Helping Health Services to Meet the Needs of Young People with Chronic Conditions: Towards a Developmental Model for Transition

Farré, Albert; McDonagh, Janet E.

doi:10.3390/healthcare5040077

Cited by 28 publications

(24 citation statements)

References 39 publications

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“…customized for the youth, young adults, and families being served and the transition care model being used by the practice, system, or hospital. 148 They have been shown to facilitate an effective transition process in subspecialty practices, 149 a managed care plan, 150 a children's hospital, 151 and a med-peds residency program. 152 Figure 2 outlines the Six Core Elements.…”

Section: Figurementioning

confidence: 99%

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

2018

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Risk and vulnerability encompass many dimensions of the transition from adolescence to adulthood. Transition from pediatric, parent-supervised health care to more independent, patient-centered adult health care is no exception. The tenets and algorithm of the original 2011 clinical report, "Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home, " are unchanged. This updated clinical report provides more practice-based quality improvement guidance on key elements of transition planning, transfer, and integration into adult care for all youth and young adults. It also includes new and updated sections on definition and guiding principles, the status of health care transition preparation among youth, barriers, outcome evidence, recommended health care transition processes and implementation strategies using quality improvement methods, special populations, education and training in pediatric onset conditions, and payment options. The clinical report also includes new recommendations pertaining to infrastructure, education and training, payment, and research.

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Section: Figurementioning

confidence: 99%

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

2018

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“…Undertake biopsychosocial developmental assessment, with approach to the young person adjusted accordingly (see Box 1 and Farre and McDonagh) 30. > Be approachable and welcoming.…”

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confidence: 99%

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

et al. 2020

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Background During transition from children's to adults' healthcare, young adults with long-term conditions may show delays in psychosocial development compared to their peers without long-term conditions, and deterioration of their conditions' medical control. Methods This paper integrates the findings, already published in 10 separate papers, of a 5-year transition research programme. Implications There is an important role for funders (commissioners) of adults' services to fund transitional healthcare, in addition to funders of children's services who currently take responsibility.

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“…Too often, health transition is considered merely as the negotiation of the structural boundaries between child and adult services rather than a holistic approach to the developmental needs of young people as they grow up and negotiate multiple transitions of which healthcare is only one. Provision of developmentally appropriate health care [ 13 ] is a potential facilitator of health transition and is the backdrop on which health transition should always be considered [ 14 ].…”

Section: Main Textmentioning

confidence: 99%

Are we there yet? An update on transitional care in rheumatology

McDonagh

Farré

2018

Arthritis Res Ther

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Significant progress has been made in the understanding of transitional care in rheumatology over the last few decades, yet universal implementation has not been realised and unmet needs continue to be reported. Possible explanations for this include lack of evidence as to which model is most effective; lack of attention to the multiple dimensions, stakeholders and systems involved in health transitions; and lack of consideration of the developmental appropriateness of transition interventions and the services/organisations/systems where such interventions are delivered.Successful transition has major implications to both the young people with juvenile-onset rheumatic disease and their families. Future research in this area will need to reflect both the multidimensional (biopsychosocial) and the multisystemic (multiple systems and stakeholders across personal/social/family support networks and health/social care/education systems). Only then will we be able to determine which aspects of transition readiness and service components influence which dimension. It is therefore imperative we continue to research and develop this area, involving both paediatric and adult rheumatology clinicians and researchers, remembering to look beyond both the condition and our discipline. Neither should we forget to tap into the exciting potential associated with digital technology to ensure further advances in transitional care are brought about in and beyond rheumatology.

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Helping Health Services to Meet the Needs of Young People with Chronic Conditions: Towards a Developmental Model for Transition

Cited by 28 publications

References 39 publications

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

Are we there yet? An update on transitional care in rheumatology

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