Ethical issues in qualitative research on internet communities

Eysenbach, Günther; Till, J. E.

doi:10.1136/bmj.323.7321.1103

Cited by 737 publications

(632 citation statements)

References 9 publications

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“…When using Internet material, it is important to consider certain ethical issues (for a discussion, see Eysenbach & Till, 2001). The use of this particular Internet discussion as data did not pose any significant ethical problems, because the discussion was open to anyone, did not require registration, and the participants used pseudonyms.…”

Section: The Datamentioning

confidence: 99%

The fat child—a sign of ‘bad’ motherhood? An analysis of explanations for children's fatness on a Finnish website

Kokkonen

2009

Community & Applied Soc Psy

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Children's fatness has become a central concern worldwide, Finland included. In Finland, fatness is mainly discussed from the biomedical viewpoint as a considerable health risk resulting from individual ways of life. In the case of childhood fatness, it is the parents that are mainly held responsible for its prevention and treatment. It has been widely noted that fat people are often blamed for such things as laziness and lack of self-control. As regards fat children, however, the role and possible blaming of parents has received less scholarly attention. This paper examines the ways children's fatness is explained in an anonymous Finnish Internet discussion, focusing especially on the ways parents are depicted as causing their child's fatness and as possibly blameworthy for this. A discourse analysis revealed that parents were mainly viewed as the primary cause of the child's fatness and were negatively constructed as having 'lousy' characters, being unable to create an 'adequate' emotional bond with their child, or as otherwise engaging in 'faulty' child-rearing practices. Significantly, the latter two constructions included notions similar to the psychological expert notions of parenthood. All three constructions of parents were also gendered, being either implicitly or explicitly equated with the mother. Children's fatness was also explained, and parents' primary role thus questioned or mitigated, by reference to some other factors, such as genes. These explanations, however, did not seem to hold their ground in the discussion. The occurrence and implications of these explanations is discussed.

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Section: The Datamentioning

confidence: 99%

The fat child—a sign of ‘bad’ motherhood? An analysis of explanations for children's fatness on a Finnish website

Kokkonen

2009

Community & Applied Soc Psy

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“…This aligns with the practice of several previous studies [79][80][81][82]. In general, the use of online content for research purposes is permitted if the website is considered to be in the public domain [83]. The status of such websites is equated to published material.…”

Section: Ethical Considerationsmentioning

confidence: 70%

Parental Discussions Online through the Medical Discourse-lens

Lundin¹,

Erlandsson²

2017

J Child Dev Disord

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In the present study the research objective was to gain insights into parental communication on an open Internet forum where parents had the opportunity to discuss issues related to ADHD. In order for clinicians to help troubled children brought to the health clinic it may be important to learn more about the life situations of these troubled families as treatment options can require complex interventions for the whole family. Our aim was thus to go beyond the neurobiological medical model of ADHD, which does not take into account contextual factors. In today's society specialized online discussion forums are available for parents who seek support for various difficulties that arise in the family. The online forums are sources of research data. As research tools we used the narrative psychological approach for the analysis of 72 online narratives. These narratives provided support for that the parents embraced medical explanations for the difficulties experienced when raising children, despite obvious challenging life circumstances, such as for example being a single parent without social support. Even very young children had been given serious psychiatric medical diagnoses such as ADHD, Bipolar disorder, Mood disorders and Obsessive Compulsive Disorder. Some of them had been diagnosed with more than one of these disorders. The complexity of the parental narratives in the present study indicates that the neurobiological model is not sufficient enough to form the basis of a personalized and comprehensive care for vulnerable families.

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“…The authors cannot be effectively anonymised as search-engines may identify the source of quotes, exposing authors (Eysenbach & Till, 2001). Romme & Escher (1993) suggest recovery involves proudly adopting the identity of a voice hearer, and the authors, who have published in their own names, may concur.…”

Section: Ethical Considerationsmentioning

confidence: 99%

A discursive approach to narrative accounts of hearing voices and recovery

Goldsmith

2012

Psychosis

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Ethical issues in qualitative research on internet communities

Cited by 737 publications

References 9 publications

The fat child—a sign of ‘bad’ motherhood? An analysis of explanations for children's fatness on a Finnish website

The fat child—a sign of ‘bad’ motherhood? An analysis of explanations for children's fatness on a Finnish website

Parental Discussions Online through the Medical Discourse-lens

A discursive approach to narrative accounts of hearing voices and recovery

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