“…This lack of support and/or updates on progress left families feeling a little uncared for:… sometimes you come and you don't talk to anyone because nurses don't come. (Kisorio & Langley, )…”
Section: Resultsmentioning
confidence: 99%
“…(Sonemanghkara et al, )I have not seen this service [spiritual support] provided by nurses to us as family or to the patient, we just pray for him as a family. (Kisorio & Langley, )…”
Section: Resultsmentioning
confidence: 99%
“…Families wanted to see the healthcare providers provide respectful care for their relative.every time we come to visit he is clean and lying comfortably in bed like somebody that was well cared for. (Kisorio & Langley )It just made me feel really touched that he was being honoured, that he was being loved and taken care of. (Rodgers, Calmes, & Grotts, )…”
Section: Resultsmentioning
confidence: 99%
“…every time we come to visit he is clean and lying comfortably in bed like somebody that was well cared for. (Kisorio & Langley )…”
Section: Resultsmentioning
confidence: 99%
“…While most healthcare providers exhibited benevolence towards patients and their families, some families reported that they did not experience care in this way:Rachael had ‘seen good nurses who are jovial, they greet and even give a hug, some are so cold, they don’t talk freely, sometimes you feel unwanted'. (Kisorio & Langley, )…”
Aims and objectives
To systematically review qualitative studies exploring families' experiences of spiritual care at the end of life in acute hospital settings.
Background
Although there is a widespread belief that the consideration of spiritual and religious needs is outdated in the context of secularism, from a practical perspective patients and families appear to benefit from spiritual support at the end of life.
Methods
Six key databases, CINAHL, MEDLINE, EMBASE, Global Health Library, Web of Science and Applied Social Sciences Index and Abstracts (ASSIA), were searched, and three reviewers independently extracted the data and coded them into themes and subthemes. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) was used as a reporting framework.
Results
Five main themes emerged: anticipating needs; honouring the family by honouring the patient; personal connection; lack of sensitivity; and making space for religious and spiritual practices.
Conclusions
Families experiencing end‐of‐life care in acute hospital settings may benefit from spiritual care. While this can also be considered as fundamental care, understanding this through the lenses of spiritual care allows for incorporation of religious and spiritual practices that many seek at this time, irrespective of their faith perspectives.
Relevance to clinical practice
Although hospice care is well established internationally, many families experience end‐of‐life care in acute hospital settings. Nurses usually get to know families well during this time; however, the demands of the clinical environment place restrictions on family care and perceptions of lack of communication, limited support and/or limited sensitivity can compound families' suffering. Consideration of families' spiritual needs can help to support families during this time. Nurses are ideally placed for this and can anticipate and plan for patient and family needs in this regard, or refer to a specialist, such as the Healthcare Chaplain.
“…This lack of support and/or updates on progress left families feeling a little uncared for:… sometimes you come and you don't talk to anyone because nurses don't come. (Kisorio & Langley, )…”
Section: Resultsmentioning
confidence: 99%
“…(Sonemanghkara et al, )I have not seen this service [spiritual support] provided by nurses to us as family or to the patient, we just pray for him as a family. (Kisorio & Langley, )…”
Section: Resultsmentioning
confidence: 99%
“…Families wanted to see the healthcare providers provide respectful care for their relative.every time we come to visit he is clean and lying comfortably in bed like somebody that was well cared for. (Kisorio & Langley )It just made me feel really touched that he was being honoured, that he was being loved and taken care of. (Rodgers, Calmes, & Grotts, )…”
Section: Resultsmentioning
confidence: 99%
“…every time we come to visit he is clean and lying comfortably in bed like somebody that was well cared for. (Kisorio & Langley )…”
Section: Resultsmentioning
confidence: 99%
“…While most healthcare providers exhibited benevolence towards patients and their families, some families reported that they did not experience care in this way:Rachael had ‘seen good nurses who are jovial, they greet and even give a hug, some are so cold, they don’t talk freely, sometimes you feel unwanted'. (Kisorio & Langley, )…”
Aims and objectives
To systematically review qualitative studies exploring families' experiences of spiritual care at the end of life in acute hospital settings.
Background
Although there is a widespread belief that the consideration of spiritual and religious needs is outdated in the context of secularism, from a practical perspective patients and families appear to benefit from spiritual support at the end of life.
Methods
Six key databases, CINAHL, MEDLINE, EMBASE, Global Health Library, Web of Science and Applied Social Sciences Index and Abstracts (ASSIA), were searched, and three reviewers independently extracted the data and coded them into themes and subthemes. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) was used as a reporting framework.
Results
Five main themes emerged: anticipating needs; honouring the family by honouring the patient; personal connection; lack of sensitivity; and making space for religious and spiritual practices.
Conclusions
Families experiencing end‐of‐life care in acute hospital settings may benefit from spiritual care. While this can also be considered as fundamental care, understanding this through the lenses of spiritual care allows for incorporation of religious and spiritual practices that many seek at this time, irrespective of their faith perspectives.
Relevance to clinical practice
Although hospice care is well established internationally, many families experience end‐of‐life care in acute hospital settings. Nurses usually get to know families well during this time; however, the demands of the clinical environment place restrictions on family care and perceptions of lack of communication, limited support and/or limited sensitivity can compound families' suffering. Consideration of families' spiritual needs can help to support families during this time. Nurses are ideally placed for this and can anticipate and plan for patient and family needs in this regard, or refer to a specialist, such as the Healthcare Chaplain.
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