Evaluating a group for young people who have a sibling with a disability

Rye, Kristy; Hicks, Stephanie; Falconer, Caroline J.

doi:10.7748/ldp.2018.e1901

Cited by 3 publications

(5 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our focus on sibling self-report; therefore, revealed unique sibling needs and experiences not explored in previous studies or reviews. In addition, the qualitative components of studies included in this review, in addition to our community consultation, identified new sub-themes from the data: specifically, we found evidence for improved intra-personal wellbeing including enhanced resilience and self-worth (Calio & Higgins-D'Allessandro, 2021;Rye et al, 2018) not evident in previous reviews evaluating quantitative outcomes.…”

Section: Comparison Of the Present Review's Findings With Previous Re...mentioning

confidence: 69%

“…poorer quality of life) post-intervention (Gettings et al, 2015). Themes identified post-intervention in the three qualitative studies exploring intra-personal wellbeing indicated improvements in self-esteem, self-worth, self-concept, autonomy and feelings of bravery and resilience (Calio & Higgins-D'Allessandro, 2021;McCullough & Simon, 2011;Rye et al, 2018).…”

Section: Theme 4: Intra-personal Wellbeingmentioning

confidence: 99%

“…The largest positive intervention results tended to include siblings of a younger age (mean age of less than 11 years) and samples with more male than female participants (Brouzos et al, 2017;Kryzak et al, 2014). However, these patterns were contradicted in some studies: a study with all females reported positive changes in psychosocial adjustment (Rye et al, 2018); a study of siblings aged 20-22 reported significant improvements in wellbeing (Calio & Higgins-D'Allessandro, 2021), while adolescents (aged above 12) improved more on self-esteem than children (Williams et al, 2003).…”

Section: Pre-intervention Risk and Resilience-promoting Factors Assoc...mentioning

confidence: 99%

“…In general, qualitative studies reported more positive intervention effects than quantitative studies on sibling wellbeing outcomes (Rye et al, 2018) It may be that standardised measures used in current intervention studies are not capturing outcomes considered important to siblings (Calio & Higgins-D'Allessandro, 2021). It is also possible that siblings may be providing socially desirable answers in the interviews, although three studies had anonymous feedback forms and in interviews asking for both positives and negatives of the intervention, the positives outweighed the negatives (Evans et al, 2001;Giallo & Gavidia-Payne, 2008).…”

Section: Siblings' Qualitative Experiences and Perceptions Of The Int...mentioning

confidence: 99%

See 3 more Smart Citations

Psychosocial Interventions and Support Groups for Siblings of Individuals with Neurodevelopmental Conditions: A Mixed Methods Systematic Review of Sibling Self-reported Mental Health and Wellbeing Outcomes

Wolff

Magiati

Roberts

et al. 2022

Clin Child Fam Psychol Rev

View full text Add to dashboard Cite

Siblings of persons with neurodevelopmental conditions (NDCs) have increased risk of poorer psychosocial functioning. This systematic review evaluated quantitative and qualitative evidence on sibling mental health and wellbeing outcomes following psychosocial interventions and the risk and protective factors associated with post-intervention outcomes. From 2025 identified studies published from 1991 to 2022 across ten databases, 24 studies were included. The largest immediate post-intervention improvements were in self-esteem, social wellbeing and knowledge of NDCs. The most sustained improvements in intervention groups at follow-up periods were in emotional and behavioural adjustment and NDC knowledge. There were positive, but small, differences in favour of the intervention groups on knowledge of NDCs, self-esteem, coping and the sibling relationship as compared to waitlist control groups. Psychosocial interventions for siblings are heterogeneous, and more data, including consideration of unique family circumstances, are needed to improve reporting and replicability, to measure effectiveness and tailor necessary supports.

show abstract

Section: Comparison Of the Present Review's Findings With Previous Re...mentioning

confidence: 69%

Section: Theme 4: Intra-personal Wellbeingmentioning

confidence: 99%

Section: Pre-intervention Risk and Resilience-promoting Factors Assoc...mentioning

confidence: 99%

Section: Siblings' Qualitative Experiences and Perceptions Of The Int...mentioning

confidence: 99%

See 2 more Smart Citations

Psychosocial Interventions and Support Groups for Siblings of Individuals with Neurodevelopmental Conditions: A Mixed Methods Systematic Review of Sibling Self-reported Mental Health and Wellbeing Outcomes

Wolff

Magiati

Roberts

et al. 2022

Clin Child Fam Psychol Rev

View full text Add to dashboard Cite

show abstract

“…The ITSBS continues to follow the original psycho-social approach maintaining the key components of: a detailed and regularly updated PBS plan; regular short breaks to provide the family with respite and to help develop skills and independence; and therapeutic interventions offered to the young person, their parents/carers and sometimes their siblings (Rye et al , 2018) to ensure that the whole family feels supported. However, a key strength of the service is the format of network training sessions for providing system support and enabling systems-wide change, something recognised in PBS, but an area that has received less focus in research.…”

Section: Overcoming the Challengesmentioning

confidence: 99%

The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on

Dilks-Hopper

Jacobs

Sholl

et al. 2019

TLDR

Self Cite

View full text Add to dashboard Cite

show abstract

Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental Disability: a Scoping Review

Nguyen

Bootsma²,

Rezze³

et al. 2023

Curr Dev Disord Rep

View full text Add to dashboard Cite

Purpose of Review To identify and map the characteristics and outcomes of programs designed to prepare siblings for their future roles with their sibling with a neurodevelopmental disability. Recent Findings Existing programs to support siblings of individuals with a neurodevelopmental disability often focus on providing information about neurodevelopmental disabilities, creating a community for siblings to connect with each other, and connecting siblings to resources and services to support them in their roles. Some programs are offered to the whole family with specific sessions for siblings. While these program descriptions are provided in the literature, there is limited understanding about the impacts and outcomes of these programs on siblings of an individual with a neurodevelopmental disability. Summary Fifty-eight articles (published between 1975 and 2020, with > 50% published since 2010) met the inclusion criteria, representing 54 sibling programs from 11 countries. Extracted data represented 1033 (553 females) sibling participants, between 4 and 67 years old. Twenty-seven programs focused on the outcome of knowledge acquisition for the siblings and thirty-one programs focused on the outcome of empowerment for the siblings to teach skills to their sibling with a neurodevelopmental disability. While there is an increasing number of programs for siblings of individuals with a neurodevelopmental disability in the past decade, there is a lack of siblings as co-developers or facilitators. Future research should consider the various roles that siblings can have in programs to address their needs.

show abstract

Evaluating a group for young people who have a sibling with a disability

Cited by 3 publications

References 24 publications

Psychosocial Interventions and Support Groups for Siblings of Individuals with Neurodevelopmental Conditions: A Mixed Methods Systematic Review of Sibling Self-reported Mental Health and Wellbeing Outcomes

Psychosocial Interventions and Support Groups for Siblings of Individuals with Neurodevelopmental Conditions: A Mixed Methods Systematic Review of Sibling Self-reported Mental Health and Wellbeing Outcomes

The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on

Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental Disability: a Scoping Review

Contact Info

Product

Resources

About