Effect of health literacy on the quality of life of older patients with long-term conditions: a large cohort study in UK general practice

Panagioti, Maria; Skevington, Suzanne M.; Hann, Mark; Howells, Kelly; Blakemore, Amy; Reeves, David; Bower, Peter

doi:10.1007/s11136-017-1775-2

Cited by 69 publications

(60 citation statements)

References 61 publications

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“…However, in our study, health literacy showed a paradoxical effect, as critical health literacy decreased the likelihood of achieving adequate mental health perception. In accordance with previous research, critical health literacy should predict more positive outcome, such as self-care and HRQoL [24,46,47]. In our study, we reported that patients with higher critical thinking abilities about their chronic treatment (higher levels of critical health literacy) reported lower levels of mental health perception.…”

Section: Discussionsupporting

confidence: 91%

Determinants of health-related quality of life: a cross-sectional investigation in physician-managed anticoagulated patients using vitamin K antagonists

Magon

Arrigoni

Moia

et al. 2020

Health Qual Life Outcomes

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Background: Literature has paid little attention in describing the specific contribution of each modifiable and nonmodifiable characteristics on health-related quality of life (HRQoL) in physician-managed anticoagulated patients using vitamin K antagonists (VKAs). To describe how patients' treatment-specific knowledge, health literacy, treatment beliefs, clinical, and socio-demographic characteristics influence HRQoL in Italian physician-managed anticoagulated patients using VKAs. Methods: Cross-sectional multicentre study with a consecutive sampling strategy, enrolling 164 long-term anticoagulated patients. Clinical and socio-demographic characteristics were collected from electronic medical records. Valid and reliable questionnaires were used to collect patients' treatment-specific knowledge, health literacy, beliefs about VKAs, physical and health perceptions. Results: Obtaining and understanding health information (i.e., communicative health literacy) positively predicts both adequate mental (OR adjusted = 10.9; 95%CI = 1.99-19.10) and physical (OR adjusted = 11.54; 95%CI = 1.99-34.45) health perceptions. Conversely, the ability to perform proper health decision making (i.e., critical health literacy) was associated with lower rates of adequate mental health perception (OR adjusted = 0.13; 95%CI = 0.03-0.63). Further, age negatively predicted physical health perception (OR adjusted = 0.87; 95%CI = 0.81-0.93). Conclusions: Health literacy plays an interesting role in predicting HRQoL. The relationship between critical health literacy and mental health perception could be influenced by some psychological variables, such as distress and frustration, which could be present in patients with higher levels of critical health literacy, as they could be more inclined for self-monitoring. For this reason, future research are needed to identify the most suitable patients' profile for each OAC-management model, by longitudinally describing the predictive performance of each modifiable and non-modifiable determinant of HRQoL.

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Section: Discussionsupporting

confidence: 91%

Determinants of health-related quality of life: a cross-sectional investigation in physician-managed anticoagulated patients using vitamin K antagonists

Magon

Arrigoni

Moia

et al. 2020

Health Qual Life Outcomes

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“…These results are consistent with results of previous studies of other chronic illnesses in which better personal control and illness perception were associated with higher physical QOL . Better health literacy and knowledge about the disease and its treatment can improve QOL in patients with chronic diseases …”

Section: Discussionsupporting

confidence: 91%

The impact of illness perception and socio‐clinico‐demographic factors on perceived quality of life in children and adolescents with thalassemia intermedia

Atwa

Wahed

2019

Pediatric Blood & Cancer

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Background/objectives β‐Thalassemia intermedia (β‐TI) accounts for up to one‐fourth of β‐thalassemia patients. Evaluating and improving quality of life (QOL) should be a goal in β‐TI follow‐up and management strategies. Patients’ perceptions of their illness and its treatment may impact their QOL. This study aimed to evaluate QOL and the factors that affect it in children with β‐TI and to determine the impact of the patients’ and their mothers’ perceptions of the illness on patients’ QOL. Design/methods This was a case–control study. A total of 143 children and adolescents (71 β‐TI patients and 72 healthy controls) were enrolled. QOL, as perceived by the children and their mothers, was assessed using the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scale. Perceptions of the illness by the mothers and children were assessed using the Brief Illness Perceptions Questionnaire (Brief IPQ). The patients’ clinical and sociodemographic data were extracted from their medical records. Results The controls had higher QOL scores in nearly all domains (P < 0.01). The patients and mothers who had higher illness perception scores had better QOL scores (P < 0.01). Patient age and serum ferritin levels correlated negatively with QOL, while mean hemoglobin levels correlated positively. The use of hydroxyurea in treatment and high illness perception were independent predictors of better QOL. Conclusion QOL is significantly affected in β‐TI patients; maintaining a suitable hemoglobin level and standard levels of body iron are associated with better QOL. Patients’ and their mothers’ perceptions of the illness play an important role in QOL.

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“…Next, a little over two‐thirds of all eligible patients (65%) agreed to take part in this study. This response rate is high compared with the response rates for previous studies using similar methods within chronic care …”

Section: Discussionmentioning

confidence: 65%

“…In contrast, a large cohort study of general practices in the UK found that poor HL was associated with lower QoL scores (i.e. physical, psychological, social relationships and environment) . In light of these conflicting results, it seems possible that the relationship between HL and QoL depends on certain aspects such as specific chronic diseases, cultural characteristics or other aspects of QoL.…”

Section: Discussionmentioning

confidence: 93%

Health literacy: a new piece of the puzzle in psoriasis care? A cross‐sectional study

Larsen¹,

Strumse

Borge³

et al. 2019

Br J Dermatol

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Summary Background Health literacy (HL) – the ability to seek, understand and utilize health information – is important for good health. Suboptimal HL has been associated with poorer health outcomes in other chronic conditions, although this has not previously been studied in patients with psoriasis. Objectives To investigate the HL strengths and weaknesses of a cohort of patients with moderate‐to‐severe psoriasis. Another aim was to examine possible associations between patients’ quality of life, their demographic, clinical and self‐management characteristics, and dimensions of HL. Methods A cross‐sectional study was conducted. Data were collected from a cohort of patients with psoriasis who had received climate helio therapy from 2011 to 2016 (n = 825). HL was assessed by the Health Literacy Questionnaire (HLQ). The association between HL domains, demographic, clinical and self‐management variables were analysed using bivariate correlation and a four‐step linear multiple regression model. Results The scores on all HLQ dimensions indicated lower health literacy than other populations. The linear regression models showed a significant association between HL, quality of life and self‐management variables, with higher HL predicting higher quality of life, self‐efficacy and psoriasis knowledge. Sex, educational attainment, age and disease severity had less influence on health literacy. Conclusions Improving HL may be a useful strategy for reducing disparities in self‐management skills for patients with psoriasis. Interventions that aim to reduce disease severity and increase psoriasis knowledge, self‐efficacy and quality of life may positively increase HL.

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Effect of health literacy on the quality of life of older patients with long-term conditions: a large cohort study in UK general practice

Cited by 69 publications

References 61 publications

Determinants of health-related quality of life: a cross-sectional investigation in physician-managed anticoagulated patients using vitamin K antagonists

Determinants of health-related quality of life: a cross-sectional investigation in physician-managed anticoagulated patients using vitamin K antagonists

The impact of illness perception and socio‐clinico‐demographic factors on perceived quality of life in children and adolescents with thalassemia intermedia

Health literacy: a new piece of the puzzle in psoriasis care? A cross‐sectional study

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