Health professionals, patients and chronic illness policy: a qualitative study

Yen, Laurann; Gillespie, James; Jeon, Yun‐Hee; Kljakovic, Marjan; Brien, Jo‐anne E; Jan, Stephen; Lehnbom, Elin C.; Pearce-Brown, Carmen; Usherwood, Timothy

doi:10.1111/j.1369-7625.2010.00604.x

Cited by 56 publications

(52 citation statements)

References 10 publications

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“…Another reasonable explanation for the high agreement was our homogenous sample of only hospital pharmacists working in Sydney West Area Health Service (SWAHS) but the data analysis of interviews conducted with other healthcare providers including doctors, nurses and allied health professionals in SWAHS and ACT revealed similar themes. That is, financial challenges, poor health literacy, seeking help inappropriately, and co-morbidities were linked with compliance; and a dysfunctional health care culture, inadequate access and lack of continuity were linked to fragmentation [13]. This suggest that the findings of this study are generalisable to other settings as well and that there is a need for joint interventions rather than specific interventions targeting pharmacists only.…”

Section: Discussionmentioning

confidence: 50%

“…SCIPPS was designed to optimise chronic illness management in Australia through exploring the views of patients with chronic disease, their carers and healthcare providers, on incentives and barriers to optimal care. The results from interviews with patients and their carers have previously been reported [12], as have the views of healthcare providers on chronic illness management [13]. This article reports on the findings from group interviews and individual interviews with hospital pharmacists involved in the care of people with chronic illness.…”

Section: Introductionmentioning

confidence: 86%

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Challenges in chronic illness management: a qualitative study of Australian pharmacists’ perspectives

Lehnbom

Brien

2010

Pharm World Sci

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Section: Discussionmentioning

confidence: 50%

Section: Introductionmentioning

confidence: 86%

Challenges in chronic illness management: a qualitative study of Australian pharmacists’ perspectives

Lehnbom

Brien

2010

Pharm World Sci

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“…Challenges with access to medical services are not unique to South Africa and reiterate the challenges that have been found elsewhere. A recent study in Australia echoes the high cost of medical services and emphasises that multi-provider care needs to be more accessible to individuals with chronic illnesses (Yen et al 2010).…”

Section: Discussionmentioning

confidence: 99%

The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa

Pretorius

Joubert

2014

Health SA Gesondheid

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Background: Multiple Sclerosis (MS) is a debilitating and degenerative lifelong neurological disease that seems to be growing increasingly more prevalent in South Africa.Objectives: The aim of this qualitative study was to explore the personal experiences of individuals with MS in the South African context. The focus of this study was on the challenges faced by individuals with MS, as well as the resources that help them to cope with this debilitating, neurological condition.Method: Thematic analysis was used to explore the semi-structured interviews that were conducted with ten individuals with MS.Results: Several themes emerged that related to the participants’ experiences of living with MS. These themes included several challenges faced by the participants on a daily basis, such as the process of being diagnosed, daily life, invisible illness and medical aid schemes. Numerous resources that help these individuals to cope with MS also emerged from the data analysis and consisted of social support, mobility aids, religion and knowledge about MS.Conclusion: It is evident from the findings of this study that although individuals living with MS, which is a debilitating neurological condition, face several challenges on a daily basis, they often have several resources that help them to cope effectively with this condition. The findings of this study regarding knowledge of the challenges faced and the resources utilised by individuals with MS will hopefully create awareness of the disease and contribute to and inform the design and implementation of interventions for such individuals. Agtergrond: Veelvuldige Sklerose (VS) is ‘n aftakelende en degerenatiewe lewenslange neurologiese toestand wat blyk of dit toenemend meer algemeen in Suid-Afrika voorkom.Objektief: Die doel van hierdie kwalitatiewe studie was om die persoonlike ervarings van individue met VS binne die Suid-Afrikaanse konteks te ondersoek.Die fokus van hierdie studie was op die uitdagings wat individue met VS in die gesig staar, sowel as die hulpbronne wat hulle help met die hantering van hierdie ernstige neurologiese toestand.Metode: Tematiese analise is gebruik om die semi-gestruktureerde onderhoude te ondersoek, wat gevoer is met tien individue met VS.Resultate: Verskeie temas wat verband hou met die deelnemers se ervarings van ‘n lewe met VS het na vore gekom. Hierdie temas het verskeie uitdagingsingesluit wat die deelnemers op ‘n daaglikse basis in die gesig staar, soos die proses om korrek gediagnoseer te word, daaglikse lewe, onsigbare siekte en mediese fonds skemas. ‘n Aantal hulpbronne wat hierdie individue help om VS te hanteer het ook na vore gekom en bestaan uit sosiale ondersteuning, mobiliteit hulpmiddels, geloof en kennis oor VS.Gevolgtrekking: Dit is duidelik uit die bevindinge dat alhoewel individue wat lewe met VS, wat ‘n ernstige neurologiese toestand is, verskeie uitdaging op ‘n daaglikse basis in die gesig staar, hulle beskik oor verskeie hulpbronne wat hulle help om hierdie toestand effektief te hanteer. Die bevindinge van hierdiestudie rakende kennis van die uitdagings wat hierdie individue in die gesig staar en die hulpbronne wat individue met VS gebruik sal hopelik ‘n bewustheid skep en bydra tot die ontwerp en implimentering van intervensies vir sulke individue.

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“…For example, a recent Australian study identified that consumers with chronic conditions experienced financial hardship and valued continuity of care [19], which was verified by health professionals in a follow-up study [20]. However, only consumers with specific conditions were included and the research was not specific to community pharmacy services [19].…”

Section: Introductionmentioning

confidence: 98%

Consumers and Carers Versus Pharmacy Staff: Do Their Priorities for Australian Pharmacy Services Align?

McMillan

Kelly

Sav

et al. 2014

Patient

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Health professionals, patients and chronic illness policy: a qualitative study

Abstract: Background and objective This study investigates health professionalsÕ reactions to patientsÕ perceptions of health issues -a littleresearched topic vital to the reform of the care of chronic illness.

Cited by 56 publications

References 10 publications

Challenges in chronic illness management: a qualitative study of Australian pharmacists’ perspectives

Challenges in chronic illness management: a qualitative study of Australian pharmacists’ perspectives

The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa

Consumers and Carers Versus Pharmacy Staff: Do Their Priorities for Australian Pharmacy Services Align?

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