Family Function and Stroke Recovery: A Review.

Palmer, Sylvain; Glass, Thomas A.

doi:10.1037/0090-5550.48.4.255

Cited by 115 publications

(112 citation statements)

References 88 publications

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“…Individual or community interventions should redefine their contents accordingly [49]. Our findings bring to light some contrasting aspects of the literature: they suggest that despite the socio-economic differences between care settings, stroke is a life-threatening and potentially disabling event as well as an important family issue, particularly for spouses [50]. …”

Section: Discussionmentioning

confidence: 89%

Life Satisfaction of Two-Year Post-Stroke Survivors: Effects of Socio-Economic Factors, Motor Impairment, Newcastle Stroke-Specific Quality of Life Measure and World Health Organization Quality of Life – bref of Informal Caregivers in Luxembourg and a Rural Area in Portugal

Baumann

Lurbe

Leandro³

et al. 2012

Cerebrovasc Dis

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Background: Life satisfaction of stroke survivors is known to be associated with socio-economic factors and the survivor’s and his/her caregiver’s quality of life, but their respective influence remains to be fully elucidated. Purpose: To analyse the stroke survivors’ life satisfaction 2 years after the event and its relationships with quality of life, socio-economic and stroke-related characteristics, and with informal caregivers’ life satisfaction and quality of life . Methods: Over 18 months, all stroke patients from Luxembourg and north-eastern Portugal who lived at home were identified from the Inspection Générale de la Sécurité Sociale and hospital records, respectively. The clinical diagnosis of cerebrovascular disease was confirmed. We excluded all patients who declared that stroke did not result in neurological impairments at the time of stroke from the statistical analysis. The samples comprised 79 patients in Luxembourg and 48 in Portugal. Patients and the people they identified as their main caregivers were interviewed using validated questionnaires measuring life satisfaction, i.e. the Newcastle Stroke-Specific Quality of Life (Newsqol – 11 subscales), which identifies the areas affected by stroke among patients, and the World Health Organization Quality of Life – bref (Whoqol-bref – 4 subscales) of informal caregivers. Survivors without neurological impairment at the time of stroke were excluded. Data were analysed via multiple-regression models. Results: Life satisfaction was higher among women and lower among subjects with impaired motor functions. It was lower among Portuguese respondents with low-level education (<12th grade) and higher among those at work (37.6/100). In Luxembourg, retired people had more life satisfaction than did working people (–7.9/100). Controlling for socio-economic factors, life satisfaction was associated with feelings- Newsqol (slope 0.25) among Luxembourg residents, and with feelings-, mobility- and self-care-Newsqol (slopes 0.24, 0.27 and 0.33, respectively) among Portuguese respondents. Life satisfaction of patients was strongly related to that of family caregivers among the Portuguese respondents (slope 0.66) but the relationship was moderate in Luxembourg (slope 0.28). The survivors’ life satisfaction was not correlated with any Whoqol-bref domain in the Luxembourg group, but was correlated with the Whoqol-bref psychological, social relationships and environment domains among the Portuguese respondents (slopes 0.55, 0.59 and 0.51, respectively). Conclusions: The life satisfaction scale and the Newsqol stroke instrument, which identify areas of quality of life affected by stroke, are reliable patient-centred markers of intervention outcome. They can be used within the framework of medical follow-up (such as telephone assistance, clinical practice and prevention). Depending on the stroke survivor’s and the family caregiver’s habitual lifestyle and material circumstances, enhancement of a caregiver’s quality of life can help maintain the patient’s life satisfaction, ...

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Section: Discussionmentioning

confidence: 89%

Life Satisfaction of Two-Year Post-Stroke Survivors: Effects of Socio-Economic Factors, Motor Impairment, Newcastle Stroke-Specific Quality of Life Measure and World Health Organization Quality of Life – bref of Informal Caregivers in Luxembourg and a Rural Area in Portugal

Baumann

Lurbe

Leandro³

et al. 2012

Cerebrovasc Dis

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“…This can be done through improving impaired functions or the performance of these activities, finding new ways to perform activities, or modifying the physical or social environment (9). A brain injury poses a significant challenge to the family system (26). Therefore, it is essential that rehabilitation should take place in familiar and meaningful environments (27,28).…”

Section: Discussionmentioning

confidence: 99%

Occupational Gaps in Everyday Life 1–4 Years After Acquired Brain Injury

Eriksson¹,

Tham²,

Borg³

2006

Journal of Rehabilitation Medicine

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Objective: To explore adaptation, by examining the occupational gaps occurring between what individuals want to do and what they actually do in terms of their everyday activities before and after brain injury. In addition, the relationships between occupational gaps and impairment/activity limitations and the time lapse since the brain injury were explored. Design: A cross-sectional study. Subjects: A total of 187 persons, affected by traumatic brain injury or subarachnoid haemorrhage 1 Á /4 years previously. Methods: A postal questionnaire encompassing questions concerning gaps in the performance of activities in everyday life before and after the brain injury and perceived impairment/activity limitations. Results: The numbers of occupational gaps increased after the injury, with the number of gaps having increased from 46% to 71%. The number of occupational gaps was significantly related to executive impairment/activity limitations, and motor impairment/activity limitations and other somatic impairments, such as headache, also had an impact. The time lapse since the brain injury had no significant effect on the number of occupational gaps. Conclusion:The results suggests that there is a need for adaptation in everyday activities, even several years after a brain injury, which indicates that follow-up and access to individualized rehabilitation interventions in the long-term are required.

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“…Researchers and clinicians are encouraged to go beyond the stroke survivor-caregiver dyad and examine entire families. 546,565 One study that focused on minor children of stroke survivors advocated the need to screen for children's functioning, spouse depression, and the quality of the marital relationship during rehabilitation for a more family-centered care approach. 557 Despite minimal research in this area, consideration of the entire family system, including young children and other family members, can be beneficial, with referral for treatment or counseling as appropriate.…”

Section: Assessment Of Caregiver Needs and Concernsmentioning

confidence: 99%