Home care for life-supported persons: An approach to program development

Goldberg, Allen I.; Faure, Eveline A. M.; Vaughn, Carol; Snarski, Ray; Seleny, F.L.

doi:10.1016/s0022-3476(84)80969-5

Cited by 52 publications

(18 citation statements)

References 4 publications

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“…Children were classified for this pur¬ pose into five categories: (1) normal, if they had no developmental delay, were able to function independently, and were in a regular school with adequate performance; (2) borderline, if develop¬ ment was at or just below the lower limits of normal (school-aged children who could function in a regular school classroom, but needed special assist¬ ance in one or more subjects); (3) mildly delayed, when there were obvious delays in motor and adaptive skills and speech (school-aged children who re¬ quired special classrooms or special schools and were expected to live inde¬ pendently); (4) moderately delayed, when they were clearly retarded in their development and expected to re¬ quire supervision in a sheltered envi¬ ronment; and (5) severely delayed children who had profound mental re¬ tardation and were expected to be to¬ tally dependent throughout their lives.…”

Section: Methodsmentioning

confidence: 99%

Chronic Respiratory Failure in Infants With Prolonged Ventilator Dependency

Schreiner

Downes²,

Kettrick³

et al. 1987

JAMA

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One hundred one infants with chronic respiratory failure (CRF) who required prolonged mechanical ventilation were cared for in the pediatric intensive care unit at The Children's Hospital of Philadelphia between January 1967 and December 1984. Chronic respiratory failure of infancy is a condition that requires mechanical ventilation for more than 28 days in the first year of life. Thirty-six children had severe bronchopulmonary dysplasia, 50 had congenital anomalies, and 15 had neuromuscular disorders. The mean duration of mechanical ventilation for the 101 patients was 12.3 months. Seventy-one children were alive, and 53 (75%) of the 71 had been weaned from mechanical ventilation as of Dec 31, 1984. Pulmonary insufficiency and cardiac failure were the predominant causes of death in 17 of 22 infants in the first two years after the onset of CRF; four of eight deaths that occurred beyond two years were caused by airway- and ventilator-related accidents. Mechanical ventilatory support was emphasized for as long as necessary to provide normal blood gas tensions, nutrition, growth, and development rather than weaning as rapidly as possible. This clinical experience demonstrates that it is feasible to save over 70% of infants with the severest forms of CRF and prolonged ventilator dependency.

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Section: Methodsmentioning

confidence: 99%

Chronic Respiratory Failure in Infants With Prolonged Ventilator Dependency

Schreiner

Downes²,

Kettrick³

et al. 1987

JAMA

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“…Children needing chronic respiratory support should be discharged home from hospitals to minimise disruptions to their development and family life, 1 to prevent dependence on institutions, to avoid nosocomial infections, to liberate precious‐resource hospital beds and to reduce costs 2–5 . Home respiratory support programmes exist in North America, 2,6–10 Britain, 11 Europe, 12–19 Japan, 20 Australia 21 and New Zealand 22 .…”

Section: Introductionmentioning

confidence: 99%

A home respiratory support programme for children by parents and layperson carers

Tibballs

Henning

Robertson

et al. 2010

J Paediatrics Child Health

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“…Transfusions of blood and blood products, 26 parenteral nutrition, 27 antibiotic therapy, 28 chemotherapy, 29 and anticoagulant infusions 30 are all in common use. Portable home oxygen has been available for some years, but now patients may be managed at home on a portable ventilator 31 . Other available treatments include home dialysis, 32 phototherapy, 33 and pain management with epidural and subcutaneous morphine using automated delivery systems 34 .…”

Section: Home Care —Presentmentioning

confidence: 99%