Developing a Danish version of the “Impact on Participation and Autonomy Questionnaire”

Ghaziani, Emma; Krogh, A; Lund, Hans

doi:10.3109/11038128.2012.737370

Cited by 12 publications

(15 citation statements)

References 28 publications

(56 reference statements)

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“…It has five domains. 39 We used autonomy indoors, family roles and social relations subscales with scores ranging from 0-4, with 0 being no participation restrictions and 4 being perceived severe participation restrictions. The scores were dichotomised into no perceived restrictions (score 0 and 1) and perceived restrictions (scores 2, 3 and 4).…”

Section: Outcome Measuresmentioning

confidence: 99%

The ‘Cancer Home-Life Intervention’: A randomised controlled trial evaluating the efficacy of an occupational therapy–based intervention in people with advanced cancer

et al. 2018

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Background:People with advanced cancer face difficulties with their everyday activities at home that may reduce their health-related quality of life. To address these difficulties, we developed the ‘Cancer Home-Life Intervention’.Aim:To evaluate the efficacy of the ‘Cancer Home Life-Intervention’ compared with usual care with regard to patients’ performance of, and participation in, everyday activities, and their health-related quality of life.Design and intervention:A randomised controlled trial (ClinicalTrials.gov NCT02356627). The ‘Cancer Home-Life Intervention’ is a brief, tailored, occupational therapy–based and adaptive programme for people with advanced cancer targeting the performance of their prioritised everyday activities.Setting/participants:Home-living adults diagnosed with advanced cancer experiencing functional limitations were recruited from two Danish hospitals. They were assessed at baseline, and at 6 and 12 weeks of follow-up. The primary outcome was activities of daily living motor ability. Secondary outcomes were activities of daily living process ability, difficulty performing prioritised everyday activities, participation restrictions and health-related quality of life.Results:A total of 242 participants were randomised either to the intervention group (n = 121) or the control group (n = 121). No effect was found on the primary outcome (between-group mean change: −0.04 logits (95% confidence interval: −0.23 to 0.15); p = 0.69). Nor was any effect on the secondary outcomes observed.Conclusion:In most cases, the ‘Cancer Home-Life Intervention’ was delivered through only one home visit and one follow-up telephone contact, which not was effective in maintaining or improving participants’ everyday activities and health-related quality of life. Future research should pay even more attention to intervention development and feasibility testing.

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Section: Outcome Measuresmentioning

confidence: 99%

The ‘Cancer Home-Life Intervention’: A randomised controlled trial evaluating the efficacy of an occupational therapy–based intervention in people with advanced cancer

et al. 2018

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“…The primary outcome measure is the Stroke Self-Efficacy Questionnaire (SSEQ), assessing self-rated confidence in performing tasks that may have been affected by stroke [ 19 , 20 ]. Secondary outcome measures comprise Impact on Participation and Autonomy (IPA) to assess person-perceived restrictions and satisfaction with participation [ 21 – 23 ]. Quality of life is assessed by the short version of Stroke-Specific Quality of Life Scale (SSQoL-12) [ 24 ].…”

Section: Methodsmentioning

confidence: 99%

“Stroke - 65 Plus. Continued Active Life”: a study protocol for a randomized controlled cross-sectoral trial of the effect of a novel self-management intervention to support elderly people after stroke

Pallesen

Næss‐Schmidt

Kjeldsen

et al. 2018

Trials

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BackgroundElderly people represent the majority of stroke cases worldwide. Post-stroke sequelae frequently lead to a more isolated life. Restricted social relations render older individuals with stroke a vulnerable group, especially in terms of social reintegration. Reintegration into the community after a stroke largely depends on support from the family. However, close relatives are at risk of becoming overburdened. The aim of this study is to investigate the effect of a novel self-management intervention to support elderly people after stroke.Methods/DesignRandomized controlled trial. Two weeks before discharge from a rehabilitation hospital/center, individuals with stroke aged > 65 years will be randomized either to a group receiving conventional neurorehabilitation (control) or to an additional novel self-management intervention. In the intervention group, patients with stroke will be offered eight self-management sessions of 45–60 min duration by a physiotherapist or an occupational therapist during a period of nine months after discharge. Inclusion will continue until at least 35 individuals in each group have been recruited.Study outcome measurements: Stroke Self-efficacy Questionnaire, a short version of Stroke Specific Quality of Life Scale, Impact on Participation and Autonomy and Caregiver Burden Scale. Furthermore, physical activity will be assessed using accelerometers. All outcomes except “impact on participation” and “autonomy” will be assessed at baseline, three months, and nine months after discharge. Impact on participation and autonomy will be assessed at three and nine months after discharge.Patient, informal caregiver, and therapist satisfaction will be examined by way of questionnaires and interviews.DiscussionSelf-management interventions are promising strategies for rehabilitation, potentially increasing self-efficacy, quality of life, as well as participation and autonomy. The introduction of a novel self-management intervention in combination with traditional physical and occupational therapy may enhance recovery after stroke and quality of life and lessen the burden on relatives. This trial “Stroke - 65 Plus. Continued Active Life,” will provide further evidence of self-management strategies to clinicians, patients, and health economists.Trial registrationClinicalTrials.gov, NCT03183960. Registered on 12 June 2017.Electronic supplementary materialThe online version of this article (10.1186/s13063-018-2961-4) contains supplementary material, which is available to authorized users.

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“…The original version is in Dutch , but the IPA has been translated, culturally adapted, and used in other languages and contexts .…”

Section: Impact On Participation and Autonomymentioning

confidence: 99%

Measures of Participation in Persons With Musculoskeletal Conditions

Björk

Bergström

Sverker

et al. 2020

Arthritis Care & Research

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Developing a Danish version of the “Impact on Participation and Autonomy Questionnaire”

Cited by 12 publications

References 28 publications

The ‘Cancer Home-Life Intervention’: A randomised controlled trial evaluating the efficacy of an occupational therapy–based intervention in people with advanced cancer

The ‘Cancer Home-Life Intervention’: A randomised controlled trial evaluating the efficacy of an occupational therapy–based intervention in people with advanced cancer

“Stroke - 65 Plus. Continued Active Life”: a study protocol for a randomized controlled cross-sectoral trial of the effect of a novel self-management intervention to support elderly people after stroke

Measures of Participation in Persons With Musculoskeletal Conditions

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