Diaphragm pacing in congenital central hypoventilation syndrome: A safe and final tool

Applying diaphragm pacing in previously tracheostomised children with congenital central hypoventilation syndrome is a safe tool

“…To the Editor, We thank Drs Alibrahim and Esquinas for the possibility to clarify some aspects of our strategy for applying DP in tracheotomised patients. 1,2 As stated in our brief report, all patients who had tracheostomy were decannulated after DP implantation, and DP was applied as a ventilatory mode during sleep. The variation in the transition time from DP on tracheostomy to DP after decannulation was dependent on the assessment by the ear nose and throat (ENT) surgeon at the respective centres.…”

“…We thank Drs Alibrahim and Esquinas for the possibility to clarify some aspects of our strategy for applying DP in tracheotomised patients 1,2 …”

Issue highlights June 2022

“…Tsolakis et al 7 studied 23 patients with CCHS who received diaphragm pacing implants at a mean age of 9.1 years and reports that 20 made the successful transition from non‐invasive ventilation. The authors also respond 8 to questions from Alibrahim and Esquinas about the strategies for tube removal and how families were helped to adjust to the new technology 9 …”