Experiences of hospice inpatient nurses in supporting children before the death of a parent

Clipsham, Laura; Islam, Zoebia; Faull, Christina

doi:10.12968/ijpn.2015.21.9.453

Cited by 9 publications

(80 citation statements)

References 13 publications

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“…Professions included specialist palliative care nurses, 8–10,19–22,27,49 oncology nurses, 7,21,27,50,51 general nurses, 7,26,52 community nurses, 8,9,19,22,26,49 physicians (doctors) 22,51 ( n = 22), physical therapists ( n = 6), 22 psychologists ( n = 2) 22 and social workers ( n = 5). 19 Fields of work were inpatient oncology, 7,21,27,28,49,51 haematology, 7,51 neurology, 7,51 oncological gynaecology, 51 palliative care in hospices, 10,19,20,22 in the community, 8,9,19,26,49 for example, in nursing homes 10,22 and in patients’ homes. 8,9,10,19,22,26,49 One study does not state the setting.…”

Section: Resultsmentioning

confidence: 99%

“…8,9,10,49,50,52 In five studies, they reported experiences of supporting children directly, rather than connecting with children through their parents. 7,8,19,20,22 Although supporting children following the death of a parent was mentioned in two studies, 10,22 only one focussed specifically on health and social care professionals’ experiences of supporting children when their parent was dying, and following parental death. 22…”

Section: Resultsmentioning

confidence: 99%

“…Developing early rapport, from the point of parental diagnosis, was perceived to be key to facilitating supportive connections with parents and with children: 19–22,27,51 When they come in you tell them the diagnosis you then obviously ask about what the family situation is at home, what else they have got going on so recognizing that straight away you know, I am a mum as well. (FG-5, p. 3) 27 …”

Section: Summary Of Findingsmentioning

confidence: 99%

“…There was a reported need to be sensitive to parental wishes to establish affinity and trust with parents, gaining permission to approach and to talk to their children. 7,8,20–22,27,52 Identifying with parents, as parents themselves, and because of their own life experiences, helped professionals to develop empathic rapport, to support parents and children: 20–22,27 You can feel their pain, but I think your empathy there is so strong because you have been there and done that. 21 (p. 153)…”

Section: Summary Of Findingsmentioning

confidence: 99%

“…1,18,19 Occasionally, health and social care professionals will talk to children independently of their parents. 20–22…”

Section: Introductionmentioning

confidence: 99%

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Health and social care professionals’ experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis

et al. 2018

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Background: Children need to be prepared for the death of a parent and supported afterwards. Parents seek support from health and social care professionals to prepare their children. Support is not always forthcoming. Aim: To systematically identify, analyse and synthesise literature reporting of the experiences of health and social care professionals when supporting parents and children during, and following, the death of a parent. Design: A systematically constructed qualitative review and thematic synthesis. Registered on Prospero (CRD42017076345). Data sources: MEDLINE, CINAHL, Embase, PsycINFO, PsycARTICLES and PROSPERO, searched from January 1996 to July 2018 for qualitative studies in English, containing verbatim reporting of health and social care professionals’ experiences of supporting parents and children during, and following, the death of a parent. Qualitative data were appraised using a modified Critical Appraisal Skills Programme qualitative appraisal checklist. Results: The search yielded 15,758 articles. Of which, 15 met the inclusion criteria. A total of 13 included professionals’ experiences of supporting parents and children before parental death. Two included experiences of supporting surviving parents and children afterwards. Three analytical themes identified as follows: (1) aspiring to deliver family-focussed care, (2) health and social care professionals’ behaviours and emotions and (3) improving connections with parents and children. Connecting empathically with parents and children to prepare and support children entails significant emotional labour. Professionals seek to enhance their confidence to connect. Conclusion: Professionals struggle to connect empathically with parents and their children to prepare and to support children when a parent is dying and afterwards. Awareness of professionals’ needs would enable provision of appropriate support for parents and children.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Summary Of Findingsmentioning

confidence: 99%

Section: Summary Of Findingsmentioning

confidence: 99%

“…1,18,19 Occasionally, health and social care professionals will talk to children independently of their parents. 20–22…”

Section: Introductionmentioning

confidence: 99%

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Health and social care professionals’ experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis

et al. 2018

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Providing care to parents dying from cancer with dependent children: Health and social care professionals' experience

et al. 2020

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Objective Parents often feel ill‐equipped to prepare their dependent children (<18 years old) for the death of a parent, necessitating support from professionals. The aim of this study is to explore health and social care professionals' (HSCPs) experiences and perceptions of providing supportive care to parents regarding their children, when a parent is dying from cancer. Methods Semi‐structured qualitative interviews were conducted with 32 HSCPs, including nurses, allied health professionals, social workers and doctors from specialist or generalist roles, across acute or community sectors. Results HSCPs' perceptions of the challenges faced by many families when a parent is dying from cancer included: parental uncertainties surrounding if, when and how to tell the children that their parent was dying, the demands of managing everyday life, and preparing the children for the actual death of their parent. Many HSCPs felt ill‐equipped to provide care to parents at end of life concerning their children. The results are discussed under two themes: (1) hurdles to overcome when providing psychological support to parents at end of life and (2) support needs of families for the challenging journey ahead. Conclusions There appears to be a disparity between HSCPs' awareness of the needs of families when a parent is dying and what is provided in practice. HSCPs can have a supportive role and help equip parents, as they prepare their children for the death of their parent. Appropriate training and guideline provision could promote this important aspect of end of life care into practice.

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Nurses’ experiences of providing “sensitive nursing care” for terminally-ill individuals with cancer: A qualitative study

Kwon

Kim

Choi

2020

European Journal of Oncology Nursing

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Experiences of hospice inpatient nurses in supporting children before the death of a parent

Abstract: Multiple factors influencing provision of support emerged. Formal training and readily available resources would support hospice nurses working with children.

Cited by 9 publications

References 13 publications

Health and social care professionals’ experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis

Health and social care professionals’ experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis

Providing care to parents dying from cancer with dependent children: Health and social care professionals' experience

Nurses’ experiences of providing “sensitive nursing care” for terminally-ill individuals with cancer: A qualitative study

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