Developing VISO: Vaccine Information Statement Ontology for patient education

Amith, Muhammad; Gong, Yang; Cunningham, Rachel; Boom, Julie A.; Tao, Cui

doi:10.1186/s13326-015-0016-2

Cited by 10 publications

(7 citation statements)

References 14 publications

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“…New technology-based delivery approaches with alternative presentation of “plain language” materials holds significant promise to help inform and educate parents. These approaches help address concerns outside time-constrained clinical visits and reduce time needed to absorb information [20–22]. …”

Section: Discussionmentioning

confidence: 99%

Parental experiences with vaccine information statements: Implications for timing, delivery, and parent-provider immunization communication

Frew

Chung

Fisher

et al. 2016

Vaccine

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Objective We examined Vaccine Information Statements (VIS) dissemination practices and parental use and perceptions. Methods We conducted a national online panel survey of 2603 US parents of children aged <7. Primary outcomes included reported VIS receipt, delivery timing, reading experiences, and perceived utility. Results Most parents received a VIS (77.2%; [95% CI: 74.5–79.7%]), 59.7% [56.6–62.7%] before vaccination but 14.5% [12.5–16.8%] reported receiving it after their child’s immunization; 15.1% [13.0–17.6%] were unsure of receipt status or timing; another 10.7% [9.0–12.6%] reported non-receipt of a VIS. Less than half who received a VIS before vaccination completed it before vaccination (46.2% [42.4, 50.0%]), but most who read at least some found the information useful (95.7% [93.8–97.0%]). Parents who delayed or refused at least one recommended non-influenza vaccine reported fewer opportunities to ask providers VIS questions. Conclusions Most parents report receiving VIS before vaccination as per federal guidelines. Continued effort is needed to enhance VIS distribution practice and parent-provider VIS content communication.

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Section: Discussionmentioning

confidence: 99%

Parental experiences with vaccine information statements: Implications for timing, delivery, and parent-provider immunization communication

Frew

Chung

Fisher

et al. 2016

Vaccine

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“…Addressing the medical comorbidity conditions in the EHR will require to ontologies that take into account the profound wiring of biological processes in the body. It is noteworthy that ontologies have been used for education on bioontologies [25]. A single human genome sequence constitutes a several-gigabyte data file; a seamlessly interoperability may require standards in genome compression.…”

Section: Bioinformatics-ehr Interoperabilitymentioning

confidence: 99%

Opportunities for community awareness platforms in personal genomics and bioinformatics education

Bianchi

Lió

2016

Brief Bioinform

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Precision and personalized medicine will be increasingly based on the integration of various type of information, particularly electronic health records and genome sequences. The availability of cheap genome sequencing services and the information interoperability will increase the role of online bioinformatics analysis. Being on the Internet poses constant threats to security and privacy. While we are connected and we share information, websites and internet services collect various types of personal data with or without the user consent. It is likely that genomics will merge with the internet culture of connectivity. This process will increase incidental findings, exposure and vulnerability. Here we discuss the social vulnerability owing to the genome and Internet combined security and privacy weaknesses. This urges more efforts in education and social awareness on how biomedical data are analysed and transferred through the internet and how inferential methods could integrate information from different sources. We propose that digital social platforms, used for raising collective awareness in different fields, could be developed for collaborative and bottom-up efforts in education. In this context, bioinformaticians could play a meaningful role in mitigating the future risk of digital-genomic divide.

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“…They then applied a visual approach to uncover known associations and a computational approach to systematically analyze the associations between drug classes and ADEs. Amith and Tao introduced their Vaccine Information Statement Ontology (VISO), which is a comprehensive vaccine information ontology that can support personal health information applications using patient-consumer lexicon, and lead to outcomes that can improve patient education [ 4 ]. The current VISO contains the knowledge included in the Vaccine Information Statement (VIS) documents collected from the USA Centers for Disease Control and Prevention (CDC) website.…”

Section: Summary Of Selected Papers In the Thematic Issuementioning

confidence: 99%

Vaccine and Drug Ontology Studies (VDOS 2014)

Tao

Arabandi³

2016

J Biomed Semant

Self Cite

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The “Vaccine and Drug Ontology Studies” (VDOS) international workshop series focuses on vaccine- and drug-related ontology modeling and applications. Drugs and vaccines have been critical to prevent and treat human and animal diseases. Work in both (drugs and vaccines) areas is closely related - from preclinical research and development to manufacturing, clinical trials, government approval and regulation, and post-licensure usage surveillance and monitoring. Over the last decade, tremendous efforts have been made in the biomedical ontology community to ontologically represent various areas associated with vaccines and drugs – extending existing clinical terminology systems such as SNOMED, RxNorm, NDF-RT, and MedDRA, developing new models such as the Vaccine Ontology (VO) and Ontology of Adverse Events (OAE), vernacular medical terminologies such as the Consumer Health Vocabulary (CHV). The VDOS workshop series provides a platform for discussing innovative solutions as well as the challenges in the development and applications of biomedical ontologies for representing and analyzing drugs and vaccines, their administration, host immune responses, adverse events, and other related topics. The five full-length papers included in this 2014 thematic issue focus on two main themes: (i) General vaccine/drug-related ontology development and exploration, and (ii) Interaction and network-related ontology studies.

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Developing VISO: Vaccine Information Statement Ontology for patient education

Cited by 10 publications

References 14 publications

Parental experiences with vaccine information statements: Implications for timing, delivery, and parent-provider immunization communication

Parental experiences with vaccine information statements: Implications for timing, delivery, and parent-provider immunization communication

Opportunities for community awareness platforms in personal genomics and bioinformatics education

Vaccine and Drug Ontology Studies (VDOS 2014)

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