biospecimens promises to improve the experience of biobanking participation. To this end, a qualitative study was conducted to assess community member knowledge, attitudes, beliefs, and informational needs about cancer-related biospecimen collection in a large metropolitan area in southwest Florida. The study utilized purposive sampling techniques to recruit a total of 95 participants to participate in 12 focus groups, segmented by race/ethnicity and language preference (mixed race, African American only, and Spanish speaking) and age (18–29, 30–54, and 55 and older). Focus group interviews were analyzed using content analysis to identify emergent themes. Overall, participants in the 30 years and older groups were favorable toward participating in biobanking if their concerns were addressed, such as confidentiality and consent issues, in contrast to participants aged 18–29 who were more skeptical. For all participants, the desire to participate in research that seeks new cancer treatments outweighed mistrust. Moreover, many cited the potential scientific benefit for future generations as a primary motivator. Finally, in some groups a therapeutic misconception was expressed, where participants expressed a willingness to forego confidentiality of their health status in exchange for therapeutic benefit. This study contributes to the literature on community perceptions of the benefits and barriers of biobanking and adds to the development of meaningful education communication priming tools to advance understandings about biobanking.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Formative Research on Perceptions of Biobanking: What Community Members Think

et al. 2011

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“…For TBCCN, methodologies reflected systematic steps outlined from NCI's Stages of Health Communication Model, 16 and from the CLEAN (Culture, Literacy, Education, Assessment, and Networking) Look approach that provided underlying frameworks to ensure relevance of the cancer education tools. 8,17 These approaches emphasize methods that engage learners, call attention to the importance of culture and literacy in cancer communications, and reinforce the researcher's ethical duty to provide clear information. The developmental process was further guided by a creative brief, draft outlines, scripts, and storyboards that were vetted continually by our community advisors.…”

Section: Tools and Development Processmentioning

confidence: 99%

Introducing Biospecimen Science to Communities: Tools from Two Cities

Meade¹,

Rodriguez²,

Arévalo³

et al. 2015

cpr

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Background This article describes community-engaged processes employed by two Community Network Program Center (CNPC) sites located in Tampa, Florida, and Buffalo, New York, toward the development of Spanish/English educational products about biobanking and biospecimen research. Methods Each CNPC carried out a community-based participatory research (CBPR) approach that underscored six essential components that moved concepts to a final educational product in a highly participatory fashion. The similar CBPR processes at the two locations focused on the same topic, resulted in different engagement approaches and tools for their respective communities: 1) DVD and brochure toolkit and 2) PowerPoint, group program with audience response system (ARS). Results We detail a comparison of methods and applications for using these tools among diverse community groups to advance understandings about genetic and biomedical research technologies. Conclusion Ultimately, these tools and associated educational efforts emphasize the critical value of co-learning among academic and community members in biobanking and biospecimen research.

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“…Many such reports exist, primarily describing programs in North American settings. Meade et al (15,16) describe their experience in designing a breast cancer program for Haitian immigrants in the United States, and other reports describe the development of culturally appropriate breast cancer resources for Chinese immigrant and minority populations (8,17) and intervention programs for Hmong immigrants (18). Reports from Australian settings have been limited, leaving a gap in the literature.…”

Section: Introductionmentioning

confidence: 99%

Strategies for Piloting a Breast Health Promotion Program in the Chinese-Australian Population

Koo¹,

Kwok²,

White³

et al. 2011

Prev. Chronic. Dis.

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In Australia, women from non-English-speaking backgrounds participate less frequently in breast cancer screening than English-speaking women, and Chinese immigrant women are 50% less likely to participate in breast examinations than Australian-born women. Chinese-born Australians comprise 10% of the overseas-born Australian population, and the immigrant Chinese population in Australia is rapidly increasing. We report on the strategies used in a pilot breast health promotion program, Living with Healthy Breasts, aimed at Cantonese-speaking adult immigrant women in Sydney, Australia. The program consisted of a 1-day education session and a 2-hour follow-up session. We used 5 types of strategies commonly used for cultural targeting (peripheral, evidential, sociocultural, linguistic, and constituentinvolving) in a framework of traditional Chinese philosophies (Confucianism, Taoism, and Buddhism) to deliver breast health messages to Chinese-Australian immigrant women. Creating the program's content and materials required careful consideration of color (pink to indicate femininity and love), symbols (peach blossoms to imply longevity), word choice (avoidance of the word death), location and timing (held in a Chinese restaurant a few months after the Chinese New Year), communication patterns (the use of metaphors and cartoons for discussing health-related matters), and concern for modesty (emphasizing that all presenters and team members were female) to maximize cultural relevance. Using these strategies may be beneficial for designing and implementing breast cancer prevention programs in Cantonese-speaking Chinese immigrant communities.

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Impacting Health Disparities through Community Outreach: Utilizing the CLEAN Look (Culture, Literacy, Education, Assessment, and Networking)

Cited by 26 publications

References 48 publications

Formative Research on Perceptions of Biobanking: What Community Members Think

Formative Research on Perceptions of Biobanking: What Community Members Think

Introducing Biospecimen Science to Communities: Tools from Two Cities

Strategies for Piloting a Breast Health Promotion Program in the Chinese-Australian Population

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