Evaluation of the quality of information available on the internet on vaginal meshes

Meinberg, Mariana Furtado; Brandão, Wladmir Cardoso; Werneck, Rogéria Andrade; Passos, Michael Zarnowski; Silva-Filho, Agnaldo L.

doi:10.1016/j.ejogrb.2021.07.055

Cited by 2 publications

(3 citation statements)

References 27 publications

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“…46 The clinical shortcomings are summarised as lack of postmarketing surveillance, poor understanding of the pelvic floor and pelvic-floor-related disorders and inadequate medical training of non-mesh management of POP and SUI. 45 Available information on the internet, when studied in 2019, was of moderate quality, 13 but it is not known if it is better now. Development and user-testing of information resources is underway 47 but on a small scale.…”

Section: Discussionmentioning

confidence: 99%

“… 8 Several studies of women who had undergone mesh insertion 9–12 suggested that they were poorly informed about adverse effects or alternative treatments, with internet information of variable quality. 13 Women who developed problems with mesh often had considerable difficulty convincing doctors of their symptoms and that mesh was the cause or obtaining adequate care. 14 15 Formal enquiries in the UK (The Cumberlege Report), 16 Scotland 17 and Australia 18 recorded widespread and severe distress and substantial shortcomings in care.…”

Section: Introductionmentioning

confidence: 99%

“…8 Several studies of women who had undergone mesh insertion [9][10][11][12] suggested that they were poorly informed about adverse effects or alternative treatments, with internet information of variable quality. 13 Women who developed…”

Section: Introductionmentioning

confidence: 99%

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Pain and other complications of pelvic mesh: a systematic review of qualitative studies and thematic synthesis of women’s accounts

Williams,

Lodato,

McGrigor

2024

BMJ Open

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ObjectivesSynthesis of the experience of women with pain from pelvic or vaginal mesh or its removal, to identify pain-related problems and to formulate psychological aspects of pain.DesignSystematic review and thematic analysis of qualitative studies of pain from pelvic or vaginal mesh, or mesh removal, in women over 18 years, using individual interviews, focus groups, free text, or written or oral contributions to formal enquiries.Data sourcesMedline, Embase and PsycINFO, from inception to 26 April 2023.Eligibility criteriaQualitative studies of pain and other symptoms from pelvic or vaginal mesh or its removal; adults; no language restriction.Data extraction and synthesisLine-by-line coding of participant quotations and study author statements by one author to provide codes that were applied to half the studies by another author and differences resolved by discussion. Codes were grouped into subthemes and themes by both authors, then scrutinised and discussed by a focus group of mesh-injured women for omissions, emphasis and coherence. Studies were appraised using an amalgamation of the CASP and COREQ tools.Results2292 search results produced 9 eligible studies, with 7–752 participants, a total of around 2000. Four recruited patients, four totally or partially from mesh advocacy groups, and two were national enquiries (UK and Australia). Four major themes were as follows: broken body, broken mind; distrust of doctors and the medical industry; broken life and keeping going—a changed future. Psychological content mainly concerned the loss of trust in medical care, leaving women unsupported in facing an uncertain future. Mesh-injured women strongly endorsed the findings.ConclusionsPain and other problems associated with pelvic mesh are profound and far-reaching for women affected. Worse, they feel subject to continued gaslighting, including denial of their mesh-related problems and dismissal of their concerns about continued mesh insertion.PROSPERO registration numberCRD42022330527.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Pain and other complications of pelvic mesh: a systematic review of qualitative studies and thematic synthesis of women’s accounts

Williams,

Lodato,

McGrigor

2024

BMJ Open

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Patient education information material assessment criteria: A scoping review

Ahmadzadeh

Bahrami

Zare–Farashbandi

et al. 2023

Health Info Libraries J

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Background: Patient education information material (PEIM) is an essential component of patient education programs in increasing patients' ability to cope with their diseases. Therefore, it is essential to consider the criteria that will be used to prepare and evaluate these resources.Objective: This paper aims to identify these criteria and recognize the tools or methods used to evaluate them.Methods: National and international databases and indexing banks, including PubMed, Scopus, Web of Science, ProQuest, the Cochrane Library, Magiran, SID and ISC, were searched for this review. Original or review articles, theses, short surveys, and conference papers published between January 1990 and June 2022 were included.Results: Overall, 4688 documents were retrieved, of which 298 documents met the inclusion criteria. The criteria were grouped into 24 overarching criteria. The most frequently used criteria were readability, quality, suitability, comprehensibility and understandability. Conclusion: This review has provided empirical evidence to identify criteria, tools, techniques or methods for developing or evaluating a PEIM. The authors suggest that developing a comprehensive tool based on these findings is critical for evaluating the overall efficiency of PEIM using effective criteria.

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Evaluation of the quality of information available on the internet on vaginal meshes

Cited by 2 publications

References 27 publications

Pain and other complications of pelvic mesh: a systematic review of qualitative studies and thematic synthesis of women’s accounts

Pain and other complications of pelvic mesh: a systematic review of qualitative studies and thematic synthesis of women’s accounts

Patient education information material assessment criteria: A scoping review

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