Does an intervention designed to improve self‐management, social support and awareness of palliative‐care address needs of persons with heart failure, family caregivers and clinicians?

Abstract

These findings add to the growing evidence of the feasibility and acceptability of programs that address care values and preferences, and care planning. The iSCIP can be used as a guide for developing interventions and software applications, which involve both partners in care and palliative-care discussions.

The development and pilot study of a nurse-led HOMe-based HEart failure self-Management Programme (the HOM-HEMP) for patients with chronic heart failure, following Medical Research Council guidelines

“…However, only a few studies have adopted homebased self-management psychosocial education intervention with the integration of mHealth for patients with CHF. 37,38 The results from the current pilot testing showed that the HOM-HEMP was feasible and potentially effective in improving patient's self-care management, psychological outcomes and HRQoL.…”

Patients’ Perceptions of mHealth Apps: Meta-Ethnographic Review of Qualitative Studies

“…Most of the articles reviewed included populations inhabiting developed countries, apart from one that focused on a developing country (South Africa). Most of these qualitative studies focused on the United States [21,23-25,27,31,34,36,41,43,45,47,48,54] and the United Kingdom [30,32,35,42,53,61]. Other countries included were the Netherlands [22,33,44], Denmark [26,55,58], Sweden [38,40,49], Australia [28,29,46], Canada [50,56], South Africa [62], Singapore [59], China [63], Germany [37], Ireland [57], Belgium [60], Spain [39], and Switzerland [52].…”

“…Most of the apps under consideration were tailored to deal with chronic diseases: cancer [22,30,33,38,40,56,63]; HIV [23,24,31,45,48]; diabetes [28,50,55]; hypertension and cardiovascular diseases [43,54,57]; chronic kidney disease [27,42]; cystic fibrosis [21,51]; chronic pain [26,58]; juvenile arthritis [35,61]; brain and spinal cord anomalies [34]; multiple sclerosis [52]; chronic illnesses, in general [25,62]; and mental health disorders [32,36,39,41,46,47,53,60]. Other apps were specific to pregnancy/obstetric care [29,37,44,59], and one was for postoperative care [49].…”

“…Some patients found that they had problems with their connection to these apps and other user interface issues. The frustration of not being able to connect with the apps was found to be particularly prevalent among older adults and the elderly, who frequently have poor eyesight and a lower level of digital literacy than other age groups [25,43,57,62]. The elderly patients included in the studies reviewed consisted of two groups: those wanting to acquire digital skills in order to be able to engage with these apps and those having no desire to improve their digital skills for this purpose [57].…”

Effects of a family dyadic partnership program for people with hypertension in a rural community: A pilot randomised controlled trial

“…Shared care consisted of 3 components, including communication, decision‐making and reciprocity 10 . The relationship of SCM elements and individual self‐care, self‐efficacy, quality of dyadic relationship and emotional well‐being of patients with heart disease has been well evidenced in research 10,19,22 . SCM‐based interventions have also shown significant positive effects on patients' self‐care, quality of life and dyadic relationship in the case of chronic illness 19,22 .…”