Healthcare professionals’ involvement in breaking bad news to newly diagnosed patients with motor neurodegenerative conditions: a qualitative study

Anestis, Eleftherios; Eccles, Fiona; Fletcher, Ian; Triliva, Sofia; Simpson, Jane

doi:10.1080/09638288.2021.2002436

Cited by 6 publications

(2 citation statements)

References 73 publications

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“…These conversations may sometimes be difficult, but are essential. It is acknowledged to be a challenging, stressful and emotionally demanding task, especially when engaging with PwMS with cognitive difficulties (Anestis et al, 2021).…”

Section: Specific Recommendations For the Bookmentioning

confidence: 99%

What would improve MS clinic services for cognition? – A stakeholder panel and survey exploration

Langdon

Coutts

McGuigan

et al. 2022

Multiple Sclerosis and Related Disorders

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Section: Specific Recommendations For the Bookmentioning

confidence: 99%

What would improve MS clinic services for cognition? – A stakeholder panel and survey exploration

Langdon

Coutts

McGuigan

et al. 2022

Multiple Sclerosis and Related Disorders

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“…Being diagnosed with a chronic, neurodegenerative illness like Parkinson's disease results in several physical and psychological changes that contribute to how one experiences the life-changing and often traumatic news. 1 Among these potential new challenges are stress, crisis, loss and grief, body image, self-concept, stigma, uncertainty and unpredictability, and decreased quality of life. 2 The onset of a chronic medical condition represents a unique set of stressors resulting from the need to cope with newly encountered daily threats (e.g., independence and autonomy, fulfillment of defined roles, concerns about the future, economic stability).…”

mentioning

confidence: 99%

A Prescription for Wellness in Early PD: Just What the Doctor Ordered

McDaniels

Pontone

Keener

et al. 2023

J Geriatr Psychiatry Neurol

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Background Being diagnosed with a neurodegenerative disease is a life-changing event and a critical time to help patients cope and move forward in a proactive way. Historically, the main focus of Parkinson’s disease (PD) treatment has been on the motor features with limited attention given to non-motor and mental health sequelae, which have the most impact on quality of life. Although depression and anxiety have been described at the time of PD diagnosis, demoralization, intolerance of uncertainty, decreased self-efficacy, stigma and loneliness can also present and have negative effects on the trajectory of the disease. Hence, understanding the psychological impact of the diagnosis and how to provide better counselling at this critical time point may be the key to a better long-term trajectory and quality of life. Focus There has been a paradigm shift in the treatment of chronic illness moving beyond the medical model, which focuses on fighting illness with the physician being in charge of the treatment process and the patient being the passive recipient, toward a more holistic (i.e., physical, psychological, social, and spiritual health) biopsychosocial approach that emphasizes behavioral factors with the patient being an active collaborator in their treatment. Hence, we propose that fostering resilience, social support, and psychological flexibility offer promise toward attenuating negative reactions and improving overall well-being. Conclusion Through a proactive wellness approach incorporating lifestyle choices, people with PD (PwP) can not only achieve improved states of health, well-being, and quality of life, but actually thrive.

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