Development of an Online Resource for People Bereaved by Suicide: A Mixed-Method User-Centered Study Protocol

Leaune, Édouard; Lestienne, Laurène; Grandgenèvre, Pierre; Morgiève, Margot; Vaïva, Guillaume; Vieux, Maxime; Chalancon, Benoît; Laplace, Nathalie; Haesebaert, Julie; Poulet, Emmanuel

doi:10.3389/fpsyt.2021.770154

Cited by 6 publications

(6 citation statements)

References 45 publications

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“…There is some evidence to support this hypothesis, and several studies have reported an increased suicide risk and impaired mental health on bereavement anniversaries [30][31][32][33][34], while a recent study did not nd any evidence of an elevated suicide risk around anniversaries in people bereaved by suicide [35]. Digital resources, such as memorial-based websites, may offer new ways to contact and support bereaved people [12,17] and to implement innovative and adaptive prevention strategies to reduce the deleterious effects of bereavement anniversaries on mental health.…”

Section: Discussionmentioning

confidence: 99%

The use of social media after bereavement by suicide: results from a French online survey

LEAUNE,

ROUZE,

LESTIENNE

et al. 2024

Preprint

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Background According to recent research, the Internet and social media are shaping and changing how we die and mourn. However, the use of social media after bereavement by suicide remains poorly understood. Thus, emerging research is needed to better assess the role that social media can play after bereavement by suicide. The objective of our study was to assess the use of social media in French people bereaved by suicide and to collect their expectations toward social media. Method We conducted a national cross-sectional online survey including French people bereaved by suicide assessing their use of social media after the death of their relative. All adults bereaved by suicide were eligible to participate in the study. An online 26-item questionnaire collected sociodemographic and loss-related characteristics and evaluated four dimensions: 1) the use of social media in daily life, 2) the perceived needs regarding suicide bereavement, 3) the use of social media associated with the suicide loss, and 4) the expectations regarding the development of an online resource for people bereaved by suicide and personal propositions regarding the development of such a resource. Results Among 401 participants, 61.6% reported using social media after the death of their relative by suicide, especially those recently bereaved, those receiving counseling and bereaved parents. The participants mainly used social media to reach peers bereaved by suicide and to memorialize, while they expected social media to help them finding information on suicide and accessing bereaved peers. Younger participants were more prone to use social media to memorialize, while bereaved partners and those bereaved by the suicide of a parent were less prone to use them with such aim. Discussion A large part of people bereaved by suicide use social media for their grief process, mainly to contact peers bereaved by suicide and to memorialize their loved one. According to or results, social media contribute to contemporary grief processes after suicide bereavement and can be seen as putative means to improve the well-being of people bereaved by suicide.

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Section: Discussionmentioning

confidence: 99%

The use of social media after bereavement by suicide: results from a French online survey

LEAUNE,

ROUZE,

LESTIENNE

et al. 2024

Preprint

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“…The ISR framework employs various design processes to build a product or design an artifact, such as a mental health online resource [ 22 , 23 ]. The protocol of the study has been exhaustively described elsewhere [ 24 , 25 ]. In this article, we describe the results of the first quantitative stage of the study, namely, the relevance cycle , which aimed to collect the use, needs and expectations of people bereaved by suicide regarding the internet and social media.…”

Section: Methodsmentioning

confidence: 99%

The use of social media after bereavement by suicide: results from a French online survey

Leaune,

Rouzé,

Lestienne

et al. 2024

BMC Psychiatry

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Background According to recent research, the Internet and social media are shaping and changing how we die and mourn. However, the use of social media after bereavement by suicide remains poorly understood. Thus, emerging research is needed to better assess the role that social media can play after bereavement by suicide. The objective of our study was to evaluate the use of social media in French people bereaved by suicide and to assess their expectations toward social media. Method We conducted a national cross-sectional online survey including French people bereaved by suicide assessing their use of social media after the death of their relative. All adults bereaved by suicide were eligible to participate in the study. An online 26-item questionnaire collected sociodemographic and loss-related characteristics and evaluated four dimensions: (1) the use of social media in daily life, (2) the perceived needs regarding suicide bereavement, (3) the use of social media associated with the suicide loss, and (4) the expectations regarding the development of an online resource for people bereaved by suicide and proposals regarding the development of such a resource. Results Among 401 participants, 61.6% reported using social media after the death of their relative by suicide, especially those recently bereaved, those receiving counseling and bereaved parents. The participants mainly used social media to reach peers bereaved by suicide and to memorialize, while they expected social media to help them finding information on suicide and accessing bereaved peers. Younger participants were more prone to use social media to memorialize, while bereaved partners and those bereaved by the suicide of a parent were less prone to use them with such aim. Discussion A large part of people bereaved by suicide use social media for their grief process, mainly to contact peers bereaved by suicide and to memorialize their loved one. According to or results, social media contributes to contemporary grief processes after suicide bereavement and can be seen as putative means to improve the well-being of people bereaved by suicide.

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“…Through exploring the relational dynamics of a community bound by a common traumatic experience, this paper expands on studies studying the communication practices of how suicide bereavement needs are expressed in online communities (Bailey, Bell, and Kennedy 2015;Bailey et al 2017;Bell, Bailey, and Kennedy 2015;Krysinska and Andriessen 2017;Leaune et al 2021;Perusse 2021).…”

Section: The Suicide Epidemic and Social Mediamentioning

confidence: 99%

“…The loss of a loved one to suicide is one of the most challenging events a person can endure. It is a loss that is often unexpected, leading to feelings of hopelessness, powerlessness, guilt, and isolation (Cerel et al 2014(Cerel et al , 2019Leaune et al 2021;Mitchell et al 2003;Neimeyer 2012;Neimeyer and Pfeiffer 1994;Shields, Kavanagh, and Russo 2017). The stigma of suicide is deeply internalized throughout social discourse (Hanschmidt et al 2016;Pitman et al 2017).…”

Section: Introductionmentioning

confidence: 99%

“…Group support is especially vital in reclaiming one's agency (Mitchell et al 2003;Neimeyer 2012;Pitman et al 2017). Research suggests that the most significant barriers to reclaiming the bereaved's agency are immense feelings of guilt and subsequent isolation felt from the bereaved's social support system (Leaune et al 2021;Pitman et al 2017). One important therapeutic intervention often utilized in clinical suicide bereavement groups to combat guilt and isolation and increase agency is narrative sharing (Neimeyer and Pfeiffer 1994).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Stories That Heal: Characterizing and Supporting Narrative for Suicide Bereavement

Doyle,

Ghosh,

Suchocki

et al. 2024

ICWSM

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Clinical group bereavement therapy often promotes narrative sharing as a therapeutic intervention to facilitate grief processing. Increasingly, people turn to social media to express stories of loss and seek support surrounding bereavement experiences, specifically, the loss of loved ones from suicide. This paper reports the results of a computational linguistic analysis of narrative expression within an online suicide bereavement support community. We identify distinctive characteristics of narrative posts (compared to non-narrative posts) in linguistic style. We then develop and validate a machine-learning model for tagging narrative posts at scale and demonstrate the utility of applying this machine-learning model to a more general grief support community. Through comparison, we validate our model's narrative tagging accuracy and compare the proportion of narrative posts between the two communities we have analyzed. Narrative posts make up about half of all total posts in these two grief communities, demonstrating the importance of narrative posts to grief support online. Finally, we consider how the narrative tagging tool presented in this study can be applied to platform design to more effectively support people expressing the narrative sharing of grief in online grief support spaces.

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Development of an Online Resource for People Bereaved by Suicide: A Mixed-Method User-Centered Study Protocol

Cited by 6 publications

References 45 publications

The use of social media after bereavement by suicide: results from a French online survey

The use of social media after bereavement by suicide: results from a French online survey

The use of social media after bereavement by suicide: results from a French online survey

Stories That Heal: Characterizing and Supporting Narrative for Suicide Bereavement

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