Family and Other Caregivers

Gately, Megan; Ladin, Keren

doi:10.1007/978-3-319-71812-5_9

Cited by 4 publications

(2 citation statements)

References 47 publications

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“…The results of this study reveal some interesting observations regarding the potential factors that impact on the well-being of informal caregivers. Firstly, in line with previous work [3][4][5][6], we have shown that those engaging in frequent caregiving experience lower well-being than those who do not. Given that a significant proportion of the European population identify as frequent caregivers, this finding may at first appear worrying, especially since caregivers also reported poorer heath and experienced greater financial pressures than the wider sample.…”

Section: Discussionsupporting

confidence: 90%

“…The number of informal caregivers in Europe is increasing, with many older, disabled, or chronically ill individuals now dependent on care from their family members and friends [1][2][3]. It is widely reported that caring can lead to decrements in the well-being of caregivers themselves [3][4][5][6][7], with caregiving suggested to impact negatively on health [1,7], life satisfaction [8], and overall quality of life [9]. Given that caregivers who report poorer self-rated health and/or depressive symptoms are less likely to provide quality care for patients [10], understanding the factors that may improve caregiver well-being and quality of life is important not only for caregivers themselves, but for their care recipients too [4,11].…”

Section: Introductionmentioning

confidence: 99%

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Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe

2019

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Purpose The burden of caring for a family member or friend can have a negative impact on caregiver health and well-being, yet caring can also have positive consequences. Understanding the factors that may enhance caregiver well-being is merited. Methods We used data gathered from the European Quality of Life Survey (EQLS). Using complete case analysis followed by multiple imputation analysis, a series of multilevel regression models were developed to systematically explore the role of three distinct blocks of factors in predicting caregiver well-being as measured by the WHO-5 well-being index: (1) sociodemographic and health factors, (2) care and burden-related factors, and (3) psychological and social appraisals. Differences between frequent caregivers and the general population were also compared on all measures. Results 36,908 respondents took part in EQLS, with 4171 (11%) identifying as frequent carers. While frequent caregivers reported lower well-being compared to the remaining population, most were happy with the amount of time spent caring. Our model explained approximately 32% of variance in well-being scores. After examining the role of known risk factors, all positive psychological appraisals were associated with higher well-being (p < .001). In order of magnitude these were optimism, perceived autonomy, sense of purpose, resilience, and perceived levels of social inclusion. Self-rated health was the strongest predictor of well-being while female carers and those with high levels of various burden measures reported lower well-being. Conclusions Findings suggest that caregiver well-being is influenced by more than simply the burden of care. As well as attempting to reduce burden, interventions aimed at supporting caregivers could focus on fostering more positive appraisals to enhance well-being in this group.

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Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe

2019

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Factors Influencing Barriers and Facilitators to In-home Video Telehealth for Dementia Management

Gately

Tickle-Degnen

McLaren

et al. 2021

Clinical Gerontologist

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Psychoeducational Interventions for Caregivers of Persons With Multiple Sclerosis: Protocol for a Randomized Trial

Douglas¹,

Plow²,

Packer³

et al. 2021

JMIR Res Protoc

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Background Of the approximately 1 million people living with multiple sclerosis in the United States, more than half receive informal, unpaid care or support from family or friends (caregivers). These caregivers report high levels of stress, anxiety, and negative emotions. Few researchers have conducted psychoeducational interventions for these caregivers. Objective This paper presents a protocol for a randomized clinical trial that aims to test the efficacy of two interventions for improving stress, anxiety, depression, and negative emotions for caregivers of persons with multiple sclerosis. Methods Participants included any self-identified family or friend caregiver of a person with multiple sclerosis. Data collection began in April 2021 and is expected to continue until November 2021. Participants will be randomized to receive either a website-only or a website-coaching intervention delivered for 6 weeks. Data will be collected at baseline, 6 weeks after baseline (after delivery of intervention), and 6 weeks later. Results The protocol was approved by the institutional review board of the Case Western Reserve University on January 21, 2021 (protocol 20201484). As of May 2021, 66 participants were enrolled. Conclusions Our findings will have implications for identifying the efficacy of two types of interventions developed for caregivers of persons with multiple sclerosis to reduce negative psychological outcomes associated with caregiving. Trial Registration ClinicalTrials.gov NCT04662008; http://clinicaltrials.gov/ct2/show/NCT04662008 International Registered Report Identifier (IRRID) DERR1-10.2196/30617

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Family and Other Caregivers

Cited by 4 publications

References 47 publications

Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe

Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe

Factors Influencing Barriers and Facilitators to In-home Video Telehealth for Dementia Management

Psychoeducational Interventions for Caregivers of Persons With Multiple Sclerosis: Protocol for a Randomized Trial

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