Deciding on treatment limitation for neonates: the parents' perspective

Abstract

The majority of parents wish to be active in decision making on behalf of their baby. Doing so does not appear to have adverse consequences. The pacing of events in the process of deciding and managing the dying is critical. Dissatisfaction is reduced if parents are given time and evidence to help them assimilate the reality at each stage.

Teaching antenatal counseling skills to neonatal providers

“…9-11 They also commonly expressed doubts about their ability to rationally process so much information during a time of intense emotional stress. 4,10 Parents commonly expressed a wish that their physician had been able to convey to them a sense of hope and compassion, 7,12,13 and felt abandoned when physicians seemed to be "following protocol" or "acting by the book." 10 Women reported feeling "mistrustful" of physicians who communicated only bad news, and perceived such Table 1 -Representative standardized patient comments following simulated antenatal counseling sessions with neonatology fellows.…”

Adolescent mothers in the NICU: how much do they understand?

“…2 This decision-making is challenging for parents and providers alike, as they struggle to integrate complex medical information, prognostic uncertainty, time pressures and intense emotions. [3][4][5][6] Data regarding parent perceptions of communication with providers in the NICU have generally not focused specifically on the experiences of adolescent parents. 5,[7][8][9][10] Adolescent parents may be particularly vulnerable to adverse outcomes related to poor parent-provider communication, as many have appreciable socioeconomic burdens.…”

“…[3][4][5][6] Data regarding parent perceptions of communication with providers in the NICU have generally not focused specifically on the experiences of adolescent parents. 5,[7][8][9][10] Adolescent parents may be particularly vulnerable to adverse outcomes related to poor parent-provider communication, as many have appreciable socioeconomic burdens. We were interested in knowing how much adolescent mothers in the NICU knew about key components of their newborn's illness and their report of the interactions with health-care providers.…”

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

“…According to the Swedish National Board of Health and Welfare (2006), midwives have an obligation to update the care with all new evidence based information. To minimise their doubts, parents wished to receive complete and honest information and concrete evidence of a poor prognosis for their infant (McHaffie, Lyon and Hume, 2001). …”

“…The majority of parents wish to be active in decision making on behalf of their infant (McHaffie Lyon and Hume, 2001;McHaffie, Laing, Parker, and McMillan, 2001;Danerek et al, 2005).…”