Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review

Vandepitte, Sophie; Noortgate, Nele Van Den; Putman, Koen; Verhaeghe, Sofie; Verdonck, Caroline; Annemans, Lieven

doi:10.1002/gps.4504

Cited by 149 publications

(154 citation statements)

References 48 publications

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“…As described, support for family caregivers is an important part of dementia care, and providing family caregivers with sufficient information and support was highlighted as one of WHO's five key principles for good dementia care (WHO, 2016a). The research describes respite initiatives as a supportive service provided in or outside the home to give the informal caregiver a temporary relief or break from caregiver duties (Mason et al, 2007;Neville, Beattie, Fielding & MacAndrew, 2015;Vandepitte et al, 2016 centres is classed as a type of residential-based respite. Respite care provided at institutions or day care centres is the most common form of respite for the elderly (Vandepitte et al, 2016).…”

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

“…The research describes respite initiatives as a supportive service provided in or outside the home to give the informal caregiver a temporary relief or break from caregiver duties (Mason et al, 2007;Neville, Beattie, Fielding & MacAndrew, 2015;Vandepitte et al, 2016 centres is classed as a type of residential-based respite. Respite care provided at institutions or day care centres is the most common form of respite for the elderly (Vandepitte et al, 2016). In Norway, respite is offered to family caregivers with elderly relatives who live at home, including people with dementia, mainly as rolling stays (days or weeks) in a nursing home and/or as a result of a municipal decision to provide day care at a day care centre or nursing home.…”

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

“…The summary concludes that more research is needed in the field (Reinar et al, 2011). (Ishizaki J, 2002) The results from the studies in table 2.2 will be described in more detail here with results from other studies taken from the review study: Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review (Vandepitte et al, 2016).…”

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

“…This may indicate that respite at day care centres has a greater impact than institutional respite. It is difficult to determine whether respite at day care centres has a more positive effect on the family caregiver's well-being compared to other health services, and summarized research emphasizes the need for further investigation to elicit more knowledge on the impact of specific respite measures (Fields, Anderson & Dabelko-Schoeny, 2012;Vandepitte et al, 2016).…”

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

“…Other explanations may be that family caregivers who are offered respite through day care centres are under more strain than other family caregivers, or that the day care does not offer a sufficient number of days and therefore the respite does not have a sufficient effect (Vandepitte et al, 2016). …”

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

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The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Tretteteig

Vatne

Rokstad

2015

Aging & Mental Health

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Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

Section: Support and Respite For Family Caregiversmentioning

confidence: 99%

See 3 more Smart Citations

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

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Association Between New-Onset Medicaid Home Care and Family Caregivers’ Health

et al. 2021

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IMPORTANCE More than 17 million people in the US provide uncompensated care for adults with physical or cognitive limitations. Such caregiving is associated with worse mental and physical health, yet little research has investigated how publicly funded home care might ameliorate these harms. OBJECTIVE To investigate the association between Medicaid home care services and family caregivers' health. DESIGN, SETTING, AND PARTICIPANTS This longitudinal cohort study used data from the 1996 to 2017 Medical Expenditures Panel Survey. Data on all household members were collected in 5 interviews over 2 years. Person-level difference-in-difference models were used to isolate withinperson changes associated with new onset of Medicaid home care. The Medical Expenditures Panel Survey longitudinal data sets included 331 202 individuals (approximately 10% excluded owing to loss to follow-up). Adult (age Ն21 years) members of households that contained at least 1 person with limited activities of daily living were included in our study. The analysis itself was performed from March to August of 2020. EXPOSURES New onset of regular (Ն1 time per month) Medicaid home care in the household.MAIN OUTCOMES AND MEASURES Self-rated mental and physical health (planned prior to beginning the study). RESULTSThe study population was 14 013 adults; 7232 were "likely caregivers," or nondisabled adult coresidents of someone with activities of daily living limitations. Overall, 962 likely caregivers were ever exposed to Medicaid home care in the household; for 563, we observed the onset. Of likely caregivers exposed to Medicaid home care, 479 (50%) were women; 296 (31%) were White non-Hispanic, 309 (31%) were Hispanic or Latinx, and 279 (29%) were Black non-Hispanic individuals, respectively; 326 (34%) had less than a high school education; and 300 (31%) were in or near poverty. Median age of participants was 51 (interquartile range, 39-62) years. New-onset Medicaid home care was associated with a 0.08 standard deviation improvement in likely caregivers' self-rated mental health (95% CI, 0.01-0.14; P = .02) measured 1 to 6 months after onset, equivalent to a 3.39% improvement (95% CI, 0.05%-6.33%) over their average preonset mental health. No association with self-rated physical health was found (<0.001 standard deviations; 95% CI, −0.06 to 0.06; P = .99). CONCLUSIONS AND RELEVANCEIn this cohort study, Medicaid home care was associated with improvement in caregiver self-rated mental health, but not with any short-term change in self-rated physical health. When evaluating the social value of home care programs, policy makers should consider spillover benefits to caregivers.

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Postdischarge Caregiver Burden Among Family Caregivers of Older Trauma Patients

et al. 2023

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ImportanceCaregiver burden, characterized by psychological distress and physical morbidity, affects more than 50 million family caregivers of older adults in the United States. Risk factors for caregiver burden among caregivers of older trauma patients have not been well characterized.ObjectiveTo characterize postdischarge caregiver burden among caregivers of older trauma patients and identify targets that can inform interventions to improve their experience.Design, Setting, and ParticipantsThis study used a repeated cross-sectional design. Participants were family caregivers for adults 65 years or older with traumatic injury who were discharged from 1 of 2 level I trauma centers. Telephone interviews were conducted at 1 month and 3 months postdischarge with family caregivers (identified by the patient as family or friends who provided unpaid care). Admissions occurred between December 2019 and May 2021, and data were analyzed from June 2021 to May 2022.ExposureHospital admission for geriatric trauma.Main Outcome and MeasuresHigh caregiver burden was defined by a score of 17 or higher on the 12-item Zarit Burden Interview. Caregiver self-efficacy and preparedness for caregiving were assessed via the Revised Scale for Caregiving Self-Efficacy and Preparedness for Caregiving Scale, respectively. Associations between caregiver self-efficacy, preparedness for caregiving, and caregiver burden were tested via mixed-effect logistic regression.ResultsThere were 154 family caregivers enrolled in the study. Their mean (SD) age was 60.6 (13.0) years (range, 18-92 years), 108 of 154 were female (70.6%). The proportion of caregivers experiencing high burden (Zarit Burden Interview score ≥17) was unchanged over time (1 month, 38 caregivers [30.9%]; 3 months, 37 caregivers [31.4%]). Participants with lower caregiver self-efficacy and preparedness for caregiving were more likely to experience greater caregiver burden (odds ratio [OR], 7.79; 95% CI, 2.54-23.82; P &lt; .001; and OR, 5.76; 95% CI, 1.86-17.88; P = .003, respectively).Conclusion and RelevanceThis study found that nearly a third of family caregivers of older trauma patients experience high caregiver burden up to 3 months after the patients’ discharge. Targeted interventions to increase caregiver self-efficacy and preparedness may reduce caregiver burden in geriatric trauma.

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Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review

Cited by 149 publications

References 48 publications

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Association Between New-Onset Medicaid Home Care and Family Caregivers’ Health

Postdischarge Caregiver Burden Among Family Caregivers of Older Trauma Patients

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