Developmentally appropriate healthcare for young people: a scoping study

Farré, Albert; Wood, Victoria; Rapley, Tim; Parr, Jeremy; Reape, Debbie; McDonagh, Janet E.

doi:10.1136/archdischild-2014-306749

Cited by 47 publications

(54 citation statements)

References 45 publications

(92 reference statements)

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“…We identified five dimensions which led to a working definition of DAH. 27,28 DAH recognises the changing biopsychosocial developmental needs of young people and the need to empower young people by embedding health education and health promotion in consultations. In operational terms, DAH focuses on the approach of healthcare professionals to the engagement of each young person and their parents, alongside the structure of the organisations in which care takes place.…”

Section: Implications Of the Research Programmementioning

confidence: 99%

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

et al. 2020

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Background During transition from children's to adults' healthcare, young adults with long-term conditions may show delays in psychosocial development compared to their peers without long-term conditions, and deterioration of their conditions' medical control. Methods This paper integrates the findings, already published in 10 separate papers, of a 5-year transition research programme. Implications There is an important role for funders (commissioners) of adults' services to fund transitional healthcare, in addition to funders of children's services who currently take responsibility.

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Section: Implications Of the Research Programmementioning

confidence: 99%

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

et al. 2020

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“…This immediately shows that the provider is engaging with the patient as a distinct person, rather than using a "one size fits all" approach. Such personalized approaches are desirable in all health care but especially for adolescents in transition where "therapeutic" relationships, rapport, and trust are important as part of Developmentally Appropriate Healthcare [39,40]. Personalization should hopefully lead to more engagement and satisfaction with services, greater compliance with treatment and in turn, improved service use and health outcomes in adulthood.…”

mentioning

confidence: 99%

Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

Hislop

Mason

Parr

et al. 2016

Journal of Adolescent Health

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Purpose-This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services.Methods-Q methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts).Results-Four distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition."Conclusions-Successful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, * Address correspondence to: Jenni Hislop, M.Sc., Newcastle University, Institute of Health and Society, Newcastle upon Tyne, United Kingdom. jenni.hislop@newcastle.ac.uk (J. Hislop). Conflicts of Interest:The authors have no conflicts of interest or financial disclosures to report. Disclaimer:The views expressed in this article are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health. Europe PMC Funders GroupAuthor Manuscript J Adolesc Health. Author manuscript; available in PMC 2017 January 19. Europe PMC Funders Author ManuscriptsEurope PMC Funders Author Manuscripts and more specifically the point of transfer, leading to effective and efficient engagement with adult care. KeywordsTransition; Q methodology; Chronic conditions; Shared viewpointsTransition is defined as "the purposeful, planned process that addresses the medical, psychosocial, educational, and vocational needs of adolescents and young adults with chronic medical and physical conditions as they move from child-centred to adult-oriented health care systems" [1]. Transfer is the event when responsibility for health care is passed from a pediatric to an adult provider. Some young people find transition difficult [2]. Suboptimal or needs-inappropriate transition are well documented nationally and internationally [3][4][5][6][7] and include poorer long-term health, social, and educational outcomes [8][9][10][11]. To improve services, policy-makers, and clinicians need to understand young people's approaches to their transitional care and what they view as important. Much of the evidence about young people's views on transition is specialty or co...

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“…European countries should not only invest in more SHS professionals but also in adequately trained SHS professionals to robustly address the specific needs of school-aged children and adolescents (Ambresin, Bennett, Patton, Sanci, & Sawyer, 2013;Committee on Adolescence, 2008;Farre et al, 2015;Michaud & Baltag, 2015;Michaud, Weber, Namazova-Baranova, & Ambresin, 2018).…”

Section: Recommendationmentioning

confidence: 99%

School Health Services

Jansen¹,

Vervoort²,

Visser³

et al. 2019

Issues and Opportunities in Primary Health Care for Children in Europe

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Models of Child Health Appraised (MOCHA) defines school health services (SHSs) as those that exist due to a formal arrangement between educational institutions and primary health care. SHSs are unique in that they are designed exclusively to address the needs of children and adolescents in this age group and setting. We investigated SHSs have been provided to schools and how they contribute to primary healthcare services for school children. We did this by mapping the national school health systems against the standards of the World Health Organization, and against a framework measuring the strength of primary care, adapting this from an existing, adult-focused framework. We found that all but two countries in the European Union and European Economic Area have SHSs. There, however, remains a need for much greater investment in the professional workforce to run the services, including training to ensure appropriateness and acceptability to young people. Greater collaboration between SHSs and primary care services would lead to better coordination and the potential for better health (and educational) outcomes. Involving young people and families in the design of SHSs and as participants in its outputs would also improve school health.

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Developmentally appropriate healthcare for young people: a scoping study

Cited by 47 publications

References 45 publications

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

Facilitating transition of young people with long-term health conditions from children’s to adults’ healthcare services – implications of a 5-year research programme

Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services

School Health Services

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