Development and Evaluation of a Whiteboard Video to Support the Education and Recruitment of Unrelated Donors for Hematopoietic Stem Cell Transplantation

Development and evaluation of checklists to support the recruitment of committed hematopoietic stem cell donors

“…5 Attrition also remains a challenge for donor registries worldwide; for example, from 2015 to 2018, 32%-40% of potential donors on the Canadian Blood Services Stem Cell Registry who were identified as potential matches for patients did not proceed with donation. 6 Similar rates of attrition have been reported from the Anthony Nolan Stem Cell Registry in the United Kingdom and the National Marrow Donor Program of the United States, with attrition noted to be higher among patients from non-White racial/ ethnic groups. 7,8 Furthermore, emerging data support the use of mismatched URDs as a graft source that greatly extends allograft access to patients who lack an 8/8 URD.…”

“…Although data on attrition are not available for Stem Cell Club registrants prior to checklist implementation, post-implementation, 30% (39/130) of registrants who were requested for verification typing withdrew due to personal reasons (n = 16) or were uncontactable (n = 22) or unlocatable (n = 1), which is on-par with data from Canadian Blood Services Stem Cell Registry showing a 32%-40% attrition rate from 2015 to 2018. 6…”

Multimedia resources to support the recruitment of committed hematopoietic stem cell donors: Perspectives of the most‐needed donors

“…We developed a 3.5‐minute whiteboard video to explain the rationale behind stem cell transplantation, principles of donor‐recipient matching, the donor registration process, and methods of donation (https://youtu.be/V4fVBtxnWfM). 37 The video was designed in collaboration with donors from the most‐needed demographic groups, donor recruiters, and experts in stem cell transplantation, as previously described 28 . Scenes depict a patient in need of stem cell transplantation (Figure 1A), metaphorical interpretations of stem cells as factories and genetic markers as barcode labels (Figure 1B,C), donors undergoing collection of stem cells from blood and bone marrow (Figure 1D,E), and an individual registering as a donor (Figure 1F).…”

“…Donor recruitment organizations have been increasingly developing multimedia to support donor recruitment efforts 30–37 . The whiteboard video is one form of multimedia that allows viewers to see drawn representations of concepts alongside explanatory narration, and its use has been linked to effective information retention, viewer engagement, and recall of health information, particularly among people with low literacy skills 38–40 .…”

“…However, there is a lack of guidance for the development of multimedia to support donor recruitment efforts. In the present study, we set out to address this gap through conducting semistructured focus groups with a cohort of stem cell donors from the most‐needed demographic groups after they had viewed the aforementioned whiteboard video 37 . Aims of the study included to understand the perspectives of potential donors on the whiteboard video, to examine the resource's impact on participants' outlook toward donation, and to generate insights relevant to the development of future whiteboard videos and related multimedia for the recruitment of committed unrelated donors.…”