Geographic availability and accessibility of day care services for people with dementia in Ireland

Pierse, Tom; Keogh, Fiona; O’Shea, Eamon; Cullinan, John

doi:10.1186/s12913-020-05341-z

Cited by 14 publications

(18 citation statements)

References 25 publications

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“…[ 25 , 26 ]). Qualitative research to date has mostly explored specific types of inequalities, such as rurality [ 14 ] and ethnicity [ 27 ], whilst findings from our study expand the evidence base showcasing a multitude of pre-COVID-19 inequalities. Specifically, these inequalities appear to have been exacerbated by the pandemic, raising concerns for the need of improved clinical and social care support, such as enabling improved accessed to care regardless of postcode, which might involve improved digital support to allow remote care.…”

Section: Discussionmentioning

confidence: 57%

“…Belonging to an ethnic minority group for example can be a barrier in using anti-dementia medication [ 10 , 11 ], which is also a considerable difficulty for people from lower socio-economic backgrounds [ 12 ]. Geographical location also determines access to support services, with many people residing in rural regions experiencing limited to no access to formal care [ 13 , 14 ]. People living with rare dementias can also face access difficulties.…”

Section: Introductionmentioning

confidence: 99%

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“A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities

Giebel

Hanna

Tetlow³

et al. 2021

Int J Equity Health

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Background Social support services such as day care centres are important in post-diagnostic dementia care to enable people living with dementia stay at home for longer. Little research has addressed potential inequalities in access, with no research on variations before and since COVID-19. The aim of this study was to explore inequalities in social support service usage before and since the pandemic. Methods Unpaid carers and people living with dementia were interviewed over the phone about their experiences of accessing social support services before and since the COVID-19 pandemic. Transcripts were analysed for key themes using inductive and deductive thematic analysis. Results Fifty participants (42 unpaid carers; eight people living with dementia) were interviewed, and five themes identified: (1) Service issues; (2) Access issues; (3) Relying on own initiative; (4) New inequalities due to COVID-19; and (5) Missing out on the benefits of support services. Participants reported transport, finances, and location as factors reducing their ability to access support service pre-COVID, with inequalities remaining and at times exacerbated since. Carers and people living with dementia also reported struggling with accessing basic necessities during COVID, including food and medicines. Conclusions Considering the benefits of accessing support services, resourced procedures and facilities are needed to maintain access to support services with more accessible remote support provision, enabling people from all backgrounds to access the care they need.

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Section: Discussionmentioning

confidence: 57%

Section: Introductionmentioning

confidence: 99%

“A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities

Giebel

Hanna

Tetlow³

et al. 2021

Int J Equity Health

View full text Add to dashboard Cite

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“…For example, using an estimate for the number of people with dementia that was too low might suggest to service planners that there would not be sufficient demand for a service at a local level, for example, day care. 53 Alternatively, using an estimate that was too high would overstate the cost of providing a new service, for example, providing post-diagnostic support to all newly diagnosed people with dementia. 54 The methodology used in this study would be most effective in countries or regions with relatively frequent census, high rates of dementia diagnosis and high quality…”

Section: Discussionmentioning

confidence: 99%

Generating national projections of dementia cases for Ireland using a calibrated macro-simulation model

2020

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IntroductionEpidemiological data on dementia is not available in many European countries and regions due to the high cost and complexity of conducting large scale dementia screening studies. The available epidemiological studies identify potentially substantial variation in the prevalence of dementia over time and across Europe.MethodsIn this paper we generate simulations of the number of dementia cases in Ireland from 1991 to 2036 using a three-state Markov illness-death model. Parameters values are selected for each simulation from a range using a random parameter search pattern. We employ a novel calibration method which exploits the strong relationship between dementia, ageing and mortality. Simulation weights are generated based on differences between observed and modelled cohorts of older people and the reported number of deaths from dementia. Irish Census data from 1991 to 2016 and the number of recorded deaths due to dementia in 2018 are used as calibration points. A weighted average projection of the number of dementia cases is generated.ResultsWe estimate a weighted average number of cases of dementia in 2016 of 54 877 increasing to 98 946 in 2036; this estimate is substantially lower than the estimates generated using extrapolation methods. We show the wide range of possible outcomes given the range in the available parameter estimates and show that irrespective of whether the incidence rate of dementia is declining the number of cases of dementia is rapidly increasing due to population ageing.ConclusionPrevious studies have used parameter estimates from meta-analyses of the literature or from individual studies. In this paper we supplement these with a calibration approach using observed cause of death and population age structure data. These additional sources of data can be used to generate estimates of dementia prevalence in any country or region which has census data and data on deaths due to dementia.

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“…Some studies used mapping in preparing exposure data [67], arsenic concentrations [96], ozone levels [97], spatial distributions of air pollutants [98] and ranking countries in medical tourism [56]. Three studies mapped access to services [14,16,99], and only one used resource allocation related to the care of dementia patients [64]. Also, one study used mapping to visualize patients' mobility patterns [100].…”

Section: Mapping and Surveillancementioning

confidence: 99%

“…Furthermore, some studies used explanatory spatial analysis to identify associations between dementia occurrence and environmental risk factors [13]. GIS can also be used to measure spatial accessibility to healthcare services [14], determining the spatial distribution of medicines [15] or services needed by patients [16].…”

Section: Introductionmentioning

confidence: 99%

The role of geographic information system and global positioning system in dementia care and research: a scoping review

et al. 2022

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Background Geographic Information System (GIS) and Global Positioning System (GPS), vital tools for supporting public health research, provide a framework to collect, analyze and visualize the interaction between different levels of the health care system. The extent to which GIS and GPS applications have been used in dementia care and research is not yet investigated. This scoping review aims to elaborate on the role and types of GIS and GPS applications in dementia care and research. Methods A scoping review was conducted based on Arksey and O’Malley’s framework. All published articles in peer-reviewed journals were searched in PubMed, Scopus, and Web of Science, subject to involving at least one GIS/GPS approach focused on dementia. Eligible studies were reviewed, grouped, and synthesized to identify GIS and GPS applications. The PRISMA standard was used to report the study. Results Ninety-two studies met our inclusion criteria, and their data were extracted. Six types of GIS/GPS applications had been reported in dementia literature including mapping and surveillance (n = 59), data preparation (n = 26), dementia care provision (n = 18), basic research (n = 18), contextual and risk factor analysis (n = 4), and planning (n = 1). Thematic mapping and GPS were most frequently used techniques in the dementia field. Conclusions Even though the applications of GIS/GPS methodologies in dementia care and research are growing, there is limited research on GIS/GPS utilization in dementia care, risk factor analysis, and dementia policy planning. GIS and GPS are space-based systems, so they have a strong capacity for developing innovative research based on spatial analysis in the area of dementia. The existing research has been summarized in this review which could help researchers to know the GIS/GPS capabilities in dementia research.

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Geographic availability and accessibility of day care services for people with dementia in Ireland

Cited by 14 publications

References 25 publications

“A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities

“A piece of paper is not the same as having someone to talk to”: accessing post-diagnostic dementia care before and since COVID-19 and associated inequalities

Generating national projections of dementia cases for Ireland using a calibrated macro-simulation model

The role of geographic information system and global positioning system in dementia care and research: a scoping review

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