Growing up: Perspectives of children, families and service providers regarding the needs of older children with perinatally-acquired HIV

Fielden, Sarah J.; Sheckter, Lori; Chapman, Gwenneth E.; Alimenti, Ariane; Forbes, John C.; Sheps, Sam; Cadell, Susan; Frankish, Jim

doi:10.1080/09540120600581460

Cited by 65 publications

(61 citation statements)

References 15 publications

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“…All participants were at the age at which sex and sexuality were important issues and they were aware of the difficulties that disclosure of their status might pose to potential partners. Receiving positive, encouraging and normalising messages about their sexuality and sexual behaviour is important in order that positive young people do not grow up with negative feelings about themselves, sex and sexuality (Fielden et al, 2006;Campbell et al, 2009). Interestingly, participants did not comment on the specific sexual health components of the LFP which included experience of handling condoms and lubrication and the exploration of sexual negotiation strategies with potential partners.…”

Section: Discussionmentioning

confidence: 99%

“I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation

Campbell¹,

Beer²,

Wilkins³

et al. 2010

AIDS Care

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Section: Discussionmentioning

confidence: 99%

“I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation

Campbell¹,

Beer²,

Wilkins³

et al. 2010

AIDS Care

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“…If the prognostic value of OC is present in HIV+/AIDS adolescents, it should be assessed. The pattern of the progression of HIV-infection in children and adolescents trends to behave as a chronic disease, and therefore their psychosocial needs resemble the needs of the chronically ill patients rather than the terminally ill ones (17). The increase of life expectancy observed in perinatally HIV-infected children and adolescents and the need to improve their quality of life will increase their demand of oral health services.…”

Section: E549mentioning

confidence: 99%

Oral lesions in HIV positive AIDS adolescents perinatally infected undergoing HAART

Gaitán-Cepeda¹,

Domínguez-Sánchez²,

Pavía-Ruz³

et al. 2010

Med Oral

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Objective: To assess the prevalence of the oral lesions related to HIV-infection (HIV-OL) in HIV+/AIDS adolescents (=13 years old), and the differences with HIV+/AIDS children (=3 -<13 years old) perinatally infected. Material and methods: 25 HIV+/AIDS adolescents and 62 HIV+/AIDS children, undergoing Highly Active Antiretroviral Therapy, were orally examined. HIV-OL was diagnosed in accordance with EC-Clearinghouse-World Health Organization. The patients were classified with respect to their immune status in relation with the CD4+ cell counts as moderately immunodeficient; mildly immunodeficient and severely immunodeficient in accordance to the revised surveillance case definitions for HIV infection among adults, adolescents, and children aged <18 months and for HIV infection and AIDS among children aged 18 months to <13 years (CDC-USA). The virological status was established in relation to the copies of RNA-HIV-1/mL as follows: with undetectable viral load (UDVL); with low viral load and with high viral load. A chi-square test was performed (p<0.05IC95%). Results: The prevalence of HIV-OL in HIV+/AIDS adolescents was 20% while in HIV/AIDS children was 30.6% (p>0.05). Oral candidiasis was the most prevalent oral lesion in both groups. Association (p <0.05) of a high prevalence of HIV-OL and oral candidiasis with a high viral load was observed in both study groups. Conclusions: Adolescents perinatally HIV-infected have a high prevalence of HIV-OL. Oral candidiasis still is the most frequent oral opportunistic infection. Oral lesions could have association to viral failure in HIV+/AIDS adolescents undergoing HAART.

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“…Canadian children who were HIV positive reported that they were reluctant to disclose their HIV status because they had experienced being ostracised, or anticipated losing friends (Fielden et al, 2006). This social stigma was also reported by Chinese children with leukaemia (Wu et al, 2010) and Taiwanese children with celebral palsy (Huang et al, 2009).…”

Section: What Are the Needs Of Children Who Have Life Limiting Illnesmentioning

confidence: 91%

“…Teachers might need to provide factual information a out a hild s ill ess to others in order to facilitate easier re-integration of a child back among his/her school peers (Gorin and McAuliffe, 2008) and to prevent stigmatisation (Fielden et al, 2006). Teachers also need to consider providing support for the siblings of children who are very sick (Breen et al, .…”

Section: What Are the Needs Of Teachers Who Are Teaching Children Witmentioning

confidence: 99%

An evaluation of the educational support for teachers who teach children with life-limiting illness in schools

Robinson

Summers

2012

Pastoral Care in Education

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There are increasing numbers of children living with life limiting illnesses in mainstream schools. The aim of this literature-based study was to evaluate the current provision of educational support for teachers who are teaching these children in schools. An international literature search produced 23 papers published between 2005 and July 2010 which concerned children with life limiting illness in relation to education in mainstream schools. The analysis identified that the needs of children with life limiting illnesses are not being well met, and there appears to be little evidence of educational support for teachers. The paper concludes that schools need to work with both the medical and social models of health/disability in order to meet the needs of children with life-limiting illness. There is some consensus that the way forward needs to include multidisciplinary working within an ecological approach that supports home, schools and the health services working together. Only one paper reported an evaluation of such an intervention. There is a need for more research, evaluation and dissemination about the experience of living with a life-limiting illness in mainstream schools and related interventions, and for this to inform professional education and the co-ordination of education, health and home systems. 2An evaluation of the educational support for teachers who teach children with life limiting illness in schools

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Growing up: Perspectives of children, families and service providers regarding the needs of older children with perinatally-acquired HIV

Cited by 65 publications

References 15 publications

“I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation

“I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation

Oral lesions in HIV positive AIDS adolescents perinatally infected undergoing HAART

An evaluation of the educational support for teachers who teach children with life-limiting illness in schools

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