<i>An Internet Discussion Board for Parents of Mentally Ill Young Children</i>

Schärer, K

doi:10.1111/j.1744-6171.2005.00006.x

Cited by 34 publications

(24 citation statements)

References 18 publications

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“…Internet-based education and social support surpasses other traditional educational strategies in terms of its reach (potentially global) and convenience to users. 34,57,69 …”

Section: Resultsmentioning

confidence: 99%

“…21,48–57 Drawing on their shared embodied expertise, participants confirm the medical character of their problem and its remedy, and they empower each other to search for physicians who will recognize and treat their condition accordingly. 41,43 Our extensive Google search revealed an insufficient availability of discussion boards for living donor candidates and caregivers.…”

Section: The Living Donor Information Network For Caregivingmentioning

confidence: 90%

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Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

et al. 2012

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Context Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap. Strategy Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented. Conclusions Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.

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“…Internet-based education and social support surpasses other traditional educational strategies in terms of its reach (potentially global) and convenience to users. 34,57,69 …”

Section: Resultsmentioning

confidence: 99%

Section: The Living Donor Information Network For Caregivingmentioning

confidence: 90%

Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

et al. 2012

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“…Scharer reviewed the status of Internet-based communication for parents caring for children with mental illness. She concluded that parents will utilize Internet-based communications 12 and that in general there is great potential for electronic communication to meet the needs of parents seeking additional support mechanisms. 13 In fact, successful Internet support systems have been implemented for a variety of populations and health states, including maternity and parenting, 14-19 cancer, 20 diabetes, 21 mental health, 22 CKD, 10 and HIV.…”

Section: Introductionmentioning

confidence: 99%

Changing Needs for Information and Support in an Online System for Parents of Children With Kidney Disease

Pinsk

Nicholas

2017

Can J Kidney Health Dis

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Background:Pediatric chronic kidney disease is psychologically, financially, and physically demanding on parents providing care. Parents often feel isolated because of the rarity of the condition, and geographic isolation often compounds this perception in Canada. Many parents seek assistance online for both information and social support.Objective:This study examines an online portal, titled “Ability Online,” which was designed to provide support and information to a diverse group of parents using chat facilities, bulletin boards, and e-mail. Specifically, we sought to identify how the technologies offered in this system related to the support and information seeking needs for parents. Secondary aims of determining possible reasons for attrition over time were explored as well.Design:Mixed methodology sequential exploratory design using the qualitative methodology of descriptive interpretation.Setting:Telephone interviews.Patients:Twenty parents of pediatric patients with chronic kidney disease from four Canadian centers who engaged in an online social support system “Ability Online.”Measurements:Interview transcripts generated from 20 taped phone conversations were reviewed from parents who engaged in the online system, and the themes derived from these transcripts served to generate semistructured interview questions that focused on their use of, and perceived benefit from, this technology for social support. Follow-up telephone interviews were then conducted with a 6-person subset of the original group in an effort to further define the impact of technology on their experience. This same smaller cohort provided data on social supports, caregiver satisfaction, and caregiver stress.Results:Many parents experience a progression through which their needs for knowledge and support change over time. Specifically, parents describe a transition from pure information seeking, to seeking parental interaction, mutual support and collaboration, and ultimately to advocacy. Parents described how technology could be used to address those needs.Limitations:Our cohort was slightly more educated and representative of more urban populations than published data reflecting the population of North American pediatric patients living with kidney disease.Conclusions:Our data suggest themes of technology use influencing the goals of online support seeking. While our findings are preliminary, further study may inform Web designers to identify the changing needs of participants in designing such online support networks, and minimize the reasons that participants fail to adopt, or terminate their online experiences.

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“…Their parenting responsibilities are compounded by challenges associated with navigating mental health, school, and other systems to meet their child’s needs (Bailey, Golden, Roberts, & Ford, 2007; Yatchmenoff, Koren, Friesen, Gordon, & Kinney, 1998). They experience stigma and blame by family, friends, and their child’s school and providers because of their child’s difficulties (Oruche, Gerkensmeyer, Stephan, Wheeler, & Hanna, 2012; Scharer, 2002, 2005). Many lack needed social support and experience considerable social isolation (Lee, Anderson, Horowitz, & August, 2009; Oruche et al, 2012; Rishel et al, 2006).…”

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confidence: 99%

Addressing Parental Mental Health Within Interventions for Children

Acri

2014

Research on Social Work Practice

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Purpose Untreated parent mental health problems have deleterious effects upon the family, yet caregivers are unlikely to receive services for their emotional health. We conducted a review of treatments and services for children and adolescents that also offered services to parents. Methods Child treatment and service studies were included in the present study if they analyzed parent symptoms or diagnoses over time, and the intervention contained a parent component. Results Of 200 studies reviewed, 20 contained a component for the parent and assessed the parent’s emotional health at multiple time points. Depression and anxiety were the most commonly studied parental mental health problem; most parent components consisted of behavioral strategies in service of the child’s psychological health. Conclusion Major shifts in health care policy affecting mental health services provide an opportunity to create integrated and coordinated health and behavioral health systems. Attention must be given to ensure that the workforce of providers, the administrative structures, and the reimbursement strategies are strengthened and connected to serve the needs of parents/caregivers and children in order to enhance family outcomes.

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An Internet Discussion Board for Parents of Mentally Ill Young Children

Abstract: While the study findings cannot be generalized, these results suggest that parents will use electronic discussion boards.

Cited by 34 publications

References 18 publications

Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

Living Kidney Donors and Their Family Caregivers: Developing an Evidence-Based Educational and Social Support Website

Changing Needs for Information and Support in an Online System for Parents of Children With Kidney Disease

Addressing Parental Mental Health Within Interventions for Children

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