Factors that influence the decision to be an organ donor: a systematic review of the qualitative literature

Abstract

This review of qualitative studies highlights that seemingly intractable factors, such as religion and culture, are often tied in with more complex issues such as a distrust of the medical system, misunderstandings about religious stances and ignorance about the donation process. Intervention that could be considered includes culturally appropriate strategies to engage minority groups, especially through religious or cultural leaders, and more comprehensively available information about the donation process and its positive outcomes.

Effects of a Video on Organ Donation Consent Among Primary Care Patients: A Randomized Controlled Trial

“…Patients have significant reservations about donation that often involve distrust of the healthcare system and lack of information about the organ donation process. 11 Primary care providers can use their established relationships with their patients to provide factual information and address patient concerns to help navigate around these barriers. 12 Patient-provider discussions regarding organ donation are not currently the standard of care.…”

Perception of Healthcare Workers about Barriers Impacting Organ Donation in Qatar: A Focus Group Study

“…Although, this was a qualitative study using focus discussions, it was able to bring out several chalenges to organ donation similar to quantitative studies conducted all over the world [5,6,7,8,11,13,16].…”

“…Several studies show that people from some communities often associate fear of premature death and dying with organ donation [11,12]. Another study that came up with similar results, deduced that such bodily concerns could be a result of a cognitive component resulting from fear of organ donation or an affective component relating to damage to body after death [13].…”

The Role of Strategic Communication for Organ Donations

“…Collecting data in one country and in addition in the context of a cross-country analysis is difficult because of sparse (comparable) data. There might be other direct or indirect influencing factors than communication, which still might not have been taken into consideration or analysed into depth (Irving, Tong, Jan, Cass, Rose, Chadban, … Howard, 2011). It would be interesting to conduct a survey in the European Union to explore the general attitude of the European citizens.…”