Employment of individuals with haemophilia in the Netherlands

Social participation of patients with hemophilia in the Netherlands

“…13 In the present study, overall employment was 70%. Apparently, since 1985 the social situation of hemophilia patients has improved.…”

Social participation of patients with hemophilia in the Netherlands

“…13 In the present study, overall employment was 70%. Apparently, since 1985 the social situation of hemophilia patients has improved.…”

Risk of major comorbidities among workers with hemophilia

“…[ 21 , 22 ] After the introduction of treatment with CFC, the unemployment rate among PWH dropped significantly, but the disease itself still had a moderate to severe physical and psychological impact on hemophiliacs. [ 23 – 26 ] Our findings showed that compared with the unemployed PWH group, the employed PWH group had more joint problems, meaning employment results in increased risk of developing joint disease among PWH, especially for PWH with moderate and severe symptoms, who use CFC and bypassing agents. Therefore, for workers with moderate or severe hemophilia, employers should take the effect of the employees’ work, particularly with regard to job type and working hours, into consideration.…”

Occupational integration of adults with severe haemophilia (INTHEMO): A study based on the FranceCoag registry

“…Contrary to the employment situation of PwSH, their education level was higher than that of the general population. Previous studies also revealed an equivalent or higher education level for PwH in Europe and the USA 7,8,15,24–26 . The contradiction between high level of education and low employment rate may be explained by several factors such as insufficient physical abilities to compete for employment, for example, people having hemarthroses could have reduced physical mobility leading to difficulties to be employed 7,26 .…”

“…Very few studies have been dedicated to mental problems and occupational situation of PwH. Previous studies on HRQoL and psychosocial aspects of PwH 5–7,15 did not analyse the association between mental health concerns (stress, anxiety, depression) and employment, but they showed that these concerns were common among PwH, and potentially had a negative impact on work performance, leading to occupational instability. In the HERO project, physical limitations due to joint pain and functional impairment were reported to decrease employability and work performance 4,6,25,31 .…”

“…These occupations could be more suitable for PwSH, since they are at lower risk of injuries and do not require heavy physical activities. Therefore, career options of PwSH may depend on certain haemophilia‐related problems such as limited physical abilities, and also because they have great educational achievements 6,7 …”

Social participation of patients with hemophilia in the Netherlands

“…13 In the present study, overall employment was 70%. Apparently, since 1985 the social situation of hemophilia patients has improved.…”

Risk of major comorbidities among workers with hemophilia

“…[ 21 , 22 ] After the introduction of treatment with CFC, the unemployment rate among PWH dropped significantly, but the disease itself still had a moderate to severe physical and psychological impact on hemophiliacs. [ 23 – 26 ] Our findings showed that compared with the unemployed PWH group, the employed PWH group had more joint problems, meaning employment results in increased risk of developing joint disease among PWH, especially for PWH with moderate and severe symptoms, who use CFC and bypassing agents. Therefore, for workers with moderate or severe hemophilia, employers should take the effect of the employees’ work, particularly with regard to job type and working hours, into consideration.…”

Occupational integration of adults with severe haemophilia (INTHEMO): A study based on the FranceCoag registry

“…Contrary to the employment situation of PwSH, their education level was higher than that of the general population. Previous studies also revealed an equivalent or higher education level for PwH in Europe and the USA 7,8,15,24–26 . The contradiction between high level of education and low employment rate may be explained by several factors such as insufficient physical abilities to compete for employment, for example, people having hemarthroses could have reduced physical mobility leading to difficulties to be employed 7,26 .…”

“…Very few studies have been dedicated to mental problems and occupational situation of PwH. Previous studies on HRQoL and psychosocial aspects of PwH 5–7,15 did not analyse the association between mental health concerns (stress, anxiety, depression) and employment, but they showed that these concerns were common among PwH, and potentially had a negative impact on work performance, leading to occupational instability. In the HERO project, physical limitations due to joint pain and functional impairment were reported to decrease employability and work performance 4,6,25,31 .…”

“…These occupations could be more suitable for PwSH, since they are at lower risk of injuries and do not require heavy physical activities. Therefore, career options of PwSH may depend on certain haemophilia‐related problems such as limited physical abilities, and also because they have great educational achievements 6,7 …”

Social participation of patients with hemophilia in the Netherlands

“…13 In the present study, overall employment was 70%. Apparently, since 1985 the social situation of hemophilia patients has improved.…”

Risk of major comorbidities among workers with hemophilia

“…[ 21 , 22 ] After the introduction of treatment with CFC, the unemployment rate among PWH dropped significantly, but the disease itself still had a moderate to severe physical and psychological impact on hemophiliacs. [ 23 – 26 ] Our findings showed that compared with the unemployed PWH group, the employed PWH group had more joint problems, meaning employment results in increased risk of developing joint disease among PWH, especially for PWH with moderate and severe symptoms, who use CFC and bypassing agents. Therefore, for workers with moderate or severe hemophilia, employers should take the effect of the employees’ work, particularly with regard to job type and working hours, into consideration.…”

Occupational integration of adults with severe haemophilia (INTHEMO): A study based on the FranceCoag registry

“…Contrary to the employment situation of PwSH, their education level was higher than that of the general population. Previous studies also revealed an equivalent or higher education level for PwH in Europe and the USA 7,8,15,24–26 . The contradiction between high level of education and low employment rate may be explained by several factors such as insufficient physical abilities to compete for employment, for example, people having hemarthroses could have reduced physical mobility leading to difficulties to be employed 7,26 .…”

“…Very few studies have been dedicated to mental problems and occupational situation of PwH. Previous studies on HRQoL and psychosocial aspects of PwH 5–7,15 did not analyse the association between mental health concerns (stress, anxiety, depression) and employment, but they showed that these concerns were common among PwH, and potentially had a negative impact on work performance, leading to occupational instability. In the HERO project, physical limitations due to joint pain and functional impairment were reported to decrease employability and work performance 4,6,25,31 .…”

“…These occupations could be more suitable for PwSH, since they are at lower risk of injuries and do not require heavy physical activities. Therefore, career options of PwSH may depend on certain haemophilia‐related problems such as limited physical abilities, and also because they have great educational achievements 6,7 …”