Failure of Clinical Practice Guidelines to Meet Institute of Medicine Standards

Kung, Justin W.; Miller, Ram R.; Mackowiak, Philip A.

doi:10.1001/2013.jamainternmed.56

Cited by 270 publications

(188 citation statements)

References 19 publications

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“…5 Specialty societies did slightly better (1 in 10), and guidelines from outside the United States fared best at about 1 in 3. Ideally, a guideline development group should contain consumers (recipients of health care) to provide a layperson perspective and enhance relevancy to patients.…”

Section: Editor's Responsementioning

confidence: 99%

Patients

Rosenfeld¹

2014

Otolaryngol.--head neck surg.

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Section: Editor's Responsementioning

confidence: 99%

Patients

Rosenfeld¹

2014

Otolaryngol.--head neck surg.

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“…8 A standard that WikiRecs meets but is often neglected by conventional guideline panels includes participation by a complete spectrum of stakeholders, including critical care specialists, a surgeon, a nurse, methodologists, and a former patient. The patient panel member was key in identifying all of the most patient-important outcomes, including long-term quality of life, an outcome not captured in any relevant randomized trials (and thus representing a gap in current knowledge).…”

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confidence: 99%

“…8 Une des normes respectées par WikiRecs, souvent négligée par d'autres, est la participation d'un éventail complet d'intervenants, y compris des spécialistes des soins intensifs, un chirurgien, une infirmière, des méthodologues et un ancien patient. Le patient membre du panel a joué un rôle essentiel dans l'identification de tous les critères et pronostics importants aux yeux des patients, notamment la qualité de vie à long terme, un critère non évalué par les études randomisées pertinentes (mettant ainsi le doigt sur une lacune majeure des connaissances actuelles).…”

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The next frontier in critical care guidelines: rapid and trustworthy recommendations

Siemieniuk

Guyatt

2017

Can J Anesth/J Can Anesth

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“…Guideline development and access have proliferated over the past decade, although the quality of CPGs is variable depending on development methodology, panel composition, and external review by stakeholders. 17 The National Guideline Clearinghouse website, an AHRQ initiative, houses thousands of internationally developed CPGs, including nearly 200 related to a wound care search.…”

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What Do Patients Want? Patient Preference in Wound Care

Corbett

Ennis

2014

Advances in Wound Care

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Patient preferences are statements made or actions taken by consumers that reflect their desirability of a range of health options. The concept occupies an increasingly prominent place at the center of healthcare reform, and is connected to all aspects of healthcare, including discovery, research, delivery, outcome, and payment. Patient preference research has focused on shared decisions, decisional aids, and clinical practice guideline development, with limited study in acute and chronic wound care populations. The wound care community has focused primarily on patient focused symptoms and quality of life measurement. With increasing recognition of wound care as a medical specialty and as a public health concern that consumes extensive resources, attention to the preferences of end-users with wounds is necessary. This article will provide an overview of related patient-centered concepts and begin to establish a framework for consideration of patient preference in wound care.From the seminal models of evidence-based practice, patient preference has occupied a prominent place in clinical decision making. More recently, consideration for patient preference emerges as a key component in the redesign of healthcare processes with significance for improving outcome and safety.2 But what are patient preferences? How are they elicited, regarded, and incorporated into recommended action? What interrelated patient-centered concepts have been studied in various patient populations? Lastly, what contribution has the wound care community made to the understanding of patient preference? This article aims to introduce the reader to the issues, begin a dialogue on patient preference in wound care, and suggest opportunities for future discovery.Patient preferences are ''statements by individuals regarding the relative desirability of a range of health experiences, treatment options and health states.'' 3(p259) Preferences reflect beliefs and attitudes of the patient and family, and are related to the process, probability, and severity of potential choices. 4 Patient preference is conceptualized and measured differently across disciplines, from health economics, patient education, psychology, ethics, and using qualitative and quantitative approaches. In the field of medicine, oncology has been the frontrunner in operationalizing methods to determine patient preference for various cancer treatment options, most notably in breast and prostate cancer treatments.

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Failure of Clinical Practice Guidelines to Meet Institute of Medicine Standards

Cited by 270 publications

References 19 publications

Patients

Patients

The next frontier in critical care guidelines: rapid and trustworthy recommendations

What Do Patients Want? Patient Preference in Wound Care

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