Family experiences of the transition to palliative care in aged residential care (ARC): a qualitative study

Frey, Rosemary; Foster, Susan; Boyd, Michal; Robinson, Jackie; Gott, Merryn

doi:10.12968/ijpn.2017.23.5.238

Cited by 19 publications

(50 citation statements)

References 58 publications

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“…At the start of SHARE and consistent with previous research (43), bereaved family members of RAC residents, felt uninformed about the residents' health and felt that they were not given information on what to expect at the end of life. In line with previous research (26,44), bereaved family perceptions of quality of care appeared improved at the nish of SHARE by earlier communication among residents, family members, and health professionals about prognosis, options for care, and assessment of support and coping resources.…”

Section: Discussionsupporting

confidence: 84%

Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Frey

Barham

Balmer

et al. 2020

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Background: The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' knowledge and skill to care for frail older people. Method: The experiences of 18 bereaved families concerning the palliative care journey (both at the start and finish of a one-year implementation of SHARE) were explored using semi-structured interviews.Results: Three themes were important to bereaved families’ experience: communication with staff, systems of care, and hospice involvement. Sub-themes indicating changes in these three components of care between the start and finish of SHARE was identified. A fourth theme highlighted challenges (relationship with GP, staff shortages, and turnover) that continued across SHARE.Conclusion: Findings indicated that SHARE benefited families (improved communication and support) through the end of life journey of their relatives, but challenges remained.

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Section: Discussionsupporting

confidence: 84%

Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Frey

Barham

Balmer

et al. 2020

Preprint

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“…Research has described communication about the end of life as a challenge for nursing home staff [ 39 ] and revealed the need for education and training for this task [ 40 , 41 ]. However, the crucial point was that the benefits for the next of kin of using a palliative approach of care [ 42 ] in nursing homes for old persons must be fully understood [ 43 , 44 ].…”

Section: Discussionmentioning

confidence: 99%

Striking a Balance: A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden

et al. 2018

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Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin’s experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person’s wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin’s participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care.

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“…Conhecer a qualidade da relação entre os membros possibilita que o profissional possa interferir nessa área e, assim, dentre as ações de cuidado, promover o bem-estar e qualidade de vida do idoso (24).…”

Section: Discussionunclassified

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et al. 2018

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Family experiences of the transition to palliative care in aged residential care (ARC): a qualitative study

Cited by 19 publications

References 58 publications

Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Palliative care delivery in residential aged care: Bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention

Striking a Balance: A Qualitative Study of Next of Kin Participation in the Care of Older Persons in Nursing Homes in Sweden

O cuidado cotidiano na perspectiva de idosos independentes e de seus familiares mais próximos

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