Development and validation of a low-literacy Chronic Obstructive Pulmonary Disease knowledge Questionnaire (COPD-Q)

Maples, Paula; Franks, Andrea S.; Ray, Shaunta’ M.; Stevens, Amy Barger; Wallace, Lorraine S.

doi:10.1016/j.pec.2009.11.020

Cited by 48 publications

(41 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Non‐CF respiratory patients ( n = 100) were recruited during their outpatient clinic appointments. In addition to CF knowledge, respirology patients also completed two other validated lung health knowledge measures: the Asthma General Knowledge Questionnaire for Adults (AGKQA), and the Chronic Obstructive Pulmonary Disease knowledge Questionnaire (COPD‐Q) . The research ethics board of the institution approved all study components and informed consent was obtained from all study participants.…”

Section: Methodsmentioning

confidence: 99%

Development and psychometric validation of a cystic fibrosis knowledge scale

et al. 2014

View full text Add to dashboard Cite

This study is an important first step in a line of research that aims to develop and empirically validate a psycho-educational adherence intervention for improving quality of life and treatment outcomes among adult CF patients. The CF knowledge scale has potential applications as a clinical teaching tool with patients and health-care providers and could be used as an outcome measure in CF educational intervention studies aimed at optimizing CF treatment knowledge, adherence and quality of life among CF patients.

show abstract

Section: Methodsmentioning

confidence: 99%

Development and psychometric validation of a cystic fibrosis knowledge scale

et al. 2014

View full text Add to dashboard Cite

show abstract

“…There exist several formulas, such as the Flesch-Kincaid readability grade level or the SMOG measure [15], but most operate on the same simple principles and use syllable and word counts in a sentence to assign a difficulty rating. The formulas have been used to test a variety of texts including patient education materials [16], injury prevention or hospice bereavement materials [17], HPV educational materials [18], informed consent forms [19] and even survey instruments [20]. Most writing guidelines, for example by the American Medical Association, advise writing at a 6th to 8th grade level.…”

Section: Factors Influencing Learning and Understandingmentioning

confidence: 99%

A user-study measuring the effects of lexical simplification and coherence enhancement on perceived and actual text difficulty

Leroy

Kauchak

Mouradi

2013

International Journal of Medical Informatics

View full text Add to dashboard Cite

Purpose Low patient health literacy has been associated with cost increases in medicine because it contributes to inadequate care. Providing explanatory text is a convenient approach to distribute medical information and increase health literacy. Unfortunately, writing text that is easily understood is challenging. This work tests two text features for their impact on understanding: lexical simplification and coherence enhancement. Methods A user study was conducted to test the features’ effect on perceived and actual text difficulty. Individual sentences were used to test perceived difficulty. Using a 5-point Likert scale, participants compared eight pairs of original and simplified sentences. Abstracts were used to test actual difficulty. For each abstract, four versions were created: original, lexically simplified, coherence enhanced, and lexically simplified and coherence enhanced. Using a mixed design, one group of participants worked with the original and lexically simplified documents (no coherence enhancement) while a second group worked with the coherence enhanced versions. Actual difficulty was measured using a Cloze measure and multiple-choice questions. Results Using Amazon’s Mechanical Turk, 200 people participated of which 187 qualified based on our data qualification tests. A paired-samples t-test for the sentence ratings showed a significant reduction in difficulty after lexical simplification (p < .001). Results for actual difficulty are based on the abstracts and associated tasks. A two-way ANOVA for the Cloze test showed no effect of coherence enhancement but a main effect for lexical simplification, with the simplification leading to worse scores (p = .004). A follow-up ANOVA showed this effect exists only for function words when coherence was not enhanced (p = .008). In contrast, a two-way ANOVA for answering multiple-choice questions showed a significant beneficial effect of coherence enhancement (p = .003) but no effect of lexical simplification. Conclusions Lexical simplification reduced the perceived difficulty of texts. Coherence enhancement reduced the actual difficulty of text when measured using multiple-choice questions. However, the Cloze measure results showed that lexical simplification can negatively impact the flow of the text.

show abstract

“…The COPD-Q [16] is a reliable tool that can be used to test disease knowledge among with patients with limited health literacy [34]. As the questionnaire is composed of only 13 simple questions with "true or false" answers, the COPD-Q can be easily translated into other languages [35].…”

Section: Discussionmentioning

confidence: 99%

“…Clinical assessments will include spirometry, bronchial dilation and induced sputum tests, fractional exhaled nitric oxide (FENO), and chest computed tomography (CT) imaging. Patient reported outcomes will include the COPD Assessment Test (CAT) [14], modified Medical Research Council (mMRC) questionnaire [15] and COPD knowledge questionnaire (COPD-Q) [16]. Data on medication type, adherence, non-drug therapies, and total COPD treatment costs will also be collected.…”

mentioning

confidence: 99%

REALizing and improving management of stable COPD in China: a multi-center, prospective, observational study to realize the current situation of COPD patients in China (REAL) – rationale, study design, and protocol

et al. 2020

View full text Add to dashboard Cite

Background: Chronic obstructive pulmonary disease (COPD) is the fifth leading cause of death in China with a reported prevalence of 8.2% people aged ≥40 years. It is recommended that Chinese physicians follow Global Initiative for Chronic Obstructive Lung Disease (GOLD) and national guidelines, yet many patients with COPD in China remain undiagnosed. Furthermore, missed diagnoses and a lack of standardized diagnosis and treatment remain significant problems. The situation is further complicated by a lack of large-scale, long-term, prospective studies of real-world outcomes, including exacerbation rates, disease severity, efficacy of treatment, and compliance of COPD patients in China.

show abstract

Development and validation of a low-literacy Chronic Obstructive Pulmonary Disease knowledge Questionnaire (COPD-Q)

Cited by 48 publications

References 13 publications

Development and psychometric validation of a cystic fibrosis knowledge scale

Development and psychometric validation of a cystic fibrosis knowledge scale

A user-study measuring the effects of lexical simplification and coherence enhancement on perceived and actual text difficulty

REALizing and improving management of stable COPD in China: a multi-center, prospective, observational study to realize the current situation of COPD patients in China (REAL) – rationale, study design, and protocol

Contact Info

Product

Resources

About