Family intervention and acquisition of adaptive behaviour among                 intellectually disabled children

Russell, Paul Swamidhas Sudhakar; John, Jacob; Lakshmanan, Jeyaseelan; Russell, Sushila; Lakshmidevi, Kavitha Manoharreddy

doi:10.1177/1469004704047506

Cited by 14 publications

(30 citation statements)

References 14 publications

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“…Russell et al. describe the development of a multi‐modal adaptive behaviour programme for families of children with ID together with interactive group psychoeducation (Russell et al. 2004).…”

Section: Discussionmentioning

confidence: 99%

Community management of intellectual disabilities in Pakistan: a mixed methods study

Mirza

Tareen

Davidson

et al. 2009

J intellect Disabil Res

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Background Pakistan has one of the highest reported rates of childhood intellectual disabilities in the world. Prevalence estimates vary from 19.1/1000 for serious intellectual disability to 65/1000 for mild intellectual disability Methods We surveyed carers of persons with intellectual disabilities (n=100) using quantitative and qualitative instruments. We conducted in-depth interviews of carers (n=16) and key primary health providers (n=10). We also carried out focus groups (n=7). Data was triangulated and interpreted in light of peer reviewed literature Results There was a delay of 2.92 (95% CI 1.9 to 3.94) to 4.17 (95% CI 2.34 to 6.01) years between detection and seeking of care. Parental stress associated with caring for these children was high (mean SRQ score 8.4; 95%CI 6.80 to 9.91). Home management consisted mainly of physical containment. Stigma associated with intellectual disability contributed to decreased opportunity for these children and families to participate in community activities. There was a lack of knowledge about causation and effective interventions for intellectual disabilities. Conclusions Our findings suggest that there is significant delay in detection of intellectual disabilities especially in rural setting where more than 70% of population of Pakistan resides. This missed opportunity for rehabilitation in early formative years is a cause of significant distress for the caregivers who rarely receive valid information about course, prognosis and what remedial action to take. There is a need to develop feasible, cost effective, community level interventions, which can be integrated into existing healthcare systems.

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Section: Discussionmentioning

confidence: 99%

Community management of intellectual disabilities in Pakistan: a mixed methods study

Mirza

Tareen

Davidson

et al. 2009

J intellect Disabil Res

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“…; Schulz & Grimes ; Russel et al . ). Secondly, those families where there is hope demonstrate more psychological resilience and positive well‐being for families of children with disabilities (Schulz & Grimes ).…”

Section: Introductionmentioning

confidence: 97%

Parenting children with intellectual disabilities in Malawi: the impact that reaches beyond coping?

Masulani-Mwale¹,

Mathanga

Silungwe³

et al. 2016

Child

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“…Russell et al 2004. Country: India RCT design with 57 children and their parents Not specified Intellectually-disabled children showed a significant improvement in the acquisition of adaptive behaviour after training.…”

Section: Bottom-line Findingsmentioning

confidence: 99%

The effects of rehabilitation on intellectually-disabled people – a systematic review

Sechoaro

Scrooby

Koen

2014

Health SA Gesondheid

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IntroductionPeople with intellectual disabilities have complex needs and limitations in terms of bodily functions, personal factors and activity skills. These disabilities pose significant challenges for Background: Rehabilitation has emerged as a comprehensive approach to addressing intellectually-disabled peoples' skill deficits, improving competencies and facilitating optimal functioning in order to provide the greatest possible measure of social and economic participation, self-reliance and independence.Objective: To synthesise critically and summarise the best available evidence of the effects of rehabilitation on intellectually-disabled people. Method:Literature searches of different electronic databases and manual searches were conducted using selected keywords. Studies on the effects of rehabilitation on intellectuallydisabled people were selected systematically, appraised critically for methodological quality and summarised.Results: Rehabilitation interventions indicated good outcomes with regard to intellectuallydisabled people. Findings showed that people with mild to moderate intellectual disabilities improved in terms of activities of daily living (ADL) after rehabilitation. Improvement was noted in ADL, self-care skills, communication skills and cognitive achievements. Conclusion:Findings demonstrated positive rehabilitation effects on intellectually-disabled people. This study contributes to the comprehensive nursing care of intellectually-disabled people by endorsement of the effectiveness of rehabilitation in terms of ADL, self-care skills, communication skills and cognitive achievements. The collected evidence of this study may contribute to the education of more effective nurse practitioners involved in the daily care and rehabilitation of intellectually-disabled people.Agtergrond: Rehabilitasie het ontwikkel in 'n omvattende benadering met 'n kombinasie van behandelingsmetodes om die veelvoudige hindernisse wat met intellektuele gestremdheid geassosieer word die hoof te bied. Rehabilitasie word gebruik om die intellektueel gestremde mense se vaardigheidstekorte aan te pak, bevoegdheid te bevorder en optimal funksionering te fasiliteer met die beste moontlike sosiale en ekonomiese deelname, onafhanklikheid, selfstandigheid en selfbeskikking as doelwit. Doelstelling:Hierdie sistematiese literatuuroorsig het die beskikbare bewyse van die effek van rehabilitasie op intellektueel gestremde mense ondersoek en beskryf.Metode: Literatuur soektogte van verskillende elektroniese databasisse en handsoektogte was gedoen deur geselekteerde sleutelwoorde te gebruik. Studies oor die effekte van rehabilitasie op die intellektueel gestremde persone was stelselmatig geselekteer, krities ontleed vir metodologiese kwaliteit en opgesom.Resultate: Rehabilitasie-intervensies het goeie uitkomste op intellektueel gestremde mense getoon. Bevindinge het getoon dat mense met ligte tot matige intellektuele gestremdhede ten opsigte van daaglikse aktiwiteite na rehabilitasie verbeter het. Vordering is opgemerk in daaglikse...

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Family intervention and acquisition of adaptive behaviour among intellectually disabled children

Cited by 14 publications

References 14 publications

Community management of intellectual disabilities in Pakistan: a mixed methods study

Community management of intellectual disabilities in Pakistan: a mixed methods study

Parenting children with intellectual disabilities in Malawi: the impact that reaches beyond coping?

The effects of rehabilitation on intellectually-disabled people – a systematic review

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