El protagonismo de la familia en la atención temprana de niños y niñas con Síndrome de Down, Chile

Abstract

Se presenta un modelo de intervención en atención temprana en niños y niñas con SD, inscribiéndose en el enfoque de derechos y la perspectiva de la educación inclusiva en primera infancia. Para abordar las necesidades educativo-sanitarias especiales de estos niños y niñas, de entre 0 y 4 años, se diseña un programa de intervención asociado al grado de discapacidad cognitiva-afectiva-relacional previamente diagnosticado. El seguimiento se desarrolla en un taller de acompañamiento con progenitores y en atenciones con los niños y niñas en un centro universitario de atención temprana. Este programa entrega a la familia herramientas para constituirse en agentes activos de cuidado en el proceso de desarrollo y aprendizaje de sus hijos e hijas. Se evidencian sus resultados y las propuestas de mejora que provienen de progenitores y cuidadores. Palabras claveAtención temprana, Síndrome de Down, enfoque de derechos, discapacidad, familia. . l a t i n o a m . c i e n c . s o c . n i ñ e z j u v. · Vo l . 1 7, N o . 2 , j u l . -d i c . d e 2 0 1 9 E -I S S N : 2 0 2 7 -7 6 7 9 · h t t p : / / d x . d o i . o r g / 1 0 . 1 1 6 0 0 / 1 6 9 2 7 1 5 x . 1 7 2 0 7 REPORTE DE CASO paola.andreucci@ugm.cl The role of the family in the early care of children with Down's Syndrome, Chile Abstract (descriptive)An intervention model for Early Childhood Assistance (ECA) is presented for children with Down's Syndrome. This is based on a human rights approach and an inclusive early childhood education perspective. To address the special educational and health needs of children with Down's Syndrome between the ages of 1 and 4 years, an intervention program based on the previously diagnosed degree of cognitive-affective-relational disability was designed. The follow-up session is carried out during a workshop with parents and in a practical session with the children at an ECA university center. This program gives families tools to become active agents in the process of their children's learning and development . The results of this work and the improvement proposals developed by the parents and caregivers themselves are described in the article.

Conocimiento y percepción sobre salud oral de cuidadores de personas con Síndrome de Down: Una revisión exploratoria

“…From a biopsychosocial perspective, together families and caregivers hold a foremost role as a social determinant because, among their tasks, they must provide preventive and promotion care in oral health, especially when they take care of people with disabilities, such as those with Down Syndrome (DS) (5,6). erefore, the knowledge of caregivers could impact both the execution of dental treatments and the success of oral health interventions and maintenance of those they look aer (7).…”

“…Due to the high probability of developing oral pathologies, prevention and promotion at an early age can be key to avoiding irreparable long-term damage (5,6). erefore, recognizing caregivers' knowledge and perception on this condition could be of signicant help for the treating dentist to implement educational plans that are consistent with the needs of each patient and their family.…”