EuroNeoStat: A European Information System on the Outcomes of Care for Very-Low-Birth-Weight Infants

Long‐Term Impact of Bronchopulmonary Dysplasia on Pulmonary Function

“…The mean gestational age in the present cohort was 27.9 weeks, similar to the mean gestational age of two other cohorts: 27.7 weeks (31) and 28.2 weeks (32). The incidence of pneumothorax, necrotizing enterocolitis, patent ductus arteriosus, retinopathy of prematurity, neonatal pneumonia or sepsis, and maternal factors, such as gestational diabetes, bleeding or prolonged rupture of membrane, were comparable with previously published studies (23,(31)(32)(33)(34)(35). In our cohort, 37% had severe BPD and 16.7% died, comparable with the 41% of severe BPD subjects in another study (31), and a reported 15.7% mortality in yet another study (33).…”

Outcome of Extremely Premature Infants at Early School Age: Health-Related Quality of Life and Neurosensory, Cognitive, and Behavioral Outcomes in a Population-Based Sample in Northern Germany

“…Regional networks and individual centers must monitor infants in a consistent and transparent manner to be able to reach evidence-based and shared decision-making with parents. With the initiation of the EuroNeoStat [22] systematic data collection in Europe may improve. For Germany the German Neonatal Network (GNN) started patient enrollment recently (see www.vlbw.…”

A European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA)

“…In Europe, there is only one neonatal network at a European level, EuroNeoNet (www.euroneonet.org) that has been funded by the European Commission, Direction Générale de la Santé et des Consommateurs (DG SANCO) (projects EuroNeoStat I and II). More than 150 neonatal intensive care units from most European countries34 have joined this network, with a plan to set up a platform to design, promote and conduct neonatal trials 33…”