‘If it's Only a Blood Test, Which isn't Very Traumatic, Why Not?’ Exploring Predictive Genetic Testing in Adoption

Dewell, Celia

doi:10.1177/030857591203600316

Cited by 4 publications

(4 citation statements)

References 3 publications

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“…There was a shared opinion among the professionals that the best adopters for children were those who could deal with uncertainties rather than needing a definitive, predictive test result (Newson and Leonard, 2010). This supports findings by Dewell (2012) in her study of professionals within the field of adoption. At the same time, there was variation in practice and some professionals allowed the looked after status of children to modify their decisions about the timing of testing.…”

Section: Discussionsupporting

confidence: 88%

“…Previously, the opinions of health professionals have revealed uncertainty among social workers around their knowledge and awareness of professional genetic guidelines (Dewell, 2012; Taylor, et al., 2010). Some conveyed favourable attitudes towards genetic testing within the adoption process while medical advisers demonstrated awareness of the caution about genetic testing in children expressed in guidelines, placing more emphasis on the need to respect the future autonomy of the ones facing adoption (Dewell, 2012).…”

Section: Adoption and Genetic Testingmentioning

confidence: 99%

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Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

Jackson¹,

Burke

2019

Adoption & Fostering

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In the process of creating a care plan or finding a placement for children, assessment of their health and developmental needs will be undertaken. This can involve the interpretation of complex family history information and may also include undertaking and interpreting the results of genetic testing, when within professional guidelines. This study explores opinions, knowledge about and experiences of adoption professionals in relation to genetic information and testing in Wales. Semi-structured qualitative interviews were conducted with six social workers and seven medical advisers. The data were transcribed and thematically analysed. Themes included the challenges to collation of family history, how the willingness of professionals to undertake genetic testing in children awaiting adoption was altered by the availability (and non-availability) of family history information, and the uncertainty that genetic information can generate for professionals and prospective parents. Uncertainty for both professional groups emerged from apparent inconsistency in current practice and from concern over their own lack of genetic knowledge. As new genetic technologies increase the scope of uncertainty, there is a need for social workers and medical practitioners working in adoption to have a greater understanding of genetics alongside opportunities to discuss cases in a multidisciplinary setting when appropriate.

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Section: Discussionsupporting

confidence: 88%

Section: Adoption and Genetic Testingmentioning

confidence: 99%

Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

Jackson¹,

Burke

2019

Adoption & Fostering

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“…Parents should be educated about the process and the goals of these tests so that they are able to decide about the genetic testing of their children (3). Multiple factors regarding whether predictive genetic testing should be performed have to be considered in order to make the best decision for the child; the most important factor is the welfare of the child's future (12). Parents, genetic counsellors, social workers, and healthcare providers should thus be involved in providing information to help decisionmaking about predictive genetic testing for a child (10,12).…”

Section: Proponents' Perspectivesmentioning

confidence: 99%

“…The most common explanation given by healthcare providers for not advocating genetic tests is that they wish to protect the child's future autonomy (12). In the UK, the law recognises children's future autonomy without looking to claim for the parents to find out a family history regarding genetic status, except if there are clear-cut benefits from the test for the child (16).…”

Section: Opponents' Perspectivesmentioning

confidence: 99%

Predictive Genetic Testing for Hereditary Cancers in Children: An Argumentation

et al. 2019

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Context: Whether predictive genetic testing should be used on children to detect inherited cancers is one of the common debates in the medical field. This is an emerging and escalating issue related to the advancement of medical technologies and sciences. Objectives: To advocate the predictive genetic testing of children to detect inherited cancers from the ethical and legal perspectives of both proponents and opponents. Conclusions: Various opinions about the predictive genetic testing of children to detect inherited cancers were discussed; this will help healthcare providers to stand on firm ground regarding the current issue. Many of the ethical and legal issues noted by both proponents and opponents were discussed. Common ethical concerns are children's autonomy versus the parents' rights to decide, health insurance, genetic discrimination, and whether the benefits outweigh the risks of testing. There are many laws to protect children's welfare in areas related to genetic discrimination, children's autonomy, and health insurance; however, many organisations defer the genetic testing of children until adulthood, especially if there are no clear medical benefits. The authors are proponents for the genetic testing of children in order to detect inherited cancers. More efforts are needed in the areas of healthcare procedures, legislation, disease prevention, and community awareness when it comes to fighting cancers.

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Predictive genetic testing in multifactorial disorders

Hostiuc

2023

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies

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‘If it's Only a Blood Test, Which isn't Very Traumatic, Why Not?’ Exploring Predictive Genetic Testing in Adoption

Cited by 4 publications

References 3 publications

Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

Predictive Genetic Testing for Hereditary Cancers in Children: An Argumentation

Predictive genetic testing in multifactorial disorders

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