Engaging with stakeholders in a research programme to promote implementation of pulmonary rehabilitation in Bangladesh: Challenges and opportunities

Habib, G M Monsur; Uzzaman, Nazim; Malik, Poonam; Rabinovich, Roberto; Uddin, Aftab; Alam, SM Rowshan; Williams, Siân; Pinnock, Hilary

doi:10.7189/jogh.10.020384

Cited by 9 publications

(15 citation statements)

References 9 publications

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“…Pulmonary rehabilitation (PR) has proven to benefit patients with CRDs, demonstrating meaningful improvement of symptoms, exercise capacity, mental health, and quality of life [ 6 ]. PR also reduces the economic burden due to health costs of patients with CRD, by preventing unnecessary hospital admissions and reducing the length of hospital stays [ 5 ].…”

Section: Pulmonary Rehabilitationmentioning

confidence: 99%

Barriers and challenges of implementing pulmonary rehabilitation in Malaysia: Stakeholders’ perspectives

et al. 2021

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Section: Pulmonary Rehabilitationmentioning

confidence: 99%

Barriers and challenges of implementing pulmonary rehabilitation in Malaysia: Stakeholders’ perspectives

et al. 2021

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“… 19 Clinical PR services are not widely available in LMICs, 20 where significant modifications may be required due to differences in resources, awareness, culture, healthcare configuration and target disease epidemiology. 21 A systematic review of PR in Southern Africa demonstrated few trials, generally low-quality evidence for efficacy, and no published data from Malawi. 3 Our proposed trial aims to investigate the feasibility and acceptability of implementing PR in Malawi, with the following specific objectives:…”

Section: Introductionmentioning

confidence: 99%

Protocol for a single-centre mixed-method pre–post single-arm feasibility trial of a culturally appropriate 6-week pulmonary rehabilitation programme among adults with functionally limiting chronic respiratory diseases in Malawi

et al. 2022

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IntroductionMalawi has a substantial burden of chronic respiratory diseases (CRDs) which cause significant morbidity and loss of economic productivity, affecting patients, families and health systems. Pulmonary rehabilitation (PR) is a highly recommended non-pharmacological intervention in the clinical management of people with CRDs. However, Malawi lacks published evidence on the implementation of PR for people with CRDs. This trial will test the feasibility and acceptability of implementing a culturally appropriate hospital-based PR programme among adults with functionally limiting CRDs at Queen Elizabeth Central Hospital in Blantyre, Malawi.Methods and analysisThis is a single-centre mixed-methods pre–post single-arm feasibility trial. Ten patients aged ≥18 years, with a spirometry confirmed diagnosis of a CRD and breathlessness of ≥2 on the modified Medical Research Council dyspnoea scale, will be consecutively recruited. Their baseline lung function, exercise tolerance and health status will be assessed; including spirometry, Incremental Shuttle Walk Test and Chronic Obstructive Pulmonary Disease Assessment Test, respectively. Pretrial semistructured in-depth interviews will explore their experiences of living with CRD and potential enablers and barriers to their PR uptake. Along with international PR guidelines, these data will inform culturally appropriate delivery of PR. We initially propose a 6-week, twice-weekly, supervised centre-based PR programme, with an additional weekly home-based non-supervised session. Using combination of researcher observation, interaction with the participants, field notes and informal interviews with the participants, we will assess the feasibility of running the programme in the following areas: participants’ recruitment, retention, engagement and protocol adherence. Following programme completion (after 6 weeks), repeat assessments of lung function, exercise tolerance and health status will be conducted. Quantitative changes in clinical outcomes will be described in relation to published minimal clinically important differences. Post-trial semistructured interviews will capture participants’ perceived impact of the PR programme on their quality of life, enablers, and barriers to fully engaging with the programme, and allow iteration of its design.Ethics and disseminationEthical approval for this trial was obtained from University of Malawi College of Medicine Research and Ethics Committee (COMREC), Blantyre, Malawi (protocol number: P.07/19/2752) and University of Leicester Research Ethics Committee, Leicester, UK (ethics reference: 31574). The results of the trial will be disseminated through oral presentations at local and international scientific conferences or seminars and publication in a peer-reviewed journal. We will also engage the participants who complete the PR trial and the Science Communication Department at Malawi-Liverpool-Wellcome Trust Clinical Research Programme to organise community outreach activities within Blantyre to educate communities about CRDs and PR. We will also broadcast our trial results through national radio station programmes such as the weekly “Thanzi la Onse” (Health of All) programme by Times Radio Malawi. We will formally present our trial results to Blantyre District Health Office and Malawi Ministry of Health.Trial registration numberISRCTN13836793.

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“…It can help to improve the health, knowledge and well-being of communities by decreasing the ambiguity surrounding research findings and increasing early acceptance of the research findings [ 3 ]. Early SE could help obtain funding and facilitate in reducing the gap between research to policy by creating research that is of benefit and interest to numerous stakeholders [ 4 , 5 ].…”

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“…Despite the positive potential impacts of SE, limited information is available on SE processes especially within a South Asian context [ 4 , 9 ]. The concept of SE is well recognised in high-income countries and researchers from low-middle-income-countries (LMICs) are slowly acknowledging the importance of conducting meaningful SE [ 1 , 4 ]. In this article we discuss the SE process employed at the Vadu Rural Health Program (VRHP), a department of KEM Hospital Research Centre Pune (KEMHRC), when conducting community-based public health research in rural areas, and describe our experiences and challenges in conducting SE activities.…”

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Engaging with stakeholders for community-based health research in India: Lessons learnt, challenges and opportunities

Patil

Kaur²,

Gadgil

et al. 2021

J Glob Health

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Engaging with stakeholders in a research programme to promote implementation of pulmonary rehabilitation in Bangladesh: Challenges and opportunities

Cited by 9 publications

References 9 publications

Barriers and challenges of implementing pulmonary rehabilitation in Malaysia: Stakeholders’ perspectives

Barriers and challenges of implementing pulmonary rehabilitation in Malaysia: Stakeholders’ perspectives

Protocol for a single-centre mixed-method pre–post single-arm feasibility trial of a culturally appropriate 6-week pulmonary rehabilitation programme among adults with functionally limiting chronic respiratory diseases in Malawi

Engaging with stakeholders for community-based health research in India: Lessons learnt, challenges and opportunities

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