Decision making of amyotrophic lateral sclerosis patients on noninvasive ventilation to receive tracheostomy positive pressure ventilation

Kurisaki, Ryoichi; Yamashita, Satoshi; Sakamoto, Tetsuro; Maruyoshi, Natsue; Uekawa, Kazutoshi; Uchino, Makoto; Ando, Yumiko

doi:10.1016/j.clineuro.2014.07.008

Cited by 11 publications

(17 citation statements)

References 16 publications

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“…The rate of TIV increased through 2004 because multidisciplinary care plans were developed with professional in‐home care services through Japan's LTCI . During the 10 years 2005–2015, TIV treatment was reduced with the increased use of NIV, which may be because the rate of transition from NIV to TIV significantly decreased.…”

Section: Discussionmentioning

confidence: 95%

Clinical characteristics of long‐term survival with noninvasive ventilation and factors affecting the transition to invasive ventilation in amyotrophic lateral sclerosis

et al. 2018

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Section: Discussionmentioning

confidence: 95%

Clinical characteristics of long‐term survival with noninvasive ventilation and factors affecting the transition to invasive ventilation in amyotrophic lateral sclerosis

et al. 2018

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“…[4] Conversely, TPPV is used to treat ALS patients with severe bulbar palsy unable to maintain a proper level of CO 2 via NIPPV. [5] …”

Section: Introductionmentioning

confidence: 99%

Different characteristics of ventilator application between tracheostomy- and noninvasive positive pressure ventilation patients with amyotrophic lateral sclerosis

et al. 2017

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The aim of the study was to investigate the appropriate home ventilator settings for patients with amyotrophic lateral sclerosis (ALS).In total, 71 patients with ALS, who had received either a noninvasive positive pressure ventilation (NIPPV) or tracheostomy positive pressure ventilation (TPPV), were included. Accordingly, patients were divided into 2 groups (the TPPV and NIPPV groups). We retrospectively evaluated the values used in home ventilators for patients with ALS, who had maintained a stable level of CO2 on both the arterial blood gas analysis (ABGA) and transcutaneous blood gas monitoring. To measure the main outcome, we also investigated the actual body weight (ABW) and predicted body weight (PBW) of patients, and the following setting values of ventilators were also recorded: the inspired tidal volume (VTi), minute ventilation (MV), peak inspiratory pressure (PIP), positive end expiratory pressure (PEEP), and inspiratory time (Tins).VTi and MV showed a significantly positive correlation with both PBW and ABW of patients in the TPPV group. However, both VTi and MV had greater significant correlation with PBW than ABW in the TPPV group. In addition, VTi and MV did not show a significantly positive correlation with either PBW or ABW in the NIPPV group.In patients with ALS, PBW was more useful for predicting VTi and MV than ABW. Moreover, it will be helpful to know the differences of setting values between TPPV and NIPPV, especially because ALS patients are usually treated with TPPV due to the initial difficulties associated with NIPPV.

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“…There has been a tendency to emphasize on only the final decision, i.e., accept or decline, in these patients [8] [9] [13] [14] [15] [16]. On the other hand, it has been shown that their decision could change over time [15] [16]. The thought process behind the decision about TIV that takes place over the course of disease progression, and when the decision is formed and changed, however, is unknown.…”

Section: Introductionmentioning

confidence: 99%

“…ALS patients need to consider the options and eventually make a decision about TIV use. There has been a tendency to emphasize on only the final decision, i.e., accept or decline, in these patients [8] [9] [13] [14] [15] [16]. On the other hand, it has been shown that their decision could change over time [15] [16].…”

Section: Introductionmentioning

confidence: 99%

Intention Formation Process for the Use of Tracheostomy and Invasive Ventilation in Patients with Amyotrophic Lateral Sclerosis

Shin¹,

Inoue²,

Nakayama³

et al. 2017

OJN

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Background: Little is known about the intention formation process regarding the use of tracheostomy and invasive ventilation (TIV) in amyotrophic lateral sclerosis (ALS) patients in the course of disease progression. Objective: To clarify the intention formation process in the use of TIV in ALS patients for the purpose of providing decision-making support. Methods: We conducted a follow-up study of 14 patients using semi-structured interviews, participant observation, and medical records review. Results: The patients' various intentions regarding the use of TIV were formed as their symptoms progressed (e.g., declining motor, swallowing, and respiratory functions). Other factors influencing their decision were their considerations, such as their ability to communicate after receiving TIV treatment, the degree of support they would receive from professionals after TIV treatment, palliative care for physical distress, value of life after TIV treatment, and to what degree they would be a burden on their families. Conclusion: Patients' intentions regarding the use of TIV were diverse and changeable. The decision of whether or not to use TIV was made out of conviction as well as considering individual experiences of symptom progression and quality of life after TIV use.

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Decision making of amyotrophic lateral sclerosis patients on noninvasive ventilation to receive tracheostomy positive pressure ventilation

Cited by 11 publications

References 16 publications

Clinical characteristics of long‐term survival with noninvasive ventilation and factors affecting the transition to invasive ventilation in amyotrophic lateral sclerosis

Clinical characteristics of long‐term survival with noninvasive ventilation and factors affecting the transition to invasive ventilation in amyotrophic lateral sclerosis

Different characteristics of ventilator application between tracheostomy- and noninvasive positive pressure ventilation patients with amyotrophic lateral sclerosis

Intention Formation Process for the Use of Tracheostomy and Invasive Ventilation in Patients with Amyotrophic Lateral Sclerosis

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