Farsi version of the CLEFT-Q: translation, cultural adaptation process and reliability

Ajami, Shabnam; Torabi, Shiva; Dehghanpour, Samaneh; Ajami, Mansoureh

doi:10.1186/s12903-021-01957-7

Cited by 3 publications

(4 citation statements)

References 29 publications

(39 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…9 Having been translated into several languages, CLEFT-Q enables comparison between patients from different countries with various native languages. 20,21 This represents a significant development in facilitating international research collaboration on this relatively small patient group. Only a few word changes were required during the translation process of CLEFT-Q into Finnish.…”

Section: Discussionmentioning

confidence: 99%

“…The questionnaire has been psychometrically validated with 2434 patients from 12 countries and has since been translated into several languages. 20 – 22 It has also been shown to be psychometrically valid when used on children and young adults with a range of other facial conditions. 23 The aim of this study was to produce and linguistically validate a Finnish version of the CLEFT-Q questionnaire.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Westerlund

Heliövaara

Leikola

et al. 2023

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective Cleft lip and/or palate (CL/P) can have long-lasting effects on the appearance, function, and psychosocial wellbeing of patients. The CLEFT-Q questionnaire is a patient-reported outcomes instrument specifically designed to assess the health-related quality of life of patients with CL/P. The aim of this study was to produce and linguistically validate a Finnish version of the CLEFT-Q questionnaire. Design The CLEFT-Q questionnaire was translated into Finnish following guidelines of the International Society for Pharmacoeconomics and Outcomes Research. Pilot testing with cognitive debriefing interviews was conducted on patients of the target age range of the questionnaire, 8–29, and with various cleft types. Results The CLEFT-Q questionnaire translated readily into Finnish. A review of the backward translation led to two words being changed. Thirteen patients – ten females and three males – with a median age of 14 years, participated in the cognitive debriefing interviews. The interviews led to further nine word changes. The pilot study data suggested that the performance of the Finnish version of the instrument is in line with the original CLEFT-Q questionnaire. Conclusions The Finnish version of CLEFT-Q produced here is linguistically valid and ready for use in the evaluation of the health-related quality of life of patients with CL/P. However, future work is needed to further assess the validity and the reliability of the CLEFT-Q in the Finnish patient population.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Westerlund

Heliövaara

Leikola

et al. 2023

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

show abstract

“…CLEFT-Q continues to undergo translation and validation to other languages worldwide [63][64][65][66]. Multiple studies have demonstrated the validity and utility of CLEFT-Q [67] and the ICHOM standard set to the extent that, at this point, research is moving beyond content validity and focusing on the feasibility of implementation and verifying scales for their utility in clinically significant decision making.…”

Section: Outcome Measurementsmentioning

confidence: 99%

“…Institutional support and financial resources are vital to effective adoption and implementation, which can be a Outcomes Measurement (ICHOM) has also produced a standard set of standardized outcome measures [62] that is also commonly used by cleft teams for the comprehensive appraisal of cleft care (see Figure 2). CLEFT-Q continues to undergo translation and validation to other languages worldwide [63][64][65][66]. Multiple studies have demonstrated the validity and utility of CLEFT-Q [67] and the ICHOM standard set to the extent that, at this point, research is moving beyond content validity and focusing on the feasibility of implementation and verifying scales for their utility in clinically significant decision making.…”

Section: Outcome Measurementsmentioning

confidence: 99%

Advances in Cleft Lip and Palate Surgery

Aycart,

Caterson

2023

Medicina

View full text Add to dashboard Cite

Cleft lip with or without cleft palate is one of the most common congenital malformations, with an average prevalence of 1 in 1000 live births. Cleft lip and/or palate is incredibly phenotypically diverse, with constant advancements and refinements in how we care for patients. This article presents an in-depth review of the latest advances and current evidence in cleft lip and palate surgery. This includes presurgical infant orthopedics, perioperative practice patterns including use of enhanced recovery after surgery (ERAS) protocols, patient-reported outcome measures, and the latest adjuncts in cheiloplasty and palatoplasty.

show abstract

Reliability and Validity of the CLEFT-Q in a Chinese Context

Ding

Kuang

Zhang

et al. 2023

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective To develop an appropriate Chinese version of the CLEFT-Q through translation and cultural adaptation and to evaluate its reliability and validity. Design The English CLEFT-Q was translated into Chinese following the International Society for Pharmacoeconomics and Outcomes Research guidelines, including cognitive debriefing interviews, and its reliability and validity were assessed. Participants Patients (N = 246) were mostly in active orthodontic treatment, had a mean age of 14.7 ± 4.4 years, 29% were female, and were born with isolated cleft lip ± alveolus (12%), cleft palate (1%), or cleft lip and palate (87%). Main Outcome Measures The Chinese CLEFT-Q, including 13 subscales covering Appearance, Health-Related Quality of Life (HRQOL), and Facial Function. Criterion validity instruments included the Negative Physical Self, Satisfaction with Life Scale, and Scale of Positive and Negative Experience. Results The wording of 67 items was adapted in the final translation. The internal consistency of the Chinese version of the CLEFT-Q was high based on Cronbach's alphas of 0.85 to 0.98 and split-half reliability of 0.85 to 0.92. Exploratory and confirmatory factor analyses yielded three factors, which demonstrated construct validity by broadly matching the structure of the original CLEFT-Q. The Appearance and HRQOL dimensions had weak to moderate correlations (r = −0.35 to 0.67) with the corresponding instruments for criterion validity. Conclusions The Chinese version of the CLEFT-Q is a patient-reported outcome measure that can reflect the quality of life of Chinese patients with cleft lip and/or palate with good reliability and validity.

show abstract

Farsi version of the CLEFT-Q: translation, cultural adaptation process and reliability

Cited by 3 publications

References 29 publications

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Finnish Translation and Linguistic Validation of the CLEFT-Q Questionnaire

Advances in Cleft Lip and Palate Surgery

Reliability and Validity of the CLEFT-Q in a Chinese Context

Contact Info

Product

Resources

About