Disease isolation: The challenges faced by mothers living with multiple myeloma in rural and regional Australia

Wagland, Kerry; Levesque, Janelle Veronica; Connors, John

doi:10.1016/j.ejon.2014.10.003

Cited by 12 publications

(12 citation statements)

References 32 publications

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“…Rural mothers described the preparation required for being away from home to attend their treatment and appointments as arduous; an issue also identified by other studies (Wagland et al, 2015). Having to organise multiple appointments, accommodation, travel arrangements, travel bookings, packing medical supplies, and meal preparation prior to travelling all contributed to high levels of stress and disruption to family life making the journey much more difficult (Wagland et al, 2015;Bettencourt et al, 2007;Clavarino et al, 2002).…”

Section: Discussionmentioning

confidence: 94%

Conquering the great divide: Rural mothers of children with chronic health conditions accessing specialist medical care for their children

et al. 2020

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Background: Globally, the number of children with chronic health conditions (CHCs) is increasing and mothers are mostly responsible for their care. Aim: Few studies have focused on rural mothers and their experiences of sourcing health care for their children who have CHCs. The purpose of this study was to explore these experiences. Method: Using a phenomenological approach, semi-structured interviews were conducted in early 2018. The Consolidated criteria for Reporting Qualitative research (COREQ) guidelines were followed. Sixteen rural mothers were interviewed regarding their experiences of accessing health care to provide optimal management of their children's CHC. Findings: Thematic analysis of resulting data revealed the overarching theme 'Conquering the great divide'. From this overarching theme, four themes emerged. This paper focuses on the first theme, 'Heading to the big smoke: access'. Discussion: Rural mothers felt challenged accessing health care for their children in the major cities whilst also maintaining routine family life back home. Conclusion: Understanding these rural women's experiences could assist health care professionals to develop strategies to facilitate rural mothers accessing services for their children with a CHC.

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Section: Discussionmentioning

confidence: 94%

Conquering the great divide: Rural mothers of children with chronic health conditions accessing specialist medical care for their children

et al. 2020

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“…The participants were practically and psychologically prepared to cope with being alone, which was reported as a secondary problem, perceived as less important than protecting themselves by keeping others at a safe distance. Patients not only believed that they had to go through protective isolation (Campbell, 1999), but also selfimposed it to reduce the risk of dangerous infections (Wagland, Levesque, & Connors, 2015). Several studies have found that when patients undergoing HSCT are cared for in protective isolation, they experience feelings of loneliness and decreased social support, together with an impaired quality of life and more depression (El-Jawahri et al, 2015;Tecchio et al, 2013;Xuereb & Dunlop, 2003;Zamanzadeh, Valizadeh, Sayadi, Taleghani, & Jeddian, 2013).…”

Section: Discussionmentioning

confidence: 99%

Being in protective isolation following autologous haematopoietic stem cell transplantation: A phenomenological study

Biagioli

Piredda

Annibali

et al. 2017

Journal of Clinical Nursing

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“…While there has been some research on the topic of 'cancer commuting' in general (though even here researchers Wagland et al, 2015) have noted the limited nature of the work), this is not the case for head and neck carers. This is an important absence as the findings of previous studies may not necessarily be transferable on to this population.…”

Section: Purposementioning

confidence: 99%

“…Commuting may be especially difficult when carers have other commitments that they need to meet (Lockie et al, 2010). Older cancer carers might find commuting particularly challenging (Wagland et al, 2015). However, carers can extract benefits from commuting.…”

Section: Introductionmentioning

confidence: 99%

“…This is especially the case for people who commute on an ongoing basis (Lockie et al, 2010). Commuting can also remove patients and carers from sources of support (Davis et al, 1998;Martin-McDonald et al, 2003), socially and geographically isolating them (Wagland et al, 2015). Travel can be an ordeal in itself, described as a 'sheer hardship' (Hegney et al, 2005;McGrath et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

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In a bad place: Carers of patients with head and neck cancer experiences of travelling for cancer treatment

Balfe

Keohane

Brien

et al. 2017

European Journal of Oncology Nursing

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms In a bad place: head and neck cancer carers' experiences of travelling for cancer treatment Purpose: To explore the effect that treatment-related commuting has on head and neck cancer carers.Methods: Semi-structured interviews, thematically analysed, with 31 carers.Results: Treatment-related commuting had a considerable impact on head and neck carers, both in practical terms (economic costs, disruption) and also in psychological terms. Many head and neck carers described becoming distressed by their commute. Some carers from large urban cities appeared to have hidden commuting burdens. Some carers respond to commuting stress by 'zoning out' or becoming 'like zombies'.Conclusions: Treatment-related travel for head and neck cancer can have significant practical and psychological impacts. Health professionals should be aware of the impacts that commuting can have on head and neck caregivers. Health services may be able to take practical steps, such as providing subsidized parking, to address head and neck carergivers' difficulties.

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Disease isolation: The challenges faced by mothers living with multiple myeloma in rural and regional Australia

Cited by 12 publications

References 32 publications

Conquering the great divide: Rural mothers of children with chronic health conditions accessing specialist medical care for their children

Conquering the great divide: Rural mothers of children with chronic health conditions accessing specialist medical care for their children

Being in protective isolation following autologous haematopoietic stem cell transplantation: A phenomenological study

In a bad place: Carers of patients with head and neck cancer experiences of travelling for cancer treatment

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