Depression in Parents of Children Diagnosed with Autism Spectrum Disorder: A Claims-Based Analysis

Cohrs, Austin C.; Leslie, Douglas L.

doi:10.1007/s10803-017-3063-y

Cited by 115 publications

(56 citation statements)

References 25 publications

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“…To our knowledge, this is the first direct study of mothers of children with ASD in Bangladesh that report prevalence figure for clinically assessed MDD by means of SCID-I structured interviews following screening of depressive symptoms with PHQ-9 assessments. The estimate of maternal depression in our study is much higher than the results reported in studies conducted in high income countries [Cohrs & Leslie, 2017;Olsson & Hwang, 2001], while consistent with studies conducted in other countries in Asia [Azeem et al, 2013;Firat, Diler, Avci, & Seydaoglu, 2002;Jose, Gupta, Gulati, & Sapra, 2017]. Almost half the mothers caring for a child with ASD at home in urban setting of Dhaka city experienced MDD, which in turn was significantly related with their characteristics of being a mother who did not work outside of the home, receiving no concurrent support for their child's care at home, suffering from a physical ailment, being a target of the neighbor's negative attitudes toward their child with ASD, and having low satisfaction with the health providers on seeking care for their child with ASD.…”

Section: Discussioncontrasting

confidence: 92%

“…To our knowledge, this is the first direct study of mothers of children with ASD in Bangladesh that report prevalence figure for clinically assessed MDD by means of SCID‐I structured interviews following screening of depressive symptoms with PHQ‐9 assessments. The estimate of maternal depression in our study is much higher than the results reported in studies conducted in high income countries [Cohrs & Leslie, ; Olsson & Hwang, ], while consistent with studies conducted in other countries in Asia [Azeem et al, ; Firat, Diler, Avci, & Seydaoglu, ; Jose, Gupta, Gulati, & Sapra, ].…”

Section: Discussionsupporting

confidence: 90%

“…The prevalence of depression in high-income countries is greater among the mothers of children with autism spectrum disorder (ASD) compared to the mothers of typically developing children [Riahi & Izadi-mazidi, 2012]. Moreover, the prevalence of depression among the mothers of children with ASD is highest among mothers of children with all other neurodevelopmental disorders (NDDs) [Carter, Martínez-Pedraza, & Gray, 2009;Cohrs & Leslie, 2017;Gallagher, Phillips, Oliver, & Carroll, 2008;Morgan et al, 2012;Olsson & Hwang, 2001;Zeedyk & Blacher, 2017]. The limited evidence in LMICs also suggests that the parents of children with ASD are at a higher risk of depression compared to the mothers of children with other NDDs, or mothers of typically developing children [Al-Farsi, Al-Farsi, Al-Sharbati, & Al-Adawi, 2016;Chandravanshi et al, 2017].…”

Section: Burden Of Depression Among Mothers Of Children With Asdmentioning

confidence: 99%

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Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Naheed

Islam

Hossain³

et al. 2019

Autism Research

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This cross‐sectional study examined the burden of depression and quality of life (QoL) among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. All consenting mothers were 18 years of age and older and met criteria for major depressive disorder (MDD) on the Structured Interview for DSM‐V‐TR Research Version‐non patient edition administered by trained raters. QoL was assessed by the EuroQol five‐dimensional standardized questionnaire. MDD was diagnosed in 45% of mothers and was proportionally higher among those who did not work outside the home, had no childcare support at home, expressed low level of satisfaction with the quality of providers when they had sought care for their children with ASD, and reported being recipient of negative attitudes from neighbors toward their children with ASD. QoL was negatively associated with MDD, mothers' illness, and low satisfaction with the health care providers for children with ASD, as well as experiencing a negative attitude by neighbors toward their children. QoL was positively associated with the reported family monthly income and improvement of the children with ASD on school attendance. The prevalence of MDD among mothers of children with ASD was high and associated with poor QoL. Integrating mental health services and supports for mothers in the ASD care of children is likely to address the high burden of depression they face, and improve their overall quality of life. Autism Res 2020, 13: 284–297. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary The levels of depression were assessed among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. Almost one in two mothers was found to have major depression. The quality of life of these mothers was generally poor. Integrating mental health services for mothers with ASD care in children is likely to address the burden of depression among the mothers of children with ASD and improve overall quality of life.

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Section: Discussioncontrasting

confidence: 92%

Section: Discussionsupporting

confidence: 90%

Section: Burden Of Depression Among Mothers Of Children With Asdmentioning

confidence: 99%

See 1 more Smart Citation

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Naheed

Islam

Hossain³

et al. 2019

Autism Research

View full text Add to dashboard Cite

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“…In contrast to an earlier study on parents of children with ASD [15], but in line with study on parents of children with anxiety disorders [18], we did not find an effect of the age of the child on parental psychopathology. It could be that the age effect is confined to parents of children with ASD as parents may become more aware of the continuing disabilities, or the problems may become more debilitating on school and social functioning when their child becomes older, and may hinder them to become independent adults.…”

Section: Discussionsupporting

confidence: 78%

“…For example, a large national-claim database study in the United States found the incidence of depression in parents of children diagnosed with autism spectrum disorder to increase with age of the child [15], whereas the age of children with anxiety disorders was not found to influence parental internalizing and externalizing problem scores [18]. …”

Section: Introductionmentioning

confidence: 99%

Risk factors for parental psychopathology: a study in families with children or adolescents with psychopathology

Wesseldijk

Dieleman

Steensel

et al. 2018

Eur Child Adolesc Psychiatry

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The parents of children with psychopathology are at increased risk for psychiatric symptoms. To investigate which parents are mostly at risk, we assessed in a clinical sample of families with children with psychopathology, whether parental symptom scores can be predicted by offspring psychiatric diagnoses and other child, parent and family characteristics. Parental depressive, anxiety, avoidant personality, attention-deficit/hyperactivity (ADHD), and antisocial personality symptoms were measured with the Adult Self Report in 1805 mothers and 1361 fathers of 1866 children with a psychiatric diagnosis as assessed in a child and adolescent psychiatric outpatient clinic. In a multivariate model, including all parental symptom scores as outcome variables, all offspring psychiatric diagnoses, offspring comorbidity and age, parental age, parental educational attainment, employment, and relationship status were simultaneously tested as predictors. Both 35.7% of mothers and 32.8% of fathers scored (sub)clinical for at least one symptom domain, mainly depressive symptoms, ADHD symptoms or, only in fathers, avoidant personality symptoms. Parental psychiatric symptoms were predicted by unemployment. Parental depressive and ADHD symptoms were further predicted by offspring depression and offspring ADHD, respectively, as well as by not living together with the other parent. Finally, parental avoidant personality symptoms were also predicted by offspring autism spectrum disorders. In families with children referred to child and adolescent psychiatric outpatient clinics, parental symptom scores are associated with adverse circumstances and with similar psychopathology in their offspring. This signifies, without implying causality, that some families are particularly vulnerable, with multiple family members affected and living in adverse circumstances.Electronic supplementary materialThe online version of this article (10.1007/s00787-018-1156-6) contains supplementary material, which is available to authorized users.

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Mental Health Care Utilization Among Parents of Children With Cancer

Hu,

Grosse,

Han

et al. 2024

JAMA Netw Open

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ImportanceCaring for children diagnosed with cancer may adversely affect the mental health (MH) of parents.ObjectiveTo characterize utilization of MH services among parents of children with vs without cancer using nationwide commercial claims data.Design, Setting, and ParticipantsFor this cross-sectional study, the Merative MarketScan Commercial Claims Database was used to identify continuously insured families of children treated for cancer (aged ≤21 years at diagnosis) during 2010 to 2018, compared with families who matched eligibility criteria but did not have a child with a cancer history. Parents were assessed from 18 months before to 12 months after their child’s cancer diagnosis. Analyses were conducted from February 2022 to September 2023.ExposuresChildren’s cancer diagnosis.Main Outcomes and MeasuresOutcomes included parents’ MH-related visits during the first year following their child’s cancer diagnosis. Logistic regressions compared outcomes between families of children with vs without cancer, adjusting for sociodemographic and clinical factors.ResultsThis study included 4837 families of children with cancer (4210 mothers and 4016 fathers) and 24 185 families of children without cancer (21 444 mothers and 19 591 fathers) with continuous insurance enrollment. Most household leads were aged 35 to 54 years (3700 [76.5%] in families of children with cancer vs 17 812 [73.6%] in families of children without cancer) and resided in urban areas (4252 [87.9%] vs 21 156 [87.5%]). The probabilities of parents having anxiety-related visits (10.6% vs 7.0%), depression-related visits (8.4% vs 6.1%), and any MH-related visits (18.1% vs 13.3%) were higher in families of children with vs without cancer. Adjusted analyses showed absolute increases of 3.2 percentage points (95% CI, 2.3 to 4.0; 45.7% relative increase), 2.2 percentage points (95% CI, 1.4 to 3.0; 36.1% relative increase), and 4.2 percentage points (95% CI, 3.1 to 5.3; 31.3% relative increase) in the probabilities of 1 or both parents having anxiety-related visits, depression-related visits, and any MH-related visits, respectively, among families of children with vs without cancer. Such differences were greater in magnitude among mothers than fathers.Conclusions and RelevanceIn this cohort study of privately insured parents, those caring for children with cancer had a higher likelihood of utilizing MH care than other parents. These findings underline the importance of interventions toward targeted counseling and support to better meet MH care needs among parents and caregivers of children with cancer.

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Depression in Parents of Children Diagnosed with Autism Spectrum Disorder: A Claims-Based Analysis

Cited by 115 publications

References 25 publications

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Risk factors for parental psychopathology: a study in families with children or adolescents with psychopathology

Mental Health Care Utilization Among Parents of Children With Cancer

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