Ethnicity and Dementias

Yeo, Gwen; Gallagher‐Thompson, Dolores

doi:10.4324/9781315820347

Cited by 35 publications

(22 citation statements)

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“…It should be noted that CaLD caregivers in this study generally come from a collectivist cultural background that values group achievements over individual ones, and family members in these cultures are often willing to make sacrifices in caring for the person with dementia [13,17]. Consequently, in CaLD groups family caregiving for people with dementia is typically shared by a variety of family members, whereas people with dementia in Anglo-Australian families are normally cared for by a spouse [2,12].…”

Section: Discussionmentioning

confidence: 99%

“…Indeed, several studies have revealed unmet dementia care needs and low levels of satisfaction with service providers in CaLD groups [8-10]. Evidence of this is found in the failure to provide early interventions or treatment to people with dementia or associated disorders, cultural clashes between caregivers and health professionals, and prejudicial attitudes and discrimination towards people with dementia from CaLD groups and their caregivers [11-13]. …”

Section: Introductionmentioning

confidence: 99%

“…One key factor affecting the use of and satisfaction with dementia services of caregivers is the level of caregiver’s acculturation in the host culture [10,13,16]. Acculturation influences the social networks of caregivers and thus also shapes their ability to access information and resources in dementia care [17,18].…”

Section: Introductionmentioning

confidence: 99%

“…Communication barriers are also viewed as a major factor that inhibits CaLD caregivers to access, plan and manage dementia services to meet the care recipients’ and their own care needs [13,19]. However, most of the studies on this issue only explored this issue from the perspective of the service providers [12,13,20].…”

Section: Introductionmentioning

confidence: 99%

“…However, most of the studies on this issue only explored this issue from the perspective of the service providers [12,13,20]. How the caregivers interact with care staff and whether they are able to comprehend the dementia care information are not clear.…”

Section: Introductionmentioning

confidence: 99%

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The experiences of culturally and linguistically diverse family caregivers in utilising dementia services in Australia

Xiao

Bellis

Habel

et al. 2013

BMC Health Serv Res

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BackgroundOlder people from culturally and linguistically diverse groups are underrepresented in residential aged care but overrepresented in community aged care in Australia. However, little is known about culturally and linguistically diverse family caregivers in utilising dementia services in Australia because previous studies mainly focused on the majority cultural group. Experiences of caregivers from culturally and linguistically diverse groups who are eligible to utilise dementia services in Australia are needed in order to optimize the utilisation of dementia services for these caregivers.MethodsThe aim of the study was to explore the experiences of family caregivers from Chinese, Greek, Italian and Vietnamese groups in utilising dementia services. Gadamer's philosophical hermeneutics was used to interpret the experiences of the participants. Focus group discussions and in-depth individual interviews were used to collect data. Data collection was conducted over a six month period in 2011. In total, 46 family caregivers who were caring for 39 persons with dementia participated.ResultsFour themes were revealed: (1) negotiating services for the person with dementia; (2) the impact of acculturation on service utilisation; (3) the characteristics of satisfactory services; and (4) negative experiences in utilising services. The present study revealed that the participation of caregivers from culturally and linguistically diverse groups in planning and managing dementia services ranged markedly from limited participation to full participation.ConclusionsThe findings of this study suggest that caregivers from culturally and linguistically diverse groups need to be fully prepared so they can participate in the utilisation of dementia services available to them in Australia.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

The experiences of culturally and linguistically diverse family caregivers in utilising dementia services in Australia

Xiao

Bellis

Habel

et al. 2013

BMC Health Serv Res

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Neuropsychiatric symptoms in community-dwelling Mexican-Americans: results from the Hispanic Established Population for Epidemiological Study of the Elderly (HEPESE) study

Salazar

Royall

Palmer

2014

Int J Geriatr Psychiatry

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Objective The Neuropsychiatric Inventory (NPI) is a well-established measure of psychopathology and frequently used in dementia studies. Little is known about its psychometric characteristics at a population level, particularly among Hispanics. We report the frequency of NPI symptoms in a community-dwelling older Mexican-American (MA) population cohort and the degree of symptom-related distress experienced by participant informants. Methods Participants were 1079 MA age 80 years and over residing in five southwestern states who were administered the NPI as part of wave-7 of the Hispanic Established Population for Epidemiological Study of the Elderly (HEPESE) conducted from 2010 to 2011. Results Nine hundred twenty-five informants rated NPI domains. Prevalence of neuropsychiatric symptoms (NPS) varied by symptom domain and ranged from agitation/aggression (32%) to euphoria/elation (5%). The overall rate of behavioral disturbances was 62.7%. On the other hand, 37.3% of informants reported no NPS. A significant fraction of the informants reported distress from the mood disorder cluster of the scale. Conclusions A large percentage (>60%) of community-dwelling older MA have one or more informant-reported NPS. These symptoms have diagnostic, prognostic, and therapeutic implications. Although neuropsychiatric disorders may be the initial clinical manifestation of dementia and often appear before cognitive alterations, the high frequency of these symptoms in the HEPESE cohort may reflect a high prevalence of these disorders among community-dwelling MA. The pattern we observed also suggests relatively advanced stages of dementia.

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Feasibility of Audio‐Computer‐Assisted Self‐Interviewing With Color‐Coding and Helper Assistance (ACASI‐H) for Hmong Older Adults

Lor

Bowers

2017

Research in Nursing & Health

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Many older adult immigrants in the US, including Hmong older adults, have limited English proficiency (LEP), and cannot read or have difficulty reading even in their first language (non-literate [NL]). Little has been done to identify feasible data collection approaches to enable inclusion of LEP or NL populations in research, limiting knowledge about their health. This study’s purpose was to test the feasibility of culturally and linguistically adapted audio computer-assisted self-interviewing (ACASI) with color-labeled response categories and helper assistance (ACASI-H) for collection of health data with Hmong older adults. Thirty dyads (older adult and a helper) completed an ACASI-H survey with 13 health questions and a face-to-face debriefing interview. ACASI-H survey completion was video-recorded and reviewed with participants. Video review and debriefing interviews were audio-recorded and transcribed. Directed and conventional content analyses were used to analyze the interviews. All respondents reported that ACASI-H survey questions were consistent with their health experience. They lacked computer experience and found ACASI-H’s interface user-friendly. All but one whose helper provided translation used the pre-recorded Hmong oral translation. Some Hmong older adults struggled with the color labeling at first, but helpers guided them to use the colors correctly. All dyads liked the color-labeled response categories and confirmed that a helper was necessary during the survey process. Findings support use of oral survey question administration with a technologically competent helper and color-labeled response categories when engaging LEP older adults in health-related data collection.

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Ethnicity and Dementias

Cited by 35 publications

References 0 publications

The experiences of culturally and linguistically diverse family caregivers in utilising dementia services in Australia

The experiences of culturally and linguistically diverse family caregivers in utilising dementia services in Australia

Neuropsychiatric symptoms in community-dwelling Mexican-Americans: results from the Hispanic Established Population for Epidemiological Study of the Elderly (HEPESE) study

Feasibility of Audio‐Computer‐Assisted Self‐Interviewing With Color‐Coding and Helper Assistance (ACASI‐H) for Hmong Older Adults

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