From neighbour to carer: An exploratory study on the role of non-kin-carers in end-of-life care at home for older people living alone

Pleschberger, Sabine; Wosko, Paulina

doi:10.1177/0269216316666785

Cited by 25 publications

(23 citation statements)

References 16 publications

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“…Although previous research has shown that caring relationships between older people who are friends and neighbours are characterised by reciprocity based on mutuality (Lapierre & Keating, ; Pleschberger & Wosko, ), our findings show that there are different forms of mutuality in caring relations of older people. The data revealed three mutuality patterns.…”

Section: Discussionmentioning

confidence: 99%

“…Today, some research acknowledges older people's participation in care activities and shows that rather than passively receiving care, older people mutually construct care arrangements with family, friends and formal care (Barken, ) as well as care for their communities (Wiles & Jayasinha, ). Recently, care among older people who are not family has gained increased attention (Pleschberger & Wosko, , ). Typically, care among older people has been understood by examining specific relationships such as friends and neighbours.…”

Section: Introductionmentioning

confidence: 99%

“…This care is characterised by flexibility, everyday quality and a variation in care tasks (Allan, ; Armstrong & Goldsteen, ; Barker, ; Lapierre & Keating, ). Unlike family care, this care is less often viewed as a burden (Broese van Groenou, de Boer, & Iedema, ) and involves reciprocity based on a sense of mutuality (Lapierre & Keating, ; Pleschberger & Wosko, ). Motives for caring might differ between family members, whose caring is often understood to be altruistic, an obligation or a responsibility (Folbre, ), and caring between older people.…”

Section: Introductionmentioning

confidence: 99%

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Beyond the definition of formal care: Informal care arrangements among older swedes who are not family

Siira

Rolandsson

Wijk

et al. 2019

Health Soc Care Community

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This study explores care practices of older people outside formal care and without appealing to predefined relationships. We conducted interviews with 30 independentliving men and women aged 67-93 in three municipalities in Sweden. The interviews explored how they cared for themselves and other older people who were not family. Interviews were conducted between December 2017 and May 2018 and later transcribed and analysed using grounded theory. Our paper presents one of the first studies on informal care practices among older people that looks beyond the definition of formal care to understand how such care complements formal care services.The findings show that older people participate in several care arrangements to care for themselves as well as for others. The arrangements feature different types of mutuality and include distant relations to other older people and larger more or less formalised groups. The findings highlight the importance of looking beyond conceptualisations of care based on understandings of formal care and specific relationships as a frame for understanding informal care. To promote older people's health by cultivating and supporting older people's care for themselves and others, research and healthcare practitioners need to explore and acknowledge the significance and complexity of older people's everyday care practices. K E Y W O R D Scare arrangements, caregivers, grounded theory, Informal care, older people

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Beyond the definition of formal care: Informal care arrangements among older swedes who are not family

Siira

Rolandsson

Wijk

et al. 2019

Health Soc Care Community

View full text Add to dashboard Cite

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“…Having ties to neighbors facilitates access to informal aid and reduces the sense of isolation, which can mitigate the problems of maintaining everyday life at a time of advancing age and declining health (Beard et al, 2009;Yen et al, 2009;Oswald et al, 2011;Kalwij et al, 2014;Boerner et al, 2016;Ward et al, 2018). Such challenges include accessing home care (e.g., Nocon and Pearson, 2000;Barker, 2002;Kalwij et al, 2014;Pleschberger and Wosko, 2017), managing depressive symptoms (e.g., Aneshensel et al, 2007;Wight et al, 2009;Wang et al, 2018), maintaining physical functioning (e.g., Balfour and Kaplan, 2002), and achieving other wellbeing outcomes (e.g., Wahl et al, 2009;Morita et al, 2010;Stroope et al, 2017;Gallardo-Peralta et al, 2018). Therefore, older adults' experiences and behaviors in terms of wellbeing, independence, and social integration are closely related to their environments: their neighborhoods (Wahl et al, 2012).…”

Section: Neighborhood Help Among Older Adultsmentioning

confidence: 99%

Help From and Help to Neighbors Among Older Adults in Europe

Seifert

König

2019

Front. Sociol.

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Neighborhoods can be a valuable source of social support particularly for older adults. Such support can be mutual; however, the influential factors in giving and receiving are unclear. This study investigated neighborhood help among the older European population using representative data for 17 countries from the Survey of Health, Ageing and Retirement in Europe (SHARE). The analyses were based on 104,059 observations of 39,113 respondents aged 50 years and older. In general, ∼6% of all respondents provided recently neighborhood help, and 4% received help. Moreover, the results indicate a high degree of reciprocity in giving and receiving neighborhood help. However, the situation varied widely among age groups and countries. Our multilevel results suggest that the provision and receipt of help are driven by personal characteristics (age, sex, education, income, and retirement), health resources (subjective health, activities of daily living, and instrumental activities of daily living), living situation (homeownership, location, and length of time in a residence), social factors (marital status, partner, parents, and children), and contextual factors (gross domestic product, social expenditures, poverty rate, Gini index, population density, country-centered satisfaction with life, living, and relationships).

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“…In addition to this, fewer people are available to take on caring roles (Luckett et al, 2014), as families nowadays are often geographically dispersed (such as with emigration from country of origin or adult children moving away for work), and with a greater economic need for women to play a role in the paid workforce (Ireson, Sethi, & Williams, 2018;Williams et al, 2011). Low mortality and lower fertility may also mean that more people are living alone at the end of life (Pleschberger & Wosko, 2017) which brings its own care challenges.…”

Section: Introductionmentioning

confidence: 99%

What role do Death Doulas play in end‐of‐life care? A systematic review

Rawlings

Tieman

Miller-Lewis

et al. 2018

Health Soc Care Community

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Current health and social care systems do not always meet the needs of the dying in our communities. As a result, patients and families are choosing to place their trust in those who can advocate for them or fill the gaps in care. Birth Doulas have been working with women during pregnancy and after birth for many years, and we are now seeing a new role, that of a Death Doula emerging in the end‐of‐life care space. How Death Doulas work within health and social care systems is not understood and we conducted a systematic review to explore the published literature to explore the role and potential implications for models of care delivery. Following the PRISMA recommendations, we searched the literature in January 2018 via bibliographic databases and the grey literature without search date parameters to capture all published literature. We looked for articles that describe the role/work of a death doula or a death midwife in the context of end‐of‐life care, or death and dying. Our search retrieved 162 unique records of which five papers were included. We analysed the papers in relation to relationship to health service, funding source, number and demand for services, training, licensing and ongoing support, and tasks undertaken. Death Doulas are working with people at the end of life in varied roles that are still little understood, and can be described as similar to that of “an eldest daughter” or to a role that has similarities to specialist palliative care nurses. Death doulas may represent a new direction for personalised care directly controlled by the dying person, an adjunct to existing services, or an unregulated form of care provision without governing oversight.

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From neighbour to carer: An exploratory study on the role of non-kin-carers in end-of-life care at home for older people living alone

Abstract: Support of older people living alone, in particular until the last stage of life, comes along with multiple efforts. Respectful and supporting relationships between professional carers and non-kin-carers are vital to keep non-kin-carers involved.

Cited by 25 publications

References 16 publications

Beyond the definition of formal care: Informal care arrangements among older swedes who are not family

Beyond the definition of formal care: Informal care arrangements among older swedes who are not family

Help From and Help to Neighbors Among Older Adults in Europe

What role do Death Doulas play in end‐of‐life care? A systematic review

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